New here

[Guest guest]

Hi Everyone,

My name is Angel.....I had my surgery 2 years ago and now i am

going through the phase of having all this excess skin. I would like

to have reconstructive surgery but I am getting denied through my

medical insurance. I need help...is there anyone out there who has

had the plastic surgery covered by their insurance? Please help

guide me....

Thanks,

Angel

[Guest guest]

Hi Angel & welcome! There's an OSSG-plastic surgery list that should

answer all your questions. There are appeal letters in the files,

pictures and some very knowledgeable people. Here's the link...

ossg-plasticsurgery-subscribe

See ya there!

in NJ

**********************

> Hi Everyone,

>

> My name is Angel.....I had my surgery 2 years ago and now i am

> going through the phase of having all this excess skin. I would

like to have reconstructive surgery but I am getting denied through

my medical insurance. I need help...is there anyone out there who

has had the plastic surgery covered by their insurance? Please help

> guide me....

>

>

> Thanks,

>

> Angel

[Guest guest]

Welcome Lalitha,

It is very unusual indeed that here in the U.S., your daughter was

not diagnosed prior to 14 months. That must be so frustrating for

you- especially that you had to insist on seeing a specialist and no

one apparently picked up on it prior. Her clubfoot must have been

pretty mild at birth. Did any of the doctors ever give you any

idication that she had something wrong with her feet/legs that she

would outgrow? Do you have pictures of her feet when she was a baby?

Luckily, Dr. Colburn is one of the most experienced doctors in the

Ponseti method outside of Iowa. Your little girl is in great hands!

I don't know how regularly Dr. C communicates with Dr. Ponseti, but

Dr. Ponseti has treated quite a few older children recently with

success. I'm sure if Dr. Colburn is not seeing positive results

with your daughter, he will communicate with Dr. Ponseti about what

to try. I'm not sure if your daughter is too old for the

percutaneous tenotomy procedure at 18 months or not. I'm sure Dr.

Colburn will discuss this with you once her foot is corrected enough

where he can see how tight her Achilles tendon is.

If you want to research further, there are lots of good links and

information on this group's website under the files, photos, and

links section. There's info here too:

http://members.tripod.com/ponseti_links-ivil

We're glad you're here and hope you will keep us posted on your

daughter's progress. I hope she will adjust to the castings okay

for you- I'm sure it will be hard due to her age, but she'll learn

to get around despite having them on. Dr. Colburn may have to do a

fiberglass overlay on the plaster to keep them intact.

Best wishes-

& (3-16-00, left clubfoot)

http://ponseticlubfoot.freeservers.com/

[Guest guest]

Hi

Thanks for the response. It has put some ease

into our minds hearing that older children were treated.

She is so much into walking I don't know how

I am going to keep her casts/shoes on but we hope

looking only at the long term results will help us through.

I really hope Dr. Colburn will think of giving it a try.

There was absolutely no indication

at birth of any problems. It was very mild

I think as we didn't notice much either

till about 9 months..Her 5 year old brother

also had no problems and we had no family history

that we know of..

We are not very happy with our ped and

are thinking of moving to another

doctor as we felt we had to call her several times

before she would agree to bring Grace in to watch

how she walks. I just hope she will still respond

to the Ponseti method as I don't like to put her

through surgery and believe what Dr. Ponseti has

to say about the regular surgical options..

He sounds like a 'horse whisperer' except here

the horse is the baby foot. Even if Grace does

not qualify I am grateful for him to have

developed this method to put so many

parents worries to rest...

Thanks for the links. We are seeing Dr.Colburn

tomorrow AM. Will update with the outcome.

Regards

Lalitha (Grace's Mom)

>

> Welcome Lalitha,

> It is very unusual indeed that here in the U.S., your daughter was

> not diagnosed prior to 14 months. That must be so frustrating for

> you- especially that you had to insist on seeing a specialist and

no

> one apparently picked up on it prior. Her clubfoot must have been

> pretty mild at birth. Did any of the doctors ever give you any

> idication that she had something wrong with her feet/legs that she

> would outgrow? Do you have pictures of her feet when she was a

baby?

> Luckily, Dr. Colburn is one of the most experienced doctors in the

> Ponseti method outside of Iowa. Your little girl is in great

hands!

> I don't know how regularly Dr. C communicates with Dr. Ponseti, but

> Dr. Ponseti has treated quite a few older children recently with

> success. I'm sure if Dr. Colburn is not seeing positive results

> with your daughter, he will communicate with Dr. Ponseti about what

> to try. I'm not sure if your daughter is too old for the

> percutaneous tenotomy procedure at 18 months or not. I'm sure Dr.

> Colburn will discuss this with you once her foot is corrected

enough

> where he can see how tight her Achilles tendon is.

> If you want to research further, there are lots of good links and

> information on this group's website under the files, photos, and

> links section. There's info here too:

> http://members.tripod.com/ponseti_links-ivil

> We're glad you're here and hope you will keep us posted on your

> daughter's progress. I hope she will adjust to the castings okay

> for you- I'm sure it will be hard due to her age, but she'll learn

> to get around despite having them on. Dr. Colburn may have to do a

> fiberglass overlay on the plaster to keep them intact.

