Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hang in there , it will get better. I am so sorry you feel so bad and hurt so much. Maybe your wbc will come back up soon, and the can adjust your medicine a little bit. Till then be extra sweet to ...I hear she's a terrific person. Connie Subject: I've been quietTo: neurosarcoidosis Date: Thursday, March 26, 2009, 1:19 PM i just wanted to leave everyone know i am still down and my neuro called yesterday and said my wbc is very low. he can't increase my imuran anymore. I see him on the 30th i see the rheumy on the 7th of april. my arms and legs are so weak and hurt so bad. and feel like they weigh a hundred pounds each. and i am sooo tired and can't seem to want to stay awake. i can sleep all nite and sleep all day too. so i wish you all a pain free day and i will keep intouch as i can.. Many Blessings A. Need a job? Find employment help in your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 , I had the same problems on Imuran. I was so tired I could barely move. My white blood count was like 1.3. So hang in there and maybe they can start a new drug. I hope that get you feeling better very soon! Terri > > i just wanted to leave everyone know i am still down and my neuro called yesterday and said my wbc is very low. he can't increase my imuran anymore. > I see him on the 30th i see the rheumy on the 7th of april. my arms and legs are so weak and hurt so bad. and feel like they weigh a hundred pounds each. > and i am sooo tired and can't seem to want to stay awake. i can sleep all nite and sleep all day too. > so i wish you all a pain free day and i will keep intouch as i can.. > > Many Blessings A. > Quote Link to comment Share on other sites More sharing options...
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