Re: Feeling stressed and not sure what to do

[Guest guest]

,

I would be interested in obtaining Dr. Dobbs contact

info. I am especially interested in the FAB that

allows the baby to move each leg independently. My

son has not been able to tolerate the Markell shoes

with the DBB. Thank you for your help.

Amy

--- and Grindon

wrote:

> Bri,

> Sorry for the late reply - been away from the

> computer

> all weekend. Dr. Dobbs is in St. Louis and he

> practices at both Children's Hospital and at the

> Shriner's here. He is certainly one of the top

> clubfoot doctors - he trained with Dr. Ponseti at

> the

> University of Iowa for 7 years. My son is 13 months

> and has been seen by Dr. Dobbs since birth - we

> really

> like him - I really can't say enough good things

> about

> him and his staff. Dr. Dobbs is also working on

> designing new styles of the FAB to help make it

> easier

> for parents. He has developed a FAB with an

> articulating bar - it has pivot points near each

> foot

> that allows the child to move his/her feet

> independently yet still keeps the feet at the proper

> outward rotation and dorsiflexed. Hope this helps,

> if

> you have any other questions about Dr. Dobbs or our

> experience please feel free to email me.

>

> Thanks,

>

> Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace

> 16hrs/day)

>

>

>

> --- Bronson

> wrote:

>

> > Hi there,

> > My name is Bri and I have a 3 year old ( 4 this

> > month ) who has leftclubfoot. We used to have a

> > doctor back home who took care of him till he

> moved

> > out of state. Now we have moved and seeing a new

> > doctor. I think it's because I am not used to how

> > other doctor's deal with clubfoot and got to used

> > and trusting with our old doctor, but i am not

> > satisfied with what he has to say or how the

> visits

> > are. I read this little e-mail and saw that you

> are

> > in St. Louis. I live in Kansas City Kansas and am

> > not to far. I would if you could get more info on

> > Doc Dr. Dobbs, or if anyone can tell me about Dr.

> > Ponsetti ( sp ) I am close to both. All I want is

> to

> > get the proper treatment for my son and the beable

> > to walk out after the visit knowing that the

> doctor

> > did good. I am used to traveling ( had to back

> home

> > for all of his doctors and my husbands ) so that

> is

> > not a problem. Also his doctor has said that he

> > might want to do botox on him. I have looked it up

> > but don't see anything about the shot

> > and clubfoot. ( lol not that good at lookin up

> > things I guess ). If someone knows anything about

> > this could you please give me some info on this?

> > Bri

> >

> > number23 wrote:

> > , don't take this the wrong way but frankly

> I

> > hope we don't have any reason to meet you or Dr.

> > Dobbs in St. Louis! ha ha..... If we do though,

> I'd

> > be honored to have you as our guide! I

> actually

> > went to St. Louis once as a child, I have vague

> > memories of going up in the Arch and have tried

> many

> > times to convince my dh to take us home from Iowa

> > via St. Louis so I could see it again. Maybe one

> of

> > these days, eh?

> > s.

> >

> > Feeling stressed

> > and

> > > > not sure what to do

> > > >

> > > >

> > > > I'm really not sure what I'm going to do now.

> > Our

> > > > insurance will not approve

> > > > Grant (or Rose for that matter!) to be seen by

> > Dr.

> > > > Ponseti, so I will have to

> > > > pay out of pocket. I heard back today, and

> I'm

> > > > shocked! I don't think we can

> > > > afford to pay out of pocket, so I'm not sure

> > what

>

=== message truncated ===

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

Amy,

You can reach Dr. Dobbs at mattdobbs@...

There are also a few photos of the brace, one showing it with custom

molded AFO type shoes, and a couple with the Markell shoes in the

photos section of the groups' website, I think the file is just titled

" Dobbs' brace " . Hope this helps.

> > > >

> > > > > I know what you're talking about Joy. We pay

> > > out

> > > > > of pocket for the kids to see Ponseti and the

> > > cost

> > > > > keeps going up. I finally had to humble

> > myself

> > > > and

> > > > > ask 's father for help with his part of

> > the

> > > > > bill - the first time in 7 years the man has

> > > paid

> > > > a

> > > > > thing towards the boy, but thankfully he

> > agreed

> > > > and

> > > > > sent some $ to the clinic. If baby #3 here

> > is

> > > cf

> > > > I

> > > > > think I may have to look in to a Shriner's

> > > option

> > > > > instead and that will be hard to do after

> > seeing

> > > > > Ponseti himself all this time. I " m no help

> > and

> > > i

> > > > > wish you the best, I just mean you're not

> > alone

> > > > with

> > > > > the financial strain.

