Re: Re: First Casting and Crying

[Guest guest]

Way to go Craig and Family! If you need help getting them off let us know,

it can be daunting at times.

s.

Re: First Casting and Crying

Thanks for all of the replys! We have found your kind words and

encouragement to be of great value and have given us courage get it

done " right " . My wife and daughter will meet with Dr. Ponseti on

Monday at 9:30am.

We will keep you all posted!

Oh, and Joyce (Dr. Ponseti's secretary) suggested we take the casts

off also -- right after this message is posted we will be attending to

that.

Thanks again!

- Craig, and Salem

[Guest guest]

No doubt you made the right choice, the same thing happende to when he

was first casted, and then he had bruces and blisters. We went from Mexico City

to Iowa and it was worth it. Dr. Ponseti has magic hands.

congrats

mom of

mexico City

Re: First Casting and Crying

Date: Thu, 01 Dec 2005 17:55:48 -0000

> I'm so glad you decided to see Dr. Ponseti. I have no doubt you

> won't regret it.

>

> Hearing about the baby crying in the casts just makes me so mad. It

> reminds me of our first orthopedic surgeon who forced my son's feet

> to be " straight " and then casted him, leaving bruises on his ankles

> and a child in pain. Once we switched to a Ponseti doctor it was

> like night and day. Don't you wish there was some kind of a law that

> all orthopedic doctors had to learn and follow the POnseti method

> for clubfoot treatment?

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

> >

> > Hello all,

> >

> > My wife and I had our fourth child, Salem, on 11/15 and,

> thankfully,

> > she is healthy except for the bilateral clubfeet. Both feet are

> > anatomically correct (why am I flashing to thoughts of Ken and

> Barbie

> > on this???), but positionally incorrect.

> >

> > My wife, being a Pharmacist and exceptionally thorough, researched

> > correction of a clubbed foot and found the Ponseti method to be the

> > best bet. We live in Utah and there only seems to be a small

> group of

> > doctors that use the Ponseti method religiously (yes, the pun of

> Utah

> > and religion is intentional). The only one that we could get

> access

> > too was at the Shriner's Hospital in Salt Lake City: Doctor

> Santora.

> >

> > Well, to shorten this up a bit, yesterday we consulted with Dr.

> > Santora and he seems to follow the Ponseti method very closely...

> to a

> > point. His description of the casting, tenotomy and bracing seems

> to

> > be exactly as Dr. Ponseti describes, except on length of bracing

> (only

> > up until ~2 years old). He also stated that about 40% seem to have

> > recurrence needing some sort of surgery as they get older, around 5

> > years old or so. This seemed quite high since Dr. Ponseti

> suggested

> > only a 10% recurrence. Anyone else see the seemingly obvious

> > correllation between bracing duration length and recurrence?

> >

> > So, despite my reservations as to Dr. Santora's stated recurrence,

> > which I assume have to do with bracing, we decided to let him cast

> and

> > begin the correction of Salem's feet.

> >

> > Salem, which means " peace " , has been very much like her name: she

> is

> > quiet, not fussy and actually sleeps most of the night already -- a

> > big change from our first 3 children. During casting, my wife

> nursed

> > while the cast was applied to the left leg... no problem and no

> > crying. When they prepared to cast the right leg, however, Salem

> began

> > to cry... not just crying as she rarely does, but _wailing_. Dr.

> > Santora assured us that the crying was just a function of the

> > discomfort of having a new cast and that no pain was being felt.

> > Wanting to believe the good doctor, my wife nursed Salem until she

> > fell asleep and the second cast was put in place.

> >

> > Since the casts have been put on, Salem has not acted like her

> name at

> > all. When she is awake, she is wailing. It seems that she will

> cry

> > until she is just too tired to cry anymore, then drop off for a

> little

> > while. We have tried several different positions, singing, gently

> > rocking, walking, riding in the car, etc., but she is not to be

> > quieted when awake. Her toes seem to be a healthy pink so we do

> not

> > feel the casts are restricting circulation. My wife, being quite

> > distressed over the unusual crying, even called Dr. Ponseti (who

> > answered and spoke with her!!!!), who didn't go so far as to say

> that

> > the casts were on incorrectly, but did state that he didn't like it

> > when the child cries and that he wished that we lived in Iowa so he

> > could see the baby.

