Re: New and confused! OT - about kelsey's kidney

[Guest guest]

Hi Jenni,

Do you mind if I ask what issues Kelsey has with her kidney's? I

think you and I chatted about this a long while ago but I don't

remember exctally what it was (low function?)

Grace also has kidney issues, probably not the same at all but I was

just curious. She is acutally going in for a surgery at the beginning

of March to remove one of her kidney's and ureter that didn't form

properly and has a ureterocele. It is doin nothing but causing her

problems, constant UTI's. She will be in the hospital for 5 days, I

am pretty nervous about it to say the least, the morphine drip, the

cathadar she will go home with, the whole bit. Anyway, just wondering

if you had any advise for me.

Hope you guys are well =)

& Grace

> > > >

> > > > Hello all!

> > > >

> > > > I have been lurking for a couple of weeks now, and

chatting with

> > > > ee via e-mail. But now it's time to " de-lurk " with a

> question!

> > > >

> > > > At my 21 week ultrasound, they discovered that our baby

has

> bilateral

> > > > clubfeet. We had three docs in our office look at the

results,

> and had

> > > > a subsequent u/s, all with the same conclussion.

> > > >

> > > > Well, today at my son's two year checkup, we mentioned our

> diagnosis

> > > > to his ped, and told her our intent to go to the UofI and

Dr.

> Ponseti

> > > > for treatment.

> > > >

> > > > She told us she thinks in utero diagnosis is faulty, and

that

> she has

> > > > known people whose babies have been born with no problems

at

> all, or

> > > > with positional cf instead of " true " cf.

> > > >

> > > > She urged us to wait until he was born...and she said even

> then it can

> > > > take up to a month to be able to tell for sure!!!!

> > > >

> > > > She also said she would send us to Oklahoma City (we're in

> Tulsa) to

> > > > an ortho ped there. She says they are " very conservative "

in

> treating

> > > > cf, and that they rarely perform surgery after casting.

When I

> > > > described the DB bar to her, she told us it was an

> old-fashioned form

> > > > of brace.

> > > >

> > > > This goes against everything I have read so far!

> > > >

> > > > Our ped had never heard of the Ponseti Method, so couldn't

> comment on

> > > > this treatment, but was certainly encouraging a wait and

see

> attitude.

> > > >

> > > > While I understand we won't know the severity of his cf

until

> he is

> > > > born, aren't ultrasound diagnosis pretty accurate?

> > > >

> > > > Does anyone know of any cases where a pg mom has gotten a

false

> > reading?

> > > >

> > > > Our ped seemed so nonchalant, it was almost getting my

hopes

> up that

> > > > my ob/gyns are wrong.

> > > >

> > > > HELP!!!!

> > > >

> > > > Jennfier

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks ,

She is scheduled for surgery on March 7th, will be in the Hospital

for 5 days but I do get to stay with her. Just needs to be done but I

am truly dreading it of course.

Thanks for thinking of us =)

& Grace

> > > > >

> > > > > Hello all!

> > > > >

> > > > > I have been lurking for a couple of weeks now, and

> chatting with

> > > > > ee via e-mail. But now it's time to " de-lurk " with

a

> > question!

> > > > >

> > > > > At my 21 week ultrasound, they discovered that our baby

> has

> > bilateral

> > > > > clubfeet. We had three docs in our office look at the

> results,

> > and had

> > > > > a subsequent u/s, all with the same conclussion.

> > > > >

> > > > > Well, today at my son's two year checkup, we mentioned

our

> > diagnosis

> > > > > to his ped, and told her our intent to go to the UofI

and

> Dr.

> > Ponseti

> > > > > for treatment.

> > > > >

> > > > > She told us she thinks in utero diagnosis is faulty,

and

> that

> > she has

> > > > > known people whose babies have been born with no

problems

> at

> > all, or

> > > > > with positional cf instead of " true " cf.

