Re: bad flare, no end in sight :(

[Guest guest]

,

so sorry to hear about the rough things you're going through. Could the

compounded effect of all that stress be contributing? Do you have any ways of

managing stress? I know that regular meditation is helpful for me in many ways.

A friend of mine with a related degree has told me about " pleasure scheduling " ,

a disciplined way of making sure you have enough + times in your day and not

only - ones. Sounds like a good idea to me (maybe I should take heed, too?!)

Apologies if none of this applies, juts thought I'd bring it up as the brain and

gut are more than connected. Here's to brighter days ahead!

Lilian

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat

infection I had and now i'm flaring uncontrollably since then. I thought at

first it was a quick thing because of the antibiotics I took but it just won't

quit and it's all blood/Mucus. Gross.... I've tried going back on full strength

of asacol which is 12 pills a day, along with steroids and nothing has changed

yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me

doubt whether not enjoying all the foods I used to love is worth being on this

diet. I know people on SCD have gotten bad flares before, but i don't know what

to think now. I know I want to try LDN (got a link for their msg board?) in the

near future once I get health insurance again. Maybe it's stress... new job,

ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

[Guest guest]

Highly stressfull situations definitely play a role for me. I had another bad flare that lasted about 4 days (came quick and hard and left just as quick) when a close family member died. So, definitely connected. Plus, the antibiotics started the whole thing.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: lilianhd@...Date: Thu, 4 Feb 2010 01:48:08 +0000Subject: Re: bad flare, no end in sight

,

so sorry to hear about the rough things you're going through. Could the compounded effect of all that stress be contributing? Do you have any ways of managing stress? I know that regular meditation is helpful for me in many ways. A friend of mine with a related degree has told me about "pleasure scheduling", a disciplined way of making sure you have enough + times in your day and not only - ones. Sounds like a good idea to me (maybe I should take heed, too?!)

Apologies if none of this applies, juts thought I'd bring it up as the brain and gut are more than connected. Here's to brighter days ahead!

Lilian

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat infection I had and now i'm flaring uncontrollably since then. I thought at first it was a quick thing because of the antibiotics I took but it just won't quit and it's all blood/Mucus. Gross.... I've tried going back on full strength of asacol which is 12 pills a day, along with steroids and nothing has changed yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me doubt whether not enjoying all the foods I used to love is worth being on this diet. I know people on SCD have gotten bad flares before, but i don't know what to think now. I know I want to try LDN (got a link for their msg board?) in the near future once I get health insurance again. Maybe it's stress... new job, ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

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[Guest guest]

At 07:21 PM 2/3/2010, you wrote:

I'm so tired of cooking all the

time.

,

It's hard. First of all -- you've spoken of how much better you were

doing before having to take the antibiotics.

Therefore, you know that this is a temporary setback... but your guts are

going to take a bit to settle back down from the insult.

Go easy on the food. Take your probiotics.

I remember thinking before I had my cancer surgery that it would be so

much easier if I didn't have to fix all my food for the hospital and for

6-8 weeks after before I went. But the health benefit of eating SCD,

well.... they were worth the time I spent.

Remember -- three steps forward, and two steps back, and three steps

forward and two steps back... right now it probably feels like five steps

forward and four steps back. But you're still moving forward!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I'm so sorry to hear =( I can understand doubting the diet, especially at a time

like this, but still, I don't think you should go off of it. Because even if it

doesn't control your symptoms now, and you need conventional meds now, what

other long term treatment option do you have other than the diet? I know nobody

on here would want to stay on immunosuppressants for the rest of their life, or

even asacol or any other milder drug.

I would just do what your GI recommends now for getting this flare under

control, but keep on with the diet so that you have hope of getting off those

meds eventually. There's still hope =)

I think it's funny you mention missing your old foods. I do occasionally, but

more often than that I'm jealous of all the recipes you post that I can't have!!

I guess we all (including myself) take whatever we have for granted, no matter

how much or how little that is, because I'm sure I can eat things that others

can only dream of having.

Oh, have you tried detox baths? A ton of broth? Cod liver oil? Small things, but

if you do enough of them they might help.

I hope you get better soon!!

