Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Hi marla I am doing ok.. Sunday I was in the hospital again with one of the raging headache again. I see my Neuro in march again I have a feeling its going to mean cytoxin like he thought. Hey i totally agree with these dr's and they are all treating the same illness and they all want to treat it their way!! i wish all the dr's who treat NS. should have to have training in the illness and keep up on the newest treatments and get a good understanding of the illness. you take care marla Many blessings and hugs and a pain free day Hi, you mentioned all the docs with diff. opinions and diff meds. Same here - very frustrating! Hey, Barb, that's great! You are on Methotrexate or something similar, right? Otherwise, you can form antibodies to the Remicade, which is bad news. Best of luck to you. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis@ yahoogroups. comFrom: beautybarnweber@ yahoo.comDate: Sat, 14 Feb 2009 03:28:16 +0000Subject: im approved!!!! ! HELLO ALL,I JUST WANTED TO LET YOU KNOW I HAD MY VERY FIRST REMICADE INFUSION AT CLEVELAND CLINIC.MY INSURANCE ONLY TOOK 2 WEEKS FOR APPROVAL. I FEEL OK JUST TIRED AND VERY SWEATY. IS THIS NORMAL? I HAVE TO GO BACK IN 2 WEEKS, THEN 4 WEEKS AND EVERY 4 WEEKS AFTER THAT UNTIL AUGUST. HAPPY BIRTHDAY TO THOSE I HAVE MISSED. HOPE ALL IS WELL WITH EVERYONE . HAPPY VALENTINES DAY TO ALL!! BLESSINGS BARB See how Windows connects the people, information, and fun that are part of your life. See Now Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
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