> > > > > s.

> > > > >

> > > > > Feeling stressed

> > > and

> > > > > not sure what to do

> > > > >

> > > > >

> > > > > I'm really not sure what I'm going to do now.

> > > Our

> > > > > insurance will not approve

> > > > > Grant (or Rose for that matter!) to be seen by

> > > Dr.

> > > > > Ponseti, so I will have to

> > > > > pay out of pocket. I heard back today, and

> > I'm

> > > > > shocked! I don't think we can

> > > > > afford to pay out of pocket, so I'm not sure

> > > what

> >

> === message truncated ===

>

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

[Guest guest]

I want to thank you for responding. I will try to get ahold of Dr.Dobbs

tomorrow.I know this has nothing to do with the group, but I am going to try to

see Dr.Dobbs at the hospital anyway's,dose anyone know if there is a doctor

there that can see my oldest son, for a lump in his kneck? You see my husband

has cancer, this type is known in the family among the men. I found a lump in my

son's kneck ( the same spot, where they found my husbands.) and have heard that

Shriners is the best childrens hospital for kids. Also I think I have asked this

before, has anyone heard of Botox for clubfoot?

Bri

Amy Hill wrote:

,

I would be interested in obtaining Dr. Dobbs contact

info. I am especially interested in the FAB that

allows the baby to move each leg independently. My

son has not been able to tolerate the Markell shoes

with the DBB. Thank you for your help.

Amy

--- and Grindon

wrote:

> Bri,

> Sorry for the late reply - been away from the

> computer

> all weekend. Dr. Dobbs is in St. Louis and he

> practices at both Children's Hospital and at the

> Shriner's here. He is certainly one of the top

> clubfoot doctors - he trained with Dr. Ponseti at

> the

> University of Iowa for 7 years. My son is 13 months

> and has been seen by Dr. Dobbs since birth - we

> really

> like him - I really can't say enough good things

> about

> him and his staff. Dr. Dobbs is also working on

> designing new styles of the FAB to help make it

> easier

> for parents. He has developed a FAB with an

> articulating bar - it has pivot points near each

> foot

> that allows the child to move his/her feet

> independently yet still keeps the feet at the proper

> outward rotation and dorsiflexed. Hope this helps,

> if

> you have any other questions about Dr. Dobbs or our

> experience please feel free to email me.

>

> Thanks,

>

> Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace

> 16hrs/day)

>

>

>

> --- Bronson

> wrote:

>

> > Hi there,

> > My name is Bri and I have a 3 year old ( 4 this

> > month ) who has leftclubfoot. We used to have a

> > doctor back home who took care of him till he

> moved

> > out of state. Now we have moved and seeing a new

> > doctor. I think it's because I am not used to how

> > other doctor's deal with clubfoot and got to used

> > and trusting with our old doctor, but i am not

> > satisfied with what he has to say or how the

> visits

> > are. I read this little e-mail and saw that you

> are

> > in St. Louis. I live in Kansas City Kansas and am

> > not to far. I would if you could get more info on

> > Doc Dr. Dobbs, or if anyone can tell me about Dr.

> > Ponsetti ( sp ) I am close to both. All I want is

> to

> > get the proper treatment for my son and the beable

> > to walk out after the visit knowing that the

> doctor

> > did good. I am used to traveling ( had to back

> home

> > for all of his doctors and my husbands ) so that

> is

> > not a problem. Also his doctor has said that he

> > might want to do botox on him. I have looked it up

> > but don't see anything about the shot

> > and clubfoot. ( lol not that good at lookin up

> > things I guess ). If someone knows anything about

> > this could you please give me some info on this?

> > Bri

> >

> > number23 wrote:

> > , don't take this the wrong way but frankly

> I

> > hope we don't have any reason to meet you or Dr.

> > Dobbs in St. Louis! ha ha..... If we do though,

> I'd

> > be honored to have you as our guide! I

> actually

> > went to St. Louis once as a child, I have vague

> > memories of going up in the Arch and have tried

> many

> > times to convince my dh to take us home from Iowa

> > via St. Louis so I could see it again. Maybe one

> of

> > these days, eh?

> > s.

> >

> > Feeling stressed

> > and

> > > > not sure what to do

> > > >

> > > >

> > > > I'm really not sure what I'm going to do now.

> > Our

> > > > insurance will not approve

> > > > Grant (or Rose for that matter!) to be seen by

> > Dr.

