RE: Check in

[Guest guest]

Hi, Sophie. I'm sorry that you are having to deal with this right now, but you will find lots of support & encouragement from this group. Not many of us can personally share the experience of having NS while pregnant, but Yvonne from the Netherlands had a normal pregnancy & birth a couple of years ago. I'm emailing her to see if she has any words of wisdom or advice for you, so watch the messages for the next few days! When you find yourself getting anxious or stressed, stop & take some nice slow deep breaths. This will help keep your blood pressure & stress hormones normal, which will benefit the baby.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis ; Neurosarcoidosis From: sophiewos@...Date: Sat, 28 Mar 2009 18:50:27 -0700Subject: Re: Check in

my name is sophie i am 8 months pregnant, i have neurosarcoidosis, i quit all treatment about 3 some years ago. i been doing great, but now im scared. will i die when this baby is born. does anyone out there know anything on this subject. i have this since2004 this destryoyed my mind body and marriage, so i just quit treatment. mind over matter has worked for me, i have 2 b strong 4 my kids but now a new baby will be here in 3 weeks. my mind is begining 2 b week.any one out there i just need 2 face this head on i need 2 know the truth

Subject: Check inTo: neurosarcoidosis Date: Monday, December 1, 2008, 3:44 AM

So how is everyone doing? Did ya all survive Thanksgiving weekend? I was able to go to Chico and spend the day with my sisters and my parents. It is weird with the extended, extended-- kids now have their own spouses, families and it's making it harder to get it all together.

Christmas will also be interesting, as we're going to wait until the 28th or so to celebrate so that the gang from Oregon can come down.

My mom is showing more and more signs of dementia, and my dad has Parkinsons which has really progressed this last year. It is so hard to watch him go from being so on top of everything, to having to explain all of the choices and such that he has with his Medicare and insurance options. They just dont' get it anymore. To top it off, he's so hard of hearing (aids won't work on his loss) so he only catches half of what is said. Mom never understood any of it, and she really doesn't get it now..

So we just keep loving them, appreciating the time we have left.

I do hope that everyone has paced themselves, and that the hangover fatigue isn't too severe.

Here's hoping to hear from you all, share your stories and let us know how you are doing.

Hugs,

Tracie

NS Co-owner/moderator

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