Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 : Don't allow the doctor to convince you to put your son back on gluten. Youand your husband have noticed the changes and many pediatricians are not advanced in their education and do NOT approve of the GFCF diet. So of course they don't believe mom and dad, " what do we know about our kids. " My son has Celiac's Disease and recently our gastro doctor told us to put him on gluten for three months we said NO. We know the dramatic changes are son has made and so have the dev. ped's doctor and the neurologist. They told us proof is in our pudding not the gastro or pediatrician's. We now what it did to our son. I can only speak from experience with my child. Your son could have special blood work to detect IGa deficiency and gluten intolerence issues without putting him back on gluten. It takes six months plus to get gluten out of your system. Hope this was somewhat helpful. I get wacky when doctors try to tell us we don't know anything and they are the final answer. We live with our kids 24/7. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Ask the doctor is she is trying to test for Celiac's disease. That will be negative if somebody is on a gluten-free diet. The Gluten and Casein Peptide Test (Great Plains offers it) will still detect a problem even after awhile of being gluten and casein free. > I have had my son on a GFCF diet for a week. My > husband and I noticed a big improvement. I saw the > dr. yesterday and told her i had put him on the diet > and drooling had stopped. She said she would like to > do a gluten test, however she thinks he has to go back > on gluten for it to detect. My husband says no way. > Has anybody encountered this. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Hi , I did no testing at all on my son, except for allergy testing - just to make sure that I wasn't feeding him more offending foods. So I got him allergy testsed and eliminated all foods that he showed even a slight allergy to. My son has been 15 months GFCF and doing excellent. He is 6 1/2 years old now. To me the true test is to try it and see if it works. It was written somewhere (maybe Special Diets........... book, that some times tