Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 Terri, You and your family will be in my prayers this evening. I wish ya'll health and wellness, may you Nuero find the right treatment. Greg > > > Hello All: > > Just a quick update on what is going on in Terri World. I am going for > another LP on Tuesday - I think this is the 3rd or 4th one in the last 8 > years. I am going to do another round of neuropsych testing soon too. > I am currently not on any treatment at all so things are sucking pretty > bad right now. My new Neuro is fantastic and used to be at Emory and > Washington University Hospitals. She is so wonderful. She is > going through all possible diagnoses and treatments - we know how this > all goes but I have to give her the opportunity to do her thing. > > Of course, it will be either MS or NS as a diagnosis but all I know is > that I want my cytoxan back! When I was on the treatment, I was 75-80% > better. Now I am just barely making it through the day. I am trying to > help my son and daughter-in-law as much as possible. Their baby is due > in February but Angie is having preterm contractions and they are just > trying to keep the baby from delivering for as long as possible. I try > to sleep as much as possible but I set an alarm and get up and make a > meal and take it to them to try to keep my son from having to do to > much. > > Well, just say a prayer for us that baby Brady decides to stay where he > is supposed to be until February 10th and that I will start some sort of > treatment soon. You all are always in my heart and prayers. > > Love to you all.... > > Terri G. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 Terri, Thanks for the update. It sounds as though you have a doc that is at least looking at all the issues, and so you can get the right treatment. We'll also be keeping those kids and grandbaby in our hearts. Hugs, Tracie To: Neurosarcoidosis Sent: Sunday, November 16, 2008 6:50:32 PMSubject: new round of testing Hello All:Just a quick update on what is going on in Terri World. I am going foranother LP on Tuesday - I think this is the 3rd or 4th one in the last 8years. I am going to do another round of neuropsych testing soon too. I am currently not on any treatment at all so things are sucking prettybad right now. My new Neuro is fantastic and used to be at Emory and Washington University Hospitals. She is so wonderful. She isgoing through all possible diagnoses and treatments - we know how thisall goes but I have to give her the opportunity to do her thing.Of course, it will be either MS or NS as a diagnosis but all I know isthat I want my cytoxan back! When I was on the treatment, I was 75-80%better. Now I am just barely making it through the day. I am trying tohelp my son and daughter-in- law as much as possible. Their baby is duein February but Angie is having preterm contractions and they are justtrying to keep the baby from delivering for as long as possible. I tryto sleep as much as possible but I set an alarm and get up and make ameal and take it to them to try to keep my son from having to do tomuch.Well, just say a prayer for us that baby Brady decides to stay where heis supposed to be until February 10th and that I will start some sort oftreatment soon. You all are always in my heart and prayers.Love to you all....Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 > > > > > > Hello All: > > > > Just a quick update on what is going on in Terri World. I am going for > > another LP on Tuesday - I think this is the 3rd or 4th one in the last 8 > > years. I am going to do another round of neuropsych testing soon too. > > I am currently not on any treatment at all so things are sucking pretty > > bad right now. My new Neuro is fantastic and used to be at Emory and > > Washington University Hospitals. She is so wonderful. She is > > going through all possible diagnoses and treatments - we know how this > > all goes but I have to give her the opportunity to do her thing. > > > > Of course, it will be either MS or NS as a diagnosis but all I know is > > that I want my cytoxan back! When I was on the treatment, I was 75-80% > > better. Now I am just barely making it through the day. I am trying to > > help my son and daughter-in-law as much as possible. Their baby is due > > in February but Angie is having preterm contractions and they are just > > trying to keep the baby from delivering for as long as possible. I try > > to sleep as much as possible but I set an alarm and get up and make a > > meal and take it to them to try to keep my son from having to do to > > much. > > > > Well, just say a prayer for us that baby Brady decides to stay where he > > is supposed to be until February 10th and that I will start some sort of > > treatment soon. You all are always in my heart and prayers. > > > > Love to you all.... > > > > Terri G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Tracie, Thank you so much. This is the first time in I don't know how many years, that I have not had some sort of steroid or chemo to help mne out. I don'think I have eve r been this sick. I hope everyone has a great Thanksgiving if I don't make it back online till then.. I am feeding 4 people. I am going to have to do it the vest I can. I am gong to make all of my desserts on Wednesday - homemad pecan pie and cream cheese pie; ymmy. Talk to you soon. Terri G. > > Terri, Thanks for the update. It sounds as though you have a doc that is at least looking at all the issues, and so you can get the right treatment. > We'll also be keeping those kids and grandbaby in our hearts. > Hugs, > Tracie > > > > > ________________________________ > From: mosaicgirl1 mosaicgirl1@... > To: Neurosarcoidosis > Sent: Sunday, November 16, 2008 6:50:32 PM > Subject: new round of testing > > > > Hello All: > > Just a quick update on what is going on in Terri World. I am going for > another LP on Tuesday - I think this is the 3rd or 4th one in the last 8 > years. I am going to do another round of neuropsych testing soon too. > I am currently not on any treatment at all so things are sucking pretty > bad right now. My new Neuro is fantastic and used to be at Emory and > Washington University Hospitals. She is so wonderful. She is > going through all possible diagnoses and treatments - we know how this > all goes but I have to give her the opportunity to do her thing. > > Of course, it will be either MS or NS as a diagnosis but all I know is > that I want my cytoxan back! When I was on the treatment, I was 75-80% > better. Now I am just barely making it through the day. I am trying to > help my son and daughter-in- law as much as possible. Their baby is due > in February but Angie is having preterm contractions and they are just > trying to keep the baby from delivering for as long as possible. I try > to sleep as much as possible but I set an alarm and get up and make a > meal and take it to them to try to keep my son from having to do to > much. > > Well, just say a prayer for us that baby Brady decides to stay where he > is supposed to be until February 10th and that I will start some sort of > treatment soon. You all are always in my heart and prayers. > > Love to you all.... > > Terri G. > Quote Link to comment Share on other sites More sharing options...
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