Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 i am sorry you feel this way. please be patient as we are all sick on this support group. what is your question maybe i can help you ? sometimes my computer will post answers and i never see the question ! To: Neurosarcoidosis Sent: Thu, February 18, 2010 12:38:10 PMSubject: a complaint I know i dont post very often, and one of the reasons is I have been real sick the past year. I do try to read the posts everyday to keep informed about the community. but I also have a complaint. The last few times I have posted and asked a question I got virtually no responses from anyone. It makes me feel like I have been excluded from the group. i realize that there may not always be an answer to my question but it would be nice if my post was at least acknowledged. I am sure there are others like me in the group, who are , due to there illness not able to post often but rely on the group for information. i think that maybe this group has kind of forgotten about people like us. We need to remember that there are people like me who are also battling this illness who need support just like everyone else, and the fact that we post rarely means when we do make the effort to post we have a major concern. matt in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 HI BELL-TOWN-MAC I TOO AM SORRY YOUR QUESTION AND OR CONCERN WAS ADDRESSED. I DON'T HAVE A LOT OF KNOWLEDGE ABOUT THE DISEASE BUT WHEN I CAN GIVE AND ANSWER I DO.I WANT TO ENCOURAGE YOU TO NOT GIVE UP ON THE GROUP.SEVERAL OF THE MEMBERS THAT HAVE THAT HAVE BEEN ABLE TO ANSWER MEDICAL QUESTIONS HAVE BEEN ILL.IF YOU CAN RECALL WHAT YOU ASKED PLEASE ASK AGAIN.I AM A YEAR OLD MEMBER AND I LOOK FORWARD TO SEEING YOU CONCERNS AND QUESTIONS ON THE GROUP PAGE AGAIN.HELENSubject: a complaintTo: Neurosarcoidosis Date: Thursday, February 18, 2010, 11:38 AM I know i dont post very often, and one of the reasons is I have been real sick the past year. I do try to read the posts everyday to keep informed about the community. but I also have a complaint. The last few times I have posted and asked a question I got virtually no responses from anyone. It makes me feel like I have been excluded from the group. i realize that there may not always be an answer to my question but it would be nice if my post was at least acknowledged. I am sure there are others like me in the group, who are , due to there illness not able to post often but rely on the group for information. i think that maybe this group has kind of forgotten about people like us. We need to remember that there are people like me who are also battling this illness who need support just like everyone else, and the fact that we post rarely means when we do make the effort to post we have a major concern. matt in Seattle Quote Link to comment Share on other sites More sharing options...
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