Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Hi Everyone, I am new to this forum. I am 18 weeks pregnant with triplets - two boys and a girl. I am based in Dallas, Texas. My 16th week ultrasound showed that my twin boys had mild unilateral equinovarus in their right foot each. Since the amnio results and the anomaly scan were reassuring, our doctors feel its an idiopathic anomaly. Since then my husband and I have been researching about the various treatments plans available. After extensive research, we remiain firmly convinced on the merits of the Ponseti Method for treating cf and would like to begin the treatment as soon as our babies are born. However, we are faced with certain unique logistical problems. Since we are having triplets, its is quite likely that they will have to be delivered prematurely and through a C-section. Also, they might need to spend the first 4-6 weeks of their life in an NICU. My husband and I would have liked nothing better than to take our babies to Iowa so that they can be treated by Dr. Ponseti himself, but under the circumstances, looks like we will have to limit our treatment options to Dallas. I wrote to Dr. Ponseti about this and he recommended a Dr. Lund in Dallas. I was wondering if anyone on this forum has had any experience with Dr. Lund and would value their inputs very much. Past couple of weeks have been an extremely confusing and trying time for us. I think we have gone through the entire cycle of disbelief, anger, denial and finally, acceptance, and the journey has definitely not been fun. It is only after going through Dr. Ponbseti's website and this forum that we have felt somewhat reassured. This forum is doing a wonderful job in reassuring confused parents like us and rescuing us from feelinggs of isolation and deep anguish. I request all of you who are reading this message to pray for us. Thanks, Shefali & Ganesh __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 In a message dated 11/15/2005 12:21:52 PM Pacific Standard Time, shefv@... writes: > I request all > of you who are reading this message to pray for us. We will be praying for you. My granddaughter who is 9 days old, just got her first casts yesterday. I also have 21 yr old twin sons, one has spina bifida. I remember all to well when they were born, and one was set 100 miles away from us. Good luck & we will be praying for you all ! DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Hi Shefali, First of all congradulations on your triplets! Two boys and a girl, WoW! I too live in Tx, unfortunetly we had to go with our daughter to Iowa to see Dr.Ponseti, BUT, I do have Dr. Lund's website address that you can go to and get all the info you need. His web address is: www.metrofootankle.com. His email is:slund@.... Although I have never seen them I kept this info in case we could not go to Iowa. On the first page it says that he follows the Ponseti Method. I am sorry I can not give you any info on him other than his web address and email. I am glad to hear that you have chosen the Ponseti Method. Don't be so hard on yourself, enjoy you pregnancy. Remember club foot is treatable and in the right hands your boys will have perfect little feet! It is soo great that you know ahead and are doing your research. We did not know about our daughters club feet and did not learn about the Ponseti Method till months later and after 2 doctors failed to correct her feet. So that is a BIG plus for you. After Dr. Ponseti treated her she is just a normal toddler running around, climbing and getting into everything! I am really glad you found this group. You will find a wealth of information here. So congradulations and welcome to the group! and BL CF 12/16/03 shefali vaidya wrote: Hi Everyone, I am new to this forum. I am 18 weeks pregnant with triplets - two boys and a girl. I am based in Dallas, Texas. My 16th week ultrasound showed that my twin boys had mild unilateral equinovarus in their right foot each. Since the amnio results and the anomaly scan were reassuring, our doctors feel its an idiopathic anomaly. Since then my husband and I have been researching about the various treatments plans available. After extensive research, we remiain firmly convinced on the merits of the Ponseti Method for treating cf and would like to begin the treatment as soon as our babies are born. However, we are faced with certain unique logistical problems. Since we are having triplets, its is quite likely that they will have to be delivered prematurely and through a C-section. Also, they might need to spend the first 4-6 weeks of their life in an NICU. My husband and I would have liked nothing better than to take our babies to Iowa so that they can be treated by Dr. Ponseti himself, but under the circumstances, looks like we will have to limit our treatment options to Dallas. I wrote to Dr. Ponseti about this and he recommended a Dr. Lund in Dallas. I was wondering if anyone on this forum has had any experience with Dr. Lund and would value their inputs very much. Past couple of weeks have been an extremely confusing and trying time for us. I think we have gone through the entire cycle of disbelief, anger, denial and finally, acceptance, and the journey has definitely not been fun. It is only after going through Dr. Ponbseti's website and this forum that we have felt somewhat reassured. This forum is doing a wonderful job in reassuring confused parents like us and rescuing us from feelinggs of isolation and deep anguish. I request all of you who are reading this message to pray for us. Thanks, Shefali & Ganesh __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Shefali & Ganesh, welcome! I can't personally recommend Dr. Lund, but I do know there have been a couple families in this group who have seen him and were quite pleased with the results. I'm sure one of them will jump in with some advice for you. Please feel free to ask us all your questions, that's what we are here for. And Congratulations on the triplets! Welcome