> > > > >

> > > > > She urged us to wait until he was born...and she said

even

> > then it can

> > > > > take up to a month to be able to tell for sure!!!!

> > > > >

> > > > > She also said she would send us to Oklahoma City (we're

in

> > Tulsa) to

> > > > > an ortho ped there. She says they are " very

conservative "

> in

> > treating

> > > > > cf, and that they rarely perform surgery after casting.

> When I

> > > > > described the DB bar to her, she told us it was an

> > old-fashioned form

> > > > > of brace.

> > > > >

> > > > > This goes against everything I have read so far!

> > > > >

> > > > > Our ped had never heard of the Ponseti Method, so

couldn't

> > comment on

> > > > > this treatment, but was certainly encouraging a wait

and

> see

> > attitude.

> > > > >

> > > > > While I understand we won't know the severity of his cf

> until

> > he is

> > > > > born, aren't ultrasound diagnosis pretty accurate?

> > > > >

> > > > > Does anyone know of any cases where a pg mom has gotten

a

> false

> > > reading?

> > > > >

> > > > > Our ped seemed so nonchalant, it was almost getting my

> hopes

> > up that

> > > > > my ob/gyns are wrong.

> > > > >

> > > > > HELP!!!!

> > > > >

> > > > > Jennfier

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Jenni,

Thanks for the reply. Glad to hear that Kelsey's issues aren't so

serious =). Grace's left kidney is totally cystic so we are just

gonna remove it when they go in to take out the ureter. She does have

one fully functional kidney as well (right) though which is great!

Did Kelsey have to get the CURG and the renal testing done? Hated the

CURG test =(

Have they told you to watch out for UTI's? Not sure if this would

apply with just one sml cyst or not. Glad that it seems to be stable

and hope it stays that way!

& Grace

> > > > >

> > > > > Hello all!

> > > > >

> > > > > I have been lurking for a couple of weeks now, and

> chatting with

> > > > > ee via e-mail. But now it's time to " de-lurk " with

a

> > question!

> > > > >

> > > > > At my 21 week ultrasound, they discovered that our baby

> has

> > bilateral

> > > > > clubfeet. We had three docs in our office look at the

> results,

> > and had

> > > > > a subsequent u/s, all with the same conclussion.

> > > > >

> > > > > Well, today at my son's two year checkup, we mentioned

our

> > diagnosis

> > > > > to his ped, and told her our intent to go to the UofI

and

> Dr.

> > Ponseti

> > > > > for treatment.

> > > > >

> > > > > She told us she thinks in utero diagnosis is faulty,

and

> that

> > she has

> > > > > known people whose babies have been born with no

problems

> at

> > all, or

> > > > > with positional cf instead of " true " cf.

> > > > >

> > > > > She urged us to wait until he was born...and she said

even

> > then it can

> > > > > take up to a month to be able to tell for sure!!!!

> > > > >

> > > > > She also said she would send us to Oklahoma City (we're

in

> > Tulsa) to

> > > > > an ortho ped there. She says they are " very

conservative "

> in

> > treating

> > > > > cf, and that they rarely perform surgery after casting.

> When I

> > > > > described the DB bar to her, she told us it was an

> > old-fashioned form

> > > > > of brace.

> > > > >

> > > > > This goes against everything I have read so far!

> > > > >

> > > > > Our ped had never heard of the Ponseti Method, so

couldn't

> > comment on

> > > > > this treatment, but was certainly encouraging a wait

and

> see

> > attitude.

> > > > >

> > > > > While I understand we won't know the severity of his cf

> until

> > he is

> > > > > born, aren't ultrasound diagnosis pretty accurate?

> > > > >

> > > > > Does anyone know of any cases where a pg mom has gotten

a

> false

> > > reading?

> > > > >

> > > > > Our ped seemed so nonchalant, it was almost getting my

> hopes

> > up that

> > > > > my ob/gyns are wrong.

> > > > >

> > > > > HELP!!!!

> > > > >

> > > > > Jennfier

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >