Re: My Nopco Experience Update....Making Good Progress.

[Guest guest]

Your story sounds very similar to ours. I think she is arond 6-8mm

now. The measurements don't really seem that helpful as she looked

WAY better at one appointment but the measurements were not seeing

anything at that point.

It is TOUGH I think to measure it exactly at the same points when we

are taking about a CM of difference total. I think that's why some

doctors don't measure but just use their expert opinion on how the

head looks / feels as the benchmark.

We see Dr. Greene at Children's and he never measured but just did

the estimates by feeling her head but also agreed she looked MUCH

better and est. 6mm.

At our 9 month pedi apt. her head had grown 2 cm since 6 months. Our

pedi also said her head was looking great and could hardly notice

the plagio.

We'll keep going for a little while longer, but as long as it looks

good that's enough for me.

The band is their own (but very similar to a StarBand which they

used in the past). The company that makes the patterns is a seperate

vendor so you might see those on various types of helmets / braces

(I saw the company name on a poster in the office).

> > > > > > >

> > > > > > > Hi,

> > > > > > > I have been reading the archives and have read nothing

> but

> > bad

> > > > > things

> > > > > > > about NOPCO in Boston Children's Hospital. Has anyone

> had

> > a

> > > > > good

> > > > > > > experience they would like to share??

> > > > > > >

> > > > > > > Thanks so much

> > > > > > > Karin

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>