again, > > Hi Everyone, > > I am new to this forum. I am 18 weeks pregnant with > triplets - two boys and a girl. I am based in Dallas, > Texas. My 16th week ultrasound showed that my twin > boys had mild unilateral equinovarus in their right > foot each. Since the amnio results and the anomaly > scan were reassuring, our doctors feel its an > idiopathic anomaly. Since then my husband and I have > been researching about the various treatments plans > available. > > After extensive research, we remiain firmly convinced > on the merits of the Ponseti Method for treating cf > and would like to begin the treatment as soon as our > babies are born. However, we are faced with certain > unique logistical problems. Since we are having > triplets, its is quite likely that they will have to > be delivered prematurely and through a C-section. > > Also, they might need to spend the first 4-6 weeks of > their life in an NICU. My husband and I would have > liked nothing better than to take our babies to Iowa > so that they can be treated by Dr. Ponseti himself, > but under the circumstances, looks like we will have > to limit our treatment options to Dallas. > > I wrote to Dr. Ponseti about this and he recommended a > Dr. Lund in Dallas. I was wondering if anyone > on this forum has had any experience with Dr. Lund and > would value their inputs very much. > > Past couple of weeks have been an extremely confusing > and trying time for us. I think we have gone through > the entire cycle of disbelief, anger, denial and > finally, acceptance, and the journey has definitely > not been fun. It is only after going through Dr. > Ponbseti's website and this forum that we have felt > somewhat reassured. > > This forum is doing a wonderful job in reassuring > confused parents like us and rescuing us from > feelinggs of isolation and deep anguish. I request all > of you who are reading this message to pray for us. > > Thanks, > > Shefali & Ganesh > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in one click. > http://farechase.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 WOW, congrats! Welcome Shefali! Sounds like you have gotten some good advise...as long as you have the right doctor, it will all work itself out! There is no need to rush into casting especially in the right hands! Looking forward to chatting with you more and hearing how your pregnancy goes. I have never met anyone personally who has had triplets. Once again, congratulations!! & Grace 15 mos unilateral right clubfoot FAB 13 hrs > > Hi Everyone, > > I am new to this forum. I am 18 weeks pregnant with > triplets - two boys and a girl. I am based in Dallas, > Texas. My 16th week ultrasound showed that my twin > boys had mild unilateral equinovarus in their right > foot each. Since the amnio results and the anomaly > scan were reassuring, our doctors feel its an > idiopathic anomaly. Since then my husband and I have > been researching about the various treatments plans > available. > > After extensive research, we remiain firmly convinced > on the merits of the Ponseti Method for treating cf > and would like to begin the treatment as soon as our > babies are born. However, we are faced with certain > unique logistical problems. Since we are having > triplets, its is quite likely that they will have to > be delivered prematurely and through a C-section. > > Also, they might need to spend the first 4-6 weeks of > their life in an NICU. My husband and I would have > liked nothing better than to take our babies to Iowa > so that they can be treated by Dr. Ponseti himself, > but under the circumstances, looks like we will have > to limit our treatment options to Dallas. > > I wrote to Dr. Ponseti about this and he recommended a > Dr. Lund in Dallas. I was wondering if anyone > on this forum has had any experience with Dr. Lund and > would value their inputs very much. > > Past couple of weeks have been an extremely confusing > and trying time for us. I think we have gone through > the entire cycle of disbelief, anger, denial and > finally, acceptance, and the journey has definitely > not been fun. It is only after going through Dr. > Ponbseti's website and this forum that we have felt > somewhat reassured. > > This forum is doing a wonderful job in reassuring > confused parents like us and rescuing us from > feelinggs of isolation and deep anguish. I request all > of you who are reading this message to pray for us. > > Thanks, > > Shefali & Ganesh > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in one click. > http://farechase.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 Congratulations on your babies! I live in Mansfield and have a son with bilateral club feet. He has been treated over at ish Rite in Dallas since he was a week and 2 days old, but I took Jake to see Dr. Lund for a second opinion a few months ago just for peace of mind because I heard that he had trained under Dr. Ponseti and was soon to be certified. Although he hasn't treated Jake and I can't tell you from " actual " experience, I was VERY impressed by him. Most importantly, he really seems to know clubfoot and the Ponseti treatment method, but he is also just about the most gentle and compassionate Doctor that I've ever met - he was so sweet with Jake and just has a wonderful demeanor about him. He confirmed to me that Jake's feet look great, so I'll continue his treatment over at ish Rite, but if I ever had a problem, I would definitely take Jake back to see him. Hope this helps and again Congratulations! Mommy to 9-30-00 and 8-1-04 BCF FAB nights only > > Hi Everyone, > > I am new to this forum. I am 18 weeks pregnant with > triplets - two boys and a girl. I am based in Dallas, > Texas. My 16th week ultrasound showed that my twin > boys had mild unilateral equinovarus in their right > foot each. Since the amnio results and the anomaly > scan were reassuring, our doctors feel its an > idiopathic anomaly. Since then my husband and I have > been researching about the