Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 I am sorry we have to meet this way.. but relax and don't freak out,, you need to stay strong for your husband and i know its hard but you must keep you mind to be able to help him. Yes this is a scary dxd's but keep standing behind him and get him to the ER if need be. My husband was the same way when we first met and he started to see what this disease does to me. But he is learning to be more supportive and when I say hospital he knows to get me there ASAP. I know what i am going through with the illness , and he is learning what it is like for the spouse. please relax and be strong for your husband.. Many Blessings A. It's so crazy because I cry as I write this. I never thought that I would have to get involved and need the support that I know I now need. My husband is 33 y/o and was recently diagnosed with Neurosarcoidosis. I'm trying so hard to understand what is really going on. I'm absolutely confused. One minute he was fine, then came a seizure in Feb 09. He was then diagnosed with this condition. Since then, they have him on 2 different types of medication that seem to make him worse. His condition is not getting any better now. He's constantly in the E.R. and ready to give up. As we speak, he is in the E.R. now. Just went this morning. He was complaining of chest pains for the last 3 days and now they found blood clots in his lungs. I just don't know what to do. We have 7 children and I feel lost without him. Please give me some support. I'm so afraid. Need a job? Find employment help in your area. Quote Link to comment Share on other sites More sharing options...
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