Alyssa =)

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat

infection I had and now i'm flaring uncontrollably since then. I thought at

first it was a quick thing because of the antibiotics I took but it just won't

quit and it's all blood/Mucus. Gross.... I've tried going back on full strength

of asacol which is 12 pills a day, along with steroids and nothing has changed

yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me

doubt whether not enjoying all the foods I used to love is worth being on this

diet. I know people on SCD have gotten bad flares before, but i don't know what

to think now. I know I want to try LDN (got a link for their msg board?) in the

near future once I get health insurance again. Maybe it's stress... new job,

ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

[Guest guest]

, I'm sorry

I would bet on the antibiotics and the stress.

LDN sounds like a good next step. Breaking SCD would make everything worse.

Hang in there,

PJ

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat

infection I had and now i'm flaring uncontrollably since then. I thought at

first it was a quick thing because of the antibiotics I took but it just won't

quit and it's all blood/Mucus. Gross.... I've tried going back on full strength

of asacol which is 12 pills a day, along with steroids and nothing has changed

yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me

doubt whether not enjoying all the foods I used to love is worth being on this

diet. I know people on SCD have gotten bad flares before, but i don't know what

to think now. I know I want to try LDN (got a link for their msg board?) in the

near future once I get health insurance again. Maybe it's stress... new job,

ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

[Guest guest]

,

I have been on this diet 6 months and every month I have had a flare up. The last one was on Jan 14 and took a week to get under control using Prednisone. When ever I get a flare I want to give up SCD but I know I would really regret having to go back to square one wnen I am six months in. I have also just started a bigger dose of S Boulardii and I think this will help prevent flares and let me eat more SCD foods and finally put some weight back on.

Feel Better.

K.

Subject: bad flare, no end in sight :(To: btvc-scd Date: Wednesday, February 3, 2010, 8:21 PM

A little history... I had to take antibiotics 2 weeks ago for a threoat infection I had and now i'm flaring uncontrollably since then. I thought at first it was a quick thing because of the antibiotics I took but it just won't quit and it's all blood/Mucus. Gross.... I've tried going back on full strength of asacol which is 12 pills a day, along with steroids and nothing has changed yet. Usually that takes care of a flare overnight (it's been 5 nights so far)I've gone back to intro foods but nothing seems to help. It really makes me doubt whether not enjoying all the foods I used to love is worth being on this diet. I know people on SCD have gotten bad flares before, but i don't know what to think now. I know I want to try LDN (got a link for their msg board?) in the near future once I get health insurance again. Maybe it's stress... new job, ended a long term relationship, and bad flare up. ugh, I guess i'm just

complaining. I'm so tired of cooking all the time.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a day

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

[Guest guest]

-

Sorry to hear that. I hope you get over this bump -- ending a long-term

relationship + flare can be stressful.

I hope it settles down soon.

-Andy.

[Guest guest]

Have you checked for cdiff?

Good luck, Pat

Re: bad flare, no end in sight

, I'm sorry

I would bet on the antibiotics and the stress.

LDN sounds like a good next step. Breaking SCD would make everything worse.

Hang in there,

PJ

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat infection I had and now i'm flaring uncontrollably since then. I thought at first it was a quick thing because of the antibiotics I took but it just won't quit and it's all blood/Mucus. Gross.... I've tried going back on full strength of asacol which is 12 pills a day, along with steroids and nothing has changed yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me doubt whether not enjoying all the foods I used to love is worth being on this diet. I know people on SCD have gotten bad flares before, but i don't know what to think now. I know I want to try LDN (got a link for their msg board?) in the near future once I get health insurance again. Maybe it's stress... new job, ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> __________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

[Guest guest]

Hi ,

I have no words of wisdom, but I wanted to tell you that I admire you for

sticking with the diet despite the flare. I am new to the diet and often

question if it will work for me, but it seems to have worked wonders for many

people, so I try to tell myself that. I hope you get out of your flare soon.

