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Re: I've been quiet

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Hang in there , it will get better. I am so sorry you feel so bad and hurt so much. Maybe your wbc will come back up soon, and the can adjust your medicine a little bit. Till then be extra sweet to ...I hear she's a terrific person. Connie

Subject: I've been quietTo: neurosarcoidosis Date: Thursday, March 26, 2009, 1:19 PM

i just wanted to leave everyone know i am still down and my neuro called yesterday and said my wbc is very low. he can't increase my imuran anymore.

I see him on the 30th i see the rheumy on the 7th of april. my arms and legs are so weak and hurt so bad. and feel like they weigh a hundred pounds each.

and i am sooo tired and can't seem to want to stay awake. i can sleep all nite and sleep all day too.

so i wish you all a pain free day and i will keep intouch as i can..

Many Blessings A.

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,

I had the same problems on Imuran. I was so tired I could barely move.

My white blood count was like 1.3. So hang in there and maybe they can

start a new drug. I hope that get you feeling better very soon!

Terri

>

> i just wanted to leave everyone know i am still down and my neuro

called yesterday and said my wbc is very low. he can't increase my

imuran anymore.

> I see him on the 30th i see the rheumy on the 7th of april. my arms

and legs are so weak and hurt so bad. and feel like they weigh a hundred

pounds each.

> and i am sooo tired and can't seem to want to stay awake. i can sleep

all nite and sleep all day too.

> so i wish you all a pain free day and i will keep intouch as i can..

>

> Many Blessings A.

>

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