Re: My UC is soooo much better after 6 weeks of diet- Ima new woman

[Guest guest]

Congratulations on finding a solution and on feeling better.  That's always great to read about ;-).

 

Debbie houston cd dx'd 3/02

scd 12/05 with lapses (!)

 

I cannot remember if I've posted here but just wanted to say that I started 6 weeks ago +- by removing gluten from my diet. This was prompted by an increase in bleeding for no reason and I know that the next step my doctor would say is Humira or Remicade. I have had UC for almost 10 years and it's been a steady increase in medications with little or no relief. I never had a remission in all that time.

I tried the SCD diet many years ago with no results. I've tried almost every diet ever heard of for UC with no results. What made me try SCD this last time was an article my DH read that said that many UC people were undiagnosed with celiac disease. I told him I had been tested for that with negative results but after thinking it over I thought " what was the harm " in removing gluten for a while and observing.

That was the turning point to my recovery. Bleeding stopped almost immediately. I still had some other symptoms (urgency, etc) so I decided to remove all grain products and dairy products also. (Been tested for that too-also negative). Things got even better.

My diet is even more restrictive than SCD but that works for me. I eat lots of animal protein and lots of nonstarchy veggies. Although I LOVE dairy it just doesn't agree with me except for miniscule amounts of very hard cheddar. I LOVE fruit and juices but they also don't agree with my colon so they are removed except for miniscule amounts of blueberries (say 10-12 blueberries a day).

Yes it is incredibly hard to shop in the grocery which seems to be 99% carbs but this is the only remission I have ever had in 10 years so it is worth the sacrifice.It now makes me mad that no doctor in all this time has suggested diet modification. I have lost a lot of respect for pill-pushers who will not do everything they can to help people get healthy unless it involves a prescription.

Because I can't eat SCD yogurt I take a probiotic pill every morning and I also drink freshly made greens juice (I grow collards and cabbage and other greens), no gas or intestinal upset at all. I also take a teaspoon of CLO every morning, helps with C I think.

I still take my meds (50 6MP and 6 Balsal. a day but cut the Balsal from 9 to 6-nothing bad happened) and will evaluate things in 3 months before cutting back more.Am I perfect yet? No but way way better. From my reading it may take years to get back to a perfect colon but removing gluten, grains, dairy and fruit has worked for me.

Along with SCD I highly recommend the book " Life without Bread " by Dr. Allan and Lutz. Lots of scientific evidence on why grains are bad for health, not just UC and Crohns but many many diseases.

To those who are still struggling I say don't give up. It took me two tries many years apart to get where I am. Keep searching for what works for YOU. This disease is very difficult and every person is different.

Good luck and best wishes for better health,

[Guest guest]

Thanks for posting this! It's very helpful for me and gives me hope as i

am very limited in my foods. It gives me hope also! I don't have uc but have a

gluten sensitive diagnosis and basically only tolerating chicken, fish, bison

(on occasion), well-cooked asparagus and broccoli and raw romaine lettuce, olive

oil, sea salt and black pepper. Higher carb foods give me gut pain. Thanks for

the inspiration!

SCD - 17 months

SCD and anti-candida - almost 4 months

>

> >

> >

> > I cannot remember if I've posted here but just wanted to say that I started

> > 6 weeks ago +- by removing gluten from my diet. This was prompted by an

> > increase in bleeding for no reason and I know that the next step my doctor

> > would say is Humira or Remicade. I have had UC for almost 10 years and it's

> > been a steady increase in medications with little or no relief. I never had

> > a remission in all that time.

> >

> > I tried the SCD diet many years ago with no results. I've tried almost

> > every diet ever heard of for UC with no results. What made me try SCD this

> > last time was an article my DH read that said that many UC people were

> > undiagnosed with celiac disease. I told him I had been tested for that with

> > negative results but after thinking it over I thought " what was the harm " in

> > removing gluten for a while and observing.

> >

> > That was the turning point to my recovery. Bleeding stopped almost

> > immediately. I still had some other symptoms (urgency, etc) so I decided to

> > remove all grain products and dairy products also. (Been tested for that

> > too-also negative). Things got even better.

> >

> > My diet is even more restrictive than SCD but that works for me. I eat lots

> > of animal protein and lots of nonstarchy veggies. Although I LOVE dairy it

> > just doesn't agree with me except for miniscule amounts of very hard

> > cheddar. I LOVE fruit and juices but they also don't agree with my colon so

> > they are removed except for miniscule amounts of blueberries (say 10-12

> > blueberries a day).

> >

> > Yes it is incredibly hard to shop in the grocery which seems to be 99%

> > carbs but this is the only remission I have ever had in 10 years so it is

> > worth the sacrifice.

> >

> > It now makes me mad that no doctor in all this time has suggested diet

> > modification. I have lost a lot of respect for pill-pushers who will not do

> > everything they can to help people get healthy unless it involves a

> > prescription.

> >

> > Because I can't eat SCD yogurt I take a probiotic pill every morning and I

> > also drink freshly made greens juice (I grow collards and cabbage and other

> > greens), no gas or intestinal upset at all. I also take a teaspoon of CLO

> > every morning, helps with C I think.

> >

> > I still take my meds (50 6MP and 6 Balsal. a day but cut the Balsal from 9

> > to 6-nothing bad happened) and will evaluate things in 3 months before

> > cutting back more.

> >

> > Am I perfect yet? No but way way better. From my reading it may take years

> > to get back to a perfect colon but removing gluten, grains, dairy and fruit

> > has worked for me.

> >

> > Along with SCD I highly recommend the book " Life without Bread " by Dr.

> > Allan and

> > Lutz. Lots of scientific evidence on why grains are bad for health, not

> > just UC and Crohns but many many diseases.

> >

> > To those who are still struggling I say don't give up. It took me two tries

> > many years apart to get where I am. Keep searching for what works for YOU.

> > This disease is very difficult and every person is different.

> >

> > Good luck and best wishes for better health,

> >

> >

> >

> >

> >

>

[Guest guest]

Mara

Thanks so much for your reply. Now I feel secure when I decide to go off it. I

know asking my doctor would be difficult since she'd worry about being

responsible.

Somewhere else I read the person stopped all their immunosuppressants because he

felt it helped to have the immune system repairing the damage, not being

suppressed, once he removed the foods that were causing the inflammation.

I'm going to move slower than that.

Thanks

posted

> > It takes several months for 6mp to get in your system (I was told).

>

> > I don't know the answer of how to taper off. Maybe someone else can respond

because I'd like to know too.

Mara posted;

> You can just go off of it without problems.

>

> When I had massive die off after starting SCD and had 103 temp.

> for several days running, my doc just told me to stop the MP6

> immediately.

>

> Afterwards, he put me on a lower dose.

>

> And then at a certain point, I took myself off of the remaining

> dose. No problems.

posted:

> > I know steroids have to be tapered but am not sure about immuno-suppresants

like 6mp.

Mara posted:

> No.