Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 Greg, this is fantastic. I love it when one of us gets into MD's that take sarc seriously, and are willing to do more than prednisone. You deserve to be Happy Happy you!! Subject: New DocTo: Neurosarcoidosis Date: Friday, April 10, 2009, 5:19 PM I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 That is great. Good luck and stay Happy Happy Happy. The best of things are about to come your way. Pain Free!!!!! Jackie New Doc I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 That's great , Greg. Hope they find a med for you soon that will help... Debbie Subject: New DocTo: Neurosarcoidosis Date: Friday, April 10, 2009, 8:19 PM I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 That's great Greg!Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: New DocTo: Neurosarcoidosis Date: Friday, April 10, 2009, 8:19 PM I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 I think I forgot about the pred. They're decreasing mine from 20 to 15. I was on 5 & 10 alternating and then I got bronchitis & managled my ankle so it was up to 20 for a few months. Long enough to round my face more.Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com>Subject: New DocTo: Neurosarcoidosis@ yahoogroups. comDate: Friday, April 10, 2009, 8:19 PM I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 I was at over 60mg in the hospital 60mg and now I am at 20 mg of pred. Gained 75lbs. and a moon face. Greg > > > From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com> > Subject: New Doc > To: Neurosarcoidosis@ yahoogroups. com > Date: Friday, April 10, 2009, 8:19 PM > > > > > I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now. > > Greg aka Krumdawg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Greg, What wonderful news, I am so excited for you. It's such a blessing to find a good Doctor, sounds like she will take good care of you. Marla I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Greg, that just means there is more of you to love! Blessings, Tracie NS Co-owner/moderator Subject: Re: New DocTo: Neurosarcoidosis Date: Saturday, April 11, 2009, 7:30 AM I was at over 60mg in the hospital 60mg and now I am at 20 mg of pred. Gained 75lbs. and a moon face.Greg> > > From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com>> Subject: New Doc> To: Neurosarcoidosis@ yahoogroups. com> Date: Friday, April 10, 2009, 8:19 PM> > > > > I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.> > Greg aka Krumdawg> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Hi Marla will be in Denver from the 27th of April to the 30th and would love to see u on Sunday the 26th if that would work out MATT in SeattleGreg, What wonderful news, I am so excited for you. It's such a blessing to find a good Doctor, sounds like she will take good care of you. MarlaOn Sat, Apr 11, 2009 at 2:19 AM, gregorykrumme <krumdawg (AT) tx (DOT) rr.com> wrote:I went to UTSW and was assigned to a new (new to me) Neuro Doc that actually works with NS patients. And she told me lets see if we can get you off of pred and on to something else. Happy Happpy me. She want to build a group of docs around and internal med doc to support me and get my NS under control. Happy Happy Happy me. Having a mini Flare up right now ans I am hurting from it but still I am really happy right now.Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
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