> > > > Ponseti, so I will have to

> > > > pay out of pocket. I heard back today, and

> I'm

> > > > shocked! I don't think we can

> > > > afford to pay out of pocket, so I'm not sure

> > what

>

=== message truncated ===

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

Bri-

Sorry to hear about your situation. With regards to botox-there is a

mom from Canada(hayden's mommy) whom had her son treated with botox-

unsuccessfully and now she sees Dr Pirani-I hope she pipes in. With

regards to your other son-shriner's would be an option-as well as

trying your ped first. The lump in the neck could be something as

simple as a swollen gland-which can occur during growth spurts, etc.

Good luck with everything!

take care,

kathleen

mom to david bcf fab 12/7

> > > >

> > > > > I know what you're talking about Joy. We pay

> > > out

> > > > > of pocket for the kids to see Ponseti and the

> > > cost

> > > > > keeps going up. I finally had to humble

> > myself

> > > > and

> > > > > ask 's father for help with his part of

> > the

> > > > > bill - the first time in 7 years the man has

> > > paid

> > > > a

> > > > > thing towards the boy, but thankfully he

> > agreed

> > > > and

> > > > > sent some $ to the clinic. If baby #3 here

> > is

> > > cf

> > > > I

> > > > > think I may have to look in to a Shriner's

> > > option

> > > > > instead and that will be hard to do after

> > seeing

> > > > > Ponseti himself all this time. I " m no help

> > and

> > > i

> > > > > wish you the best, I just mean you're not

> > alone

> > > > with

> > > > > the financial strain.

> > > > > s.

> > > > >

> > > > > Feeling stressed

> > > and

> > > > > not sure what to do

> > > > >

> > > > >

> > > > > I'm really not sure what I'm going to do now.

> > > Our

> > > > > insurance will not approve

> > > > > Grant (or Rose for that matter!) to be seen by

> > > Dr.

> > > > > Ponseti, so I will have to

> > > > > pay out of pocket. I heard back today, and

> > I'm

> > > > > shocked! I don't think we can

> > > > > afford to pay out of pocket, so I'm not sure

> > > what

> >

> === message truncated ===

>

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>

[Guest guest]

Bri,

Here is the link for St. Louis Shriner's Hospital.

http://www.shrinershq.org/shc/stlouis/

Unfortunately I think they really specialize in Orthopaedic conditions

so I'm not sure if there would be a doctor there for your other son's

situation. But I may be wrong, so it certainly would not hurt to

check into it. Have you had your pediatrician look at the lump yet?

I would probably do that first, then they may be able to refer you to

someone, or at least tell you what type of specialist you need to see.

If you do find you need a specialist, and you want to look for one

while in St. Louis, I can probably recommend someone at St. Louis

Children's Hospital, they are in the top 10 Children's hospitals in

the country.

As for the botox for clubfoot, I think someone else mentioned there is

a mom on the group who has dealt with this for her son. There are

some doctors trying to use botox for clubfoot, but to my knowledge it

is not proven to be very effective, and is quite painful.

Hope this helps,

> > > >

> > > > > I know what you're talking about Joy. We pay

> > > out

> > > > > of pocket for the kids to see Ponseti and the

> > > cost

> > > > > keeps going up. I finally had to humble

> > myself

> > > > and

> > > > > ask 's father for help with his part of

> > the

> > > > > bill - the first time in 7 years the man has

> > > paid

> > > > a

> > > > > thing towards the boy, but thankfully he

> > agreed

> > > > and

> > > > > sent some $ to the clinic. If baby #3 here

> > is

> > > cf

> > > > I

> > > > > think I may have to look in to a Shriner's

> > > option

> > > > > instead and that will be hard to do after

> > seeing

> > > > > Ponseti himself all this time. I " m no help

> > and

> > > i

> > > > > wish you the best, I just mean you're not

> > alone

> > > > with

> > > > > the financial strain.

> > > > > s.

> > > > >

> > > > > Feeling stressed

> > > and

> > > > > not sure what to do

> > > > >

> > > > >

> > > > > I'm really not sure what I'm going to do now.

> > > Our

> > > > > insurance will not approve

> > > > > Grant (or Rose for that matter!) to be seen by

> > > Dr.

> > > > > Ponseti, so I will have to

> > > > > pay out of pocket. I heard back today, and

> > I'm

> > > > > shocked! I don't think we can

> > > > > afford to pay out of pocket, so I'm not sure

> > > what

> >

> === message truncated ===

>

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

>

>