> >

> > So, now my wife is talking of going to see Dr. Ponseti to get

> things

> > " fixed " . We have family not _too_ far away from Iowa City, so we

> can

> > logistically send my wife and child if necessary.

> >

> > My question to the group is this: has anyone had similar problems

> with

> > an unconsolable child? What did you do and how did you get things

> to

> > a comfortable state?

> >

> > Sorry for the long post but I feel that the history may be useful

> to

> > others doing research. Also note that it's 5:30 am and I have been

> > taking care of the baby for some time and so spelling, etc. are

> going

> > to suffer .

> >

> >

> >

> > -Craig

> >

>

>

>

>

>

>

>

[Guest guest]

Ya - I remember those early days of getting casted and spending days and

nights holding him in the rocking chair while he cried so much and being told it

was normal.

s.

Re: First Casting and Crying

I'm so glad you decided to see Dr. Ponseti. I have no doubt you

won't regret it.

Hearing about the baby crying in the casts just makes me so mad. It

reminds me of our first orthopedic surgeon who forced my son's feet

to be " straight " and then casted him, leaving bruises on his ankles

and a child in pain. Once we switched to a Ponseti doctor it was

like night and day. Don't you wish there was some kind of a law that

all orthopedic doctors had to learn and follow the POnseti method

for clubfoot treatment?

and 11/10/03 bilateral cf dbb 14/7

>

> Hello all,

>

> My wife and I had our fourth child, Salem, on 11/15 and,

thankfully,

> she is healthy except for the bilateral clubfeet. Both feet are

> anatomically correct (why am I flashing to thoughts of Ken and

Barbie

> on this???), but positionally incorrect.

>

> My wife, being a Pharmacist and exceptionally thorough, researched

> correction of a clubbed foot and found the Ponseti method to be the

> best bet. We live in Utah and there only seems to be a small

group of

> doctors that use the Ponseti method religiously (yes, the pun of

Utah

> and religion is intentional). The only one that we could get

access

> too was at the Shriner's Hospital in Salt Lake City: Doctor

Santora.

>

> Well, to shorten this up a bit, yesterday we consulted with Dr.

> Santora and he seems to follow the Ponseti method very closely...

to a

> point. His description of the casting, tenotomy and bracing seems

to

> be exactly as Dr. Ponseti describes, except on length of bracing

(only

> up until ~2 years old). He also stated that about 40% seem to have

> recurrence needing some sort of surgery as they get older, around 5

> years old or so. This seemed quite high since Dr. Ponseti

suggested

> only a 10% recurrence. Anyone else see the seemingly obvious

> correllation between bracing duration length and recurrence?

>

> So, despite my reservations as to Dr. Santora's stated recurrence,

> which I assume have to do with bracing, we decided to let him cast

and

> begin the correction of Salem's feet.

>

> Salem, which means " peace " , has been very much like her name: she

is

> quiet, not fussy and actually sleeps most of the night already -- a

> big change from our first 3 children. During casting, my wife

nursed

> while the cast was applied to the left leg... no problem and no

> crying. When they prepared to cast the right leg, however, Salem

began

> to cry... not just crying as she rarely does, but _wailing_. Dr.

> Santora assured us that the crying was just a function of the

> discomfort of having a new cast and that no pain was being felt.

> Wanting to believe the good doctor, my wife nursed Salem until she

> fell asleep and the second cast was put in place.

>

> Since the casts have been put on, Salem has not acted like her

name at

> all. When she is awake, she is wailing. It seems that she will

cry

> until she is just too tired to cry anymore, then drop off for a

little

> while. We have tried several different positions, singing, gently

> rocking, walking, riding in the car, etc., but she is not to be

> quieted when awake. Her toes seem to be a healthy pink so we do

not

> feel the casts are restricting circulation. My wife, being quite

> distressed over the unusual crying, even called Dr. Ponseti (who

> answered and spoke with her!!!!), who didn't go so far as to say

that

> the casts were on incorrectly, but did state that he didn't like it

> when the child cries and that he wished that we lived in Iowa so he

> could see the baby.

>

> So, now my wife is talking of going to see Dr. Ponseti to get

things

> " fixed " . We have family not _too_ far away from Iowa City, so we

can

> logistically send my wife and child if necessary.