> Best wishes-

> & (3-16-00, left clubfoot)

> http://ponseticlubfoot.freeservers.com/

>

[Guest guest]

Good luck with your appt! Even if Grace's (love her name btw) foot

cannot be fixed 100% by the Ponseti method, the type of surgery she

would need would be much less invasive after serial casting by the

right experienced hands (Dr. Colburn).

We hope casting/bracing is all she will need, they are treating more

and more older kids all the time! Be sure to let us know what Dr.

Colburn has to say...good luck - fingers crossed =)

& Grace 16 mos

unilateral rcf FAB 13 hrs

> >

> > Welcome Lalitha,

> > It is very unusual indeed that here in the U.S., your daughter

was

> > not diagnosed prior to 14 months. That must be so frustrating

for

> > you- especially that you had to insist on seeing a specialist and

> no

> > one apparently picked up on it prior. Her clubfoot must have

been

> > pretty mild at birth. Did any of the doctors ever give you any

> > idication that she had something wrong with her feet/legs that

she

> > would outgrow? Do you have pictures of her feet when she was a

> baby?

> > Luckily, Dr. Colburn is one of the most experienced doctors in

the

> > Ponseti method outside of Iowa. Your little girl is in great

> hands!

> > I don't know how regularly Dr. C communicates with Dr. Ponseti,

but

> > Dr. Ponseti has treated quite a few older children recently with

> > success. I'm sure if Dr. Colburn is not seeing positive results

> > with your daughter, he will communicate with Dr. Ponseti about

what

> > to try. I'm not sure if your daughter is too old for the

> > percutaneous tenotomy procedure at 18 months or not. I'm sure

Dr.

> > Colburn will discuss this with you once her foot is corrected

> enough

> > where he can see how tight her Achilles tendon is.

> > If you want to research further, there are lots of good links and

> > information on this group's website under the files, photos, and

> > links section. There's info here too:

> > http://members.tripod.com/ponseti_links-ivil

> > We're glad you're here and hope you will keep us posted on your

> > daughter's progress. I hope she will adjust to the castings okay

> > for you- I'm sure it will be hard due to her age, but she'll

learn

> > to get around despite having them on. Dr. Colburn may have to do

a

> > fiberglass overlay on the plaster to keep them intact.

> > Best wishes-

> > & (3-16-00, left clubfoot)

> > http://ponseticlubfoot.freeservers.com/

> >

>

[Guest guest]

Lalitha,

My daughter Kelsey did not begin Ponseti method treatment until she was 10

months old and was 12 months old when she had the tenotomy procedure done. She

was previously treated by another ortho but her foot still looked pretty much

the same as it did at birth. Her treatment has been very successful. The FAB

brace being worn for 23 hours a day for 3 months on a 12 month old presented

some interesting challenges but Kelsey sailed through it with no problem. I

have heard good things about Dr. Colburn so I am sure you will be in good

hands. Please feel free to email me if you have any additional questions.

Jenni

wrote: Good luck with your appt! Even

if Grace's (love her name btw) foot

cannot be fixed 100% by the Ponseti method, the type of surgery she

would need would be much less invasive after serial casting by the

right experienced hands (Dr. Colburn).

We hope casting/bracing is all she will need, they are treating more

and more older kids all the time! Be sure to let us know what Dr.

Colburn has to say...good luck - fingers crossed =)

& Grace 16 mos

unilateral rcf FAB 13 hrs

> >

> > Welcome Lalitha,

> > It is very unusual indeed that here in the U.S., your daughter

was

> > not diagnosed prior to 14 months. That must be so frustrating

for

> > you- especially that you had to insist on seeing a specialist and

> no

> > one apparently picked up on it prior. Her clubfoot must have

been

> > pretty mild at birth. Did any of the doctors ever give you any

> > idication that she had something wrong with her feet/legs that

she

> > would outgrow? Do you have pictures of her feet when she was a

> baby?

> > Luckily, Dr. Colburn is one of the most experienced doctors in

the

> > Ponseti method outside of Iowa. Your little girl is in great

> hands!

> > I don't know how regularly Dr. C communicates with Dr. Ponseti,

but

> > Dr. Ponseti has treated quite a few older children recently with

> > success. I'm sure if Dr. Colburn is not seeing positive results

> > with your daughter, he will communicate with Dr. Ponseti about

what

> > to try. I'm not sure if your daughter is too old for the

> > percutaneous tenotomy procedure at 18 months or not. I'm sure

Dr.

> > Colburn will discuss this with you once her foot is corrected

> enough

> > where he can see how tight her Achilles tendon is.

> > If you want to research further, there are lots of good links and

> > information on this group's website under the files, photos, and

> > links section. There's info here too:

> > http://members.tripod.com/ponseti_links-ivil

> > We're glad you're here and hope you will keep us posted on your

> > daughter's progress. I hope she will adjust to the castings okay

> > for you- I'm sure it will be hard due to her age, but she'll

learn

> > to get around despite having them on. Dr. Colburn may have to do

a

> > fiberglass overlay on the plaster to keep them intact.

> > Best wishes-

> > & (3-16-00, left clubfoot)

> > http://ponseticlubfoot.freeservers.com/

> >

>