various treatments plans > available. > > After extensive research, we remiain firmly convinced > on the merits of the Ponseti Method for treating cf > and would like to begin the treatment as soon as our > babies are born. However, we are faced with certain > unique logistical problems. Since we are having > triplets, its is quite likely that they will have to > be delivered prematurely and through a C-section. > > Also, they might need to spend the first 4-6 weeks of > their life in an NICU. My husband and I would have > liked nothing better than to take our babies to Iowa > so that they can be treated by Dr. Ponseti himself, > but under the circumstances, looks like we will have > to limit our treatment options to Dallas. > > I wrote to Dr. Ponseti about this and he recommended a > Dr. Lund in Dallas. I was wondering if anyone > on this forum has had any experience with Dr. Lund and > would value their inputs very much. > > Past couple of weeks have been an extremely confusing > and trying time for us. I think we have gone through > the entire cycle of disbelief, anger, denial and > finally, acceptance, and the journey has definitely > not been fun. It is only after going through Dr. > Ponbseti's website and this forum that we have felt > somewhat reassured. > > This forum is doing a wonderful job in reassuring > confused parents like us and rescuing us from > feelinggs of isolation and deep anguish. I request all > of you who are reading this message to pray for us. > > Thanks, > > Shefali & Ganesh > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in one click. > http://farechase.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi Shefali, Congratulations on the triplets! I only have twins, I don't know how anyone survives triplets, I hope you'll have help! One of my boys has unilateral right clubfoot as well and was treated with the Ponseti method which I can only recommend. I haven't heard of your doctor but if Dr Ponseti himself recommended him then I'm sure he is fine. My twins were 7 weeks premature and stayed in NICU for 3 weeks during which time the doctor came in and taped the foot. They were transferred to another hospital after the first week and his leg was taped twice there as well. In hindsight I don't think that was necessary since they started again with the casts once he was released from hospital, I'm sure waiting a few weeks or even a couple of months won't do much harm. As for the logistics of it all, with my two I simply put them in their pram and left one in there watching while the other one was casted. Since he usually fell asleep during the casting I could have then easily swapped them around if the second one had had a clubfoot as well, so hopefully it'll work out for you to manage with three babies! Or it may be easier if they are casted on different days (if you even get the option). When it came to the tenotomy I was able to leave one twin with the nurses while I went in with the other one. As for the DBB (boots on a bar), that's when I put them into their own cots (they had been sharing a cot by then) since I was worried that Alister would clobber the bar over his brother's head otherwise... All in all I found it all suprisingly easy and Alister luckily never had any problems. He's 3 years old now and still wearing the DBB (boots on a bar) at night. His foot looks perfect and he runs and jumps exactly like his twin with normal feet, you wouldn't be able to tell the difference. Anyway, all the best with the rest of your pregnancy! with (3y) and Alister (3y, RCF, Ponseti method, UK) --- shefali vaidya wrote: > Hi Everyone, > > I am new to this forum. I am 18 weeks pregnant with > triplets - two boys and a girl. I am based in > Dallas, > Texas. My 16th week ultrasound showed that my twin > boys had mild unilateral equinovarus in their right > foot each. Since the amnio results and the anomaly > scan were reassuring, our doctors feel its an > idiopathic anomaly. Since then my husband and I > have > been researching about the various treatments plans > available. > > After extensive research, we remiain firmly > convinced > on the merits of the Ponseti Method for treating cf > and would like to begin the treatment as soon as our > babies are born. However, we are faced with certain > unique logistical problems. Since we are having > triplets, its is quite likely that they will have to > be delivered prematurely and through a C-section. > > Also, they might need to spend the first 4-6 weeks > of > their life in an NICU. My husband and I would have > liked nothing better than to take our babies to Iowa > so that they can be treated by Dr. Ponseti himself, > but under the circumstances, looks like we will have > to limit our treatment options to Dallas. > > I wrote to Dr. Ponseti about this and he recommended > a > Dr. Lund in Dallas. I was wondering if > anyone > on this forum has had any experience with Dr. Lund > and > would value their inputs very much. > > Past couple of weeks have been an extremely > confusing > and trying time for us. I think we have gone through > the entire cycle of disbelief, anger, denial and > finally, acceptance, and the journey has definitely > not been fun. It is only after going through Dr. > Ponbseti's website and this forum that we have felt > somewhat reassured. > > This forum is doing a wonderful job in reassuring > confused parents like us and rescuing us from > feelinggs of isolation and deep anguish. I request > all > of you who are reading this message to pray for us. > > Thanks, > > Shefali & Ganesh > > > > __________________________________ > Yahoo! FareChase: Search multiple travel sites in > one click. > http://farechase.yahoo.com > > > ___________________________________________________________ To help you stay safe and secure online, we've developed the all new Yahoo! Security Centre. http://uk.security.yahoo.com Quote Link to comment Share on other sites More sharing options...
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