>

> My question to the group is this: has anyone had similar problems

with

> an unconsolable child? What did you do and how did you get things

to

> a comfortable state?

>

> Sorry for the long post but I feel that the history may be useful

to

> others doing research. Also note that it's 5:30 am and I have been

> taking care of the baby for some time and so spelling, etc. are

going

> to suffer .

>

>

>

> -Craig

>

[Guest guest]

cried that day she was casted for the first time. She seemed mad that

she was unable to move her legs and draw them up as she had previously. She got

used to them quickly, though, and didn't cry like that after the first day.

Carol (and , bcf, casting)

Re: First Casting and Crying

I'm so glad you decided to see Dr. Ponseti. I have no doubt you

won't regret it.

Hearing about the baby crying in the casts just makes me so mad. It

reminds me of our first orthopedic surgeon who forced my son's feet

to be " straight " and then casted him, leaving bruises on his ankles

and a child in pain. Once we switched to a Ponseti doctor it was

like night and day. Don't you wish there was some kind of a law that

all orthopedic doctors had to learn and follow the POnseti method

for clubfoot treatment?

and 11/10/03 bilateral cf dbb 14/7

>

> Hello all,

>

> My wife and I had our fourth child, Salem, on 11/15 and,

thankfully,

> she is healthy except for the bilateral clubfeet. Both feet are

> anatomically correct (why am I flashing to thoughts of Ken and

Barbie

> on this???), but positionally incorrect.

>

> My wife, being a Pharmacist and exceptionally thorough, researched

> correction of a clubbed foot and found the Ponseti method to be the

> best bet. We live in Utah and there only seems to be a small

group of

> doctors that use the Ponseti method religiously (yes, the pun of

Utah

> and religion is intentional). The only one that we could get

access

> too was at the Shriner's Hospital in Salt Lake City: Doctor

Santora.

>

> Well, to shorten this up a bit, yesterday we consulted with Dr.

> Santora and he seems to follow the Ponseti method very closely...

to a

> point. His description of the casting, tenotomy and bracing seems

to

> be exactly as Dr. Ponseti describes, except on length of bracing

(only

> up until ~2 years old). He also stated that about 40% seem to have

> recurrence needing some sort of surgery as they get older, around 5

> years old or so. This seemed quite high since Dr. Ponseti

suggested

> only a 10% recurrence. Anyone else see the seemingly obvious

> correllation between bracing duration length and recurrence?

>

> So, despite my reservations as to Dr. Santora's stated recurrence,

> which I assume have to do with bracing, we decided to let him cast

and

> begin the correction of Salem's feet.

>

> Salem, which means " peace " , has been very much like her name: she

is

> quiet, not fussy and actually sleeps most of the night already -- a

> big change from our first 3 children. During casting, my wife

nursed

> while the cast was applied to the left leg... no problem and no

> crying. When they prepared to cast the right leg, however, Salem

began

> to cry... not just crying as she rarely does, but _wailing_. Dr.

> Santora assured us that the crying was just a function of the

> discomfort of having a new cast and that no pain was being felt.

> Wanting to believe the good doctor, my wife nursed Salem until she

> fell asleep and the second cast was put in place.

>

> Since the casts have been put on, Salem has not acted like her

name at

> all. When she is awake, she is wailing. It seems that she will

cry

> until she is just too tired to cry anymore, then drop off for a

little

> while. We have tried several different positions, singing, gently

> rocking, walking, riding in the car, etc., but she is not to be

> quieted when awake. Her toes seem to be a healthy pink so we do

not

> feel the casts are restricting circulation. My wife, being quite

> distressed over the unusual crying, even called Dr. Ponseti (who

> answered and spoke with her!!!!), who didn't go so far as to say

that

> the casts were on incorrectly, but did state that he didn't like it

> when the child cries and that he wished that we lived in Iowa so he

> could see the baby.

>

> So, now my wife is talking of going to see Dr. Ponseti to get

things

> " fixed " . We have family not _too_ far away from Iowa City, so we

can

> logistically send my wife and child if necessary.

>

> My question to the group is this: has anyone had similar problems

with

> an unconsolable child? What did you do and how did you get things

to

> a comfortable state?

>

> Sorry for the long post but I feel that the history may be useful

to

> others doing research. Also note that it's 5:30 am and I have been

> taking care of the baby for some time and so spelling, etc. are

going

> to suffer .

