Re: Tort question - To

[Guest guest]

Hi Chanda-

I'm sorry to jump in here, but I just wanted to urge you to

definitely pursue PT for the tort. I have never heard of a ped

blowing it off like that before. There's no saying for sure he will

grow out of it and there are definite long term effects from

untreated tort. You can check out the tort group at

Torticolliskids/. I've read of

older kids who had to have release surgery (where they cut the

muscle to relieve the tension), and kids who run awkwardly because

of untreated or uncorrected tort. Granted, some of those cases are

obviously more severe than others, and hopefully your son's case is

very mild, but I think your ped really should take it more seriously.

Also, you can call your Cranial Tech and ask them about it as well.

They have physical and occupational therapy backgrounds and I've

heard of them assessing tort and showing patients exercises to do at

home. Or they could just recommend a pediatric therapist in your

area.

Good luck!

Jake-2 (tort resolved/rt plagio/DOCBand #2 3 more days!!!)

Jordan-4.5

> From: Packard <hfix2002@...>

> Subject: Re: Tort question

> Plagiocephaly

> Date: Friday, September 12, 2008, 1:45 PM

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> My son had both as well. We just finished our 5 months of the

cranial helmet and he is done! So happy - it worked great. We fixed

his plagio 90%. We went to PT starting at 5 months for about 6-7

weeks I think it was. He really got better and the PT shows you so

much that you can do at home and continue to do after you are done

with PT. A lot got better and he became so strong sitting up.

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> I am starting to see that he may be lacking in some things now -

he is 10 months - he is not doing some things that he should be so I

asked the doctor about it and she said PT would probably not be

covered just for gross motor delay so to use our county based

program called Early On. So I called yesterday and they come to my

home in about 2 weeks. So if they say he is fine, just a little

behind in gross motor, I will feel better. If they say, yep he

should be crawling, he should be able to sit himslef up from a lying

position, he should be able to pull up on things better than he

does, he shouldn't be slouching (leaning) in his high chair - then

we can move forward with strengthening. I believe he just isn't as

strong as he should be. But he is so smart and he does walk while we

hold his hands....so those things make us comfortable that the other

stuff, just needs a little work.

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> Hopefully this helped. If anyone else is out there with a kid-o

with Tort, did you see a delay in gross motor skills later in the

game? (Meaning he had PT when he was 5-6 months and now he is 10

months and lagging behind a little with gross motor.)

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> This is really the greatest blog ever!

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