Take care,

Amber

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat

infection I had and now i'm flaring uncontrollably since then. I thought at

first it was a quick thing because of the antibiotics I took but it just won't

quit and it's all blood/Mucus. Gross.... I've tried going back on full strength

of asacol which is 12 pills a day, along with steroids and nothing has changed

yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me

doubt whether not enjoying all the foods I used to love is worth being on this

diet. I know people on SCD have gotten bad flares before, but i don't know what

to think now. I know I want to try LDN (got a link for their msg board?) in the

near future once I get health insurance again. Maybe it's stress... new job,

ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

[Guest guest]

I stay on it because it's the only thing that I can do for myself to try and get myself better for the LONG term. I could easily take medicine and go flare free, but for how long? and at what risk? Eating healthy only comes with one risk... getting better!If I tried the diet, and have to go on the medicines anyways, at least I exhausted all my options before going that route.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: fossil.color@...Date: Thu, 4 Feb 2010 20:36:14 +0000Subject: Re: bad flare, no end in sight

Hi ,

I have no words of wisdom, but I wanted to tell you that I admire you for sticking with the diet despite the flare. I am new to the diet and often question if it will work for me, but it seems to have worked wonders for many people, so I try to tell myself that. I hope you get out of your flare soon.

Take care,

Amber

>

>

> A little history... I had to take antibiotics 2 weeks ago for a threoat infection I had and now i'm flaring uncontrollably since then. I thought at first it was a quick thing because of the antibiotics I took but it just won't quit and it's all blood/Mucus. Gross.... I've tried going back on full strength of asacol which is 12 pills a day, along with steroids and nothing has changed yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> I've gone back to intro foods but nothing seems to help. It really makes me doubt whether not enjoying all the foods I used to love is worth being on this diet. I know people on SCD have gotten bad flares before, but i don't know what to think now. I know I want to try LDN (got a link for their msg board?) in the near future once I get health insurance again. Maybe it's stress... new job, ended a long term relationship, and bad flare up.

>

> ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

>

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

>

>

>

>

> __________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

Hotmail: Powerful Free email with security by Microsoft. Get it now.

[Guest guest]

At 05:18 PM 2/5/2010, you wrote:

For your flare up, may I suggest

taking a natural product that really helped me ( I just came out of a big

Crohn flare up) : boswellia !

Be careful of the boswellia -- it is a gum, and gums are not SCD

legal.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

I have boswellia and tried it before with no changes good or bad. The boswellia I got has illegals and it's in pill form. Is there a way around this?-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: beaulieu.yves@...Date: Fri, 5 Feb 2010 23:18:51 +0000Subject: Re: bad flare, no end in sight

For your flare up, may I suggest taking a natural product that really helped me ( I just came out of a big Crohn flare up) : boswellia !

I bought Maxi Boz, from a Canadian cie AOR, that has 65% extract of boswellia, a resin from a tree in India and China. It's a natural anti-inflammatory product. It's the first that I don't have to use prednisone !! And my stools turned perfect within 3 weeks !

>

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> >

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> > A little history... I had to take antibiotics 2 weeks ago for a threoat infection I had and now i'm flaring uncontrollably since then. I thought at first it was a quick thing because of the antibiotics I took but it just won't quit and it's all blood/Mucus. Gross.... I've tried going back on full strength of asacol which is 12 pills a day, along with steroids and nothing has changed yet. Usually that takes care of a flare overnight (it's been 5 nights so far)

>

> >

>

> > I've gone back to intro foods but nothing seems to help. It really makes me doubt whether not enjoying all the foods I used to love is worth being on this diet. I know people on SCD have gotten bad flares before, but i don't know what to think now. I know I want to try LDN (got a link for their msg board?) in the near future once I get health insurance again. Maybe it's stress... new job, ended a long term relationship, and bad flare up.

>

> >

>

> > ugh, I guess i'm just complaining. I'm so tired of cooking all the time.

>

> >

>

> >

>

> >

>

> > -

>

> > UC - 1+ years

>

> > SCD - 7 months 100% strict and 4 months restricted diet.

>

> > Asacol - 5 pills a day

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

> > http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

> >

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> __________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> http://clk.atdmt.com/GBL/go/201469230/direct/01/

>

Hotmail: Trusted email with powerful SPAM protection. Sign up now.

[Guest guest]

Since boswellia is illegal I use turmeric as an

anti-inflammatory. I cook with it (great w/scrambled eggs), and I also scoop

the spice into vegetable capsules. Or you could purchase it – the active

ingredient in ginger & turmeric is curcumin. Turmeric will stain yellow,

also it is fat soluble so needs some fat for absorption.

http://www.turmeric.co.in/turmeric_medicinal_use.htm

Carol

CD 22 yrs SCD 5 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

T

have boswellia and tried it before with no

changes good or bad. The boswellia I got has illegals and it's in pill form. Is

there a way around this?