>

>

>

> -Craig

>

[Guest guest]

This seems so common here, my son's first doctor was only slapping the casts on

and not doing anything eles. At his 3 month check up there was another doctor

there and he told us to come see him. Well make a long story short, we did and

had to start all over again, but I am glad that we did go this way.

Bri

number23 wrote:

Ya - I remember those early days of getting casted and spending days and

nights holding him in the rocking chair while he cried so much and being told it

was normal.

s.

Re: First Casting and Crying

I'm so glad you decided to see Dr. Ponseti. I have no doubt you

won't regret it.

Hearing about the baby crying in the casts just makes me so mad. It

reminds me of our first orthopedic surgeon who forced my son's feet

to be " straight " and then casted him, leaving bruises on his ankles

and a child in pain. Once we switched to a Ponseti doctor it was

like night and day. Don't you wish there was some kind of a law that

all orthopedic doctors had to learn and follow the POnseti method

for clubfoot treatment?

and 11/10/03 bilateral cf dbb 14/7

>

> Hello all,

>

> My wife and I had our fourth child, Salem, on 11/15 and,

thankfully,

> she is healthy except for the bilateral clubfeet. Both feet are

> anatomically correct (why am I flashing to thoughts of Ken and

Barbie

> on this???), but positionally incorrect.

>

> My wife, being a Pharmacist and exceptionally thorough, researched

> correction of a clubbed foot and found the Ponseti method to be the

> best bet. We live in Utah and there only seems to be a small

group of

> doctors that use the Ponseti method religiously (yes, the pun of

Utah

> and religion is intentional). The only one that we could get

access

> too was at the Shriner's Hospital in Salt Lake City: Doctor

Santora.

>

> Well, to shorten this up a bit, yesterday we consulted with Dr.

> Santora and he seems to follow the Ponseti method very closely...

to a

> point. His description of the casting, tenotomy and bracing seems

to

> be exactly as Dr. Ponseti describes, except on length of bracing

(only

> up until ~2 years old). He also stated that about 40% seem to have

> recurrence needing some sort of surgery as they get older, around 5

> years old or so. This seemed quite high since Dr. Ponseti

suggested

> only a 10% recurrence. Anyone else see the seemingly obvious

> correllation between bracing duration length and recurrence?

>

> So, despite my reservations as to Dr. Santora's stated recurrence,

> which I assume have to do with bracing, we decided to let him cast

and

> begin the correction of Salem's feet.

>

> Salem, which means " peace " , has been very much like her name: she

is

> quiet, not fussy and actually sleeps most of the night already -- a

> big change from our first 3 children. During casting, my wife

nursed

> while the cast was applied to the left leg... no problem and no

> crying. When they prepared to cast the right leg, however, Salem

began

> to cry... not just crying as she rarely does, but _wailing_. Dr.

> Santora assured us that the crying was just a function of the

> discomfort of having a new cast and that no pain was being felt.

> Wanting to believe the good doctor, my wife nursed Salem until she

> fell asleep and the second cast was put in place.

>

> Since the casts have been put on, Salem has not acted like her

name at

> all. When she is awake, she is wailing. It seems that she will

cry

> until she is just too tired to cry anymore, then drop off for a

little

> while. We have tried several different positions, singing, gently

> rocking, walking, riding in the car, etc., but she is not to be

> quieted when awake. Her toes seem to be a healthy pink so we do

not

> feel the casts are restricting circulation. My wife, being quite

> distressed over the unusual crying, even called Dr. Ponseti (who

> answered and spoke with her!!!!), who didn't go so far as to say

that

> the casts were on incorrectly, but did state that he didn't like it

> when the child cries and that he wished that we lived in Iowa so he

> could see the baby.

>

> So, now my wife is talking of going to see Dr. Ponseti to get

things

> " fixed " . We have family not _too_ far away from Iowa City, so we

can

> logistically send my wife and child if necessary.

>

> My question to the group is this: has anyone had similar problems

with

> an unconsolable child? What did you do and how did you get things

to

> a comfortable state?

>

> Sorry for the long post but I feel that the history may be useful

to

> others doing research. Also note that it's 5:30 am and I have been

> taking care of the baby for some time and so spelling, etc. are

going

> to suffer .

>

>

>

> -Craig

>