RE: Re: I need some tough love right now. - Just Venting. Nothing to do

[Guest guest]

i'm not going to quit SCD. I'm staying on it for at least another year to give it a fair shot. EVERYONE i've asked... even people that ultimately had to have surgery said they were better while on SCD. Some people were just too far gone to begin with apparentlyI started SCD almost right after I was diagnosed, so I really don't have anything to look at as far as not being on SCD vs being on it. I know I was worse the first 2 months of this disease without SCD, but I was also not on any meds.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: My-Stitches@...Date: Tue, 23 Mar 2010 17:40:28 -0800Subject: Re: I need some tough love right now. - Just Venting. Nothing to do

, if you feel you are reacting to everything at the moment, then I

would suggest widening your diet (still legal, though). You might as well

have more variety to react to, if that makes sense (as long as none of

them are really horrendous reactions! Bummer about leaving dinner

out. I know we've all done that, left something out and left for the day,

or overnight. Phooey!

Enjoying that right now.... I made pumpkin pie filling a few weeks

ago but thought I was having a reaction to it so I kept it. I'm reacting

to everything, so i'm eating that now... yum

I did have dinner all set but I left it out before work this morning.

Scared to eat it, since who knows what fermented and grew on it for 10

hours today.

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[Guest guest]

MY doc is not very challenging, I tell him what I want to do and he nodds his head and writes the script. I stay with him because he doesn't put up a fight whereas the other GI I went to say it's his way or get out, so I left.I've taken all these meds before, and the pred didn't do anything last time, but I take it just in case. We'll see. -UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: My-Stitches@...Date: Tue, 23 Mar 2010 17:46:08 -0800Subject: Re: I need some tough love right now. - Just Venting. Nothing to do

Isn't it the truth. Once my doctor (when things were very bad)

asked me if I was depressed and I said I didn't think I was clinically

depressed but I sure was discouraged and gloomy most of the time. He

replied, "Well, with what you are up against, if you were sitting

here feeling cheerful about it all I'd have to send you to a

Psychiatrist."

One other thought, . I don't know if your doctor is smart

enough to do this or not, but since you are on several meds, I am

wondering if you could possibly just be allergic or having a toxic

reaction from one of the meds itself. I say this because a couple months

ago I was put on Diflucan to be followed by Nystatin. NO problems at all

with the Diflucan and since they had my on Nystatin years ago, I figured

that would be easy-peasy. When I started sneaking very slowly into

the Nystatin I felt worse and worse and worse. By the time I got up

to the full dose and saw my doctor again I told him this die-off was

really really hard to take and in fact I was back feeling as bad as

pre-SCD. I asked if I could take a smaller dose for longer to make the

die-off more bearable. He said, "Hmmm," and after thinking

about it a bit said my description did not sound like die-off. He decided

it sounded more like allergy or toxic reaction to the Nystatin (not

die-off from it). So he told me to keep on wiht the Diflucan, drop the

Nystatin and see if I started feeling better. I felt much better in two

days! I'm so glad I asked because otherwise I would have just

figured this was the expected candida die-off and I'd have to put up with

it for a few months. Just an idea, because people can actually be

allergic to a med itself, not side-effects or even fillers.

I used to have periods of depressions before I was diagnosed, during

the

years I was in denial that I was sick. And then it took me years and

years after that to realize that that level of depression came from

the

illness and was not part of my behavioral-psychological makeup. It

came from a chemical deficit or imbalance, which is a whole 'nother thing. They vanished after I began treatment.

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[Guest guest]

, if you feel you are reacting to everything at the moment, then I would suggest widening your diet (still legal, though). You might as well have more variety to react to, if that makes sense (as long as none of them are really horrendous reactions! I would agree with that. And especially if it doesn't seem like the intro diet is working for you. Everyone's different, and maybe your body really craves variety. Who knows? And the mental stress that it would take off of you might be significant enough to actually help your flare. Like said, I would just be sure that the new foods aren't making you worse, but if you're having symptoms regardless, I'd say try some new foods! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day