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Re: Beginning sarc

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Hi Zach,

My sarc started in my eyes with bilateral iritis. It was also effecting my lungs with constant respiratory infections. I also had severe arthritic and spinal pain due to the granulomas in my muscles. That was 19 yrs ago, so the progression has be relatively slow, but it did progress full body.

Right now my body pain isn't too bad, and my brain is slightly foggy, but I still feel as tho I'm living in a warped bubble. My balance seems to be a problem but that may be from diabetes. We're workin on finding out why..

Welcome to the family,

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Sunday, October 11, 2009 4:22:53 PMSubject: Re: Re: Short Term/Long Term Menory and Sarcoid

how did everyone's sarc start. mine, they found in my lungs with no symptoms. i am 32 and is this just the start?

From: dawnschwartz@ verizon.net <dawnschwartz@ verizon.net>Subject: Re: Short Term/Long Term Menory and SarcoidTo: Neurosarcoidosis@ yahoogroups. comDate: Sunday, October 11, 2009, 4:53 PM

Hi Guys,I too suffer from poor short term memory. Since I am an RN, I can't imagine what kind of harm I would do if I went back to work like this. I had to withdraw from school too- I was studying for my master's in nursing but wasn't able to handle the coursework due to memory problems (I graduated college before with a 3.95 gpa). The whole situation depresses me. I hope that they can get my meds under control- we have tried several combos that all have nasty side effects and yet do not seem to slow the progression. I have the sarc now in several sites- lungs, lymph nodes, neuro, joints, and heart. If anyone has any suggestions to help with the short term memory loss I would be willing to try almost anything! I will keep you all in my prayers!Dawn from NY> > > From: brianryan_99 <brianryan_99@ ...>> Subject: Re: Short Term/Long Term Menory and Sarcoid> To: Neurosarcoidosis@ yahoogroups. com> Date: Saturday, October 10, 2009, 2:35 AM> > > > > > > It seems like some doctor visits are good and bad. Seems like some days they listen and other days they don't. My long term memory seem to be fairly intact, where as my short term memory is Swiss cheese. I am going to try to go back to work at the end of the month, but sort of not sure how my boss and co workers will look at me. I know

I am not the same as before. How does one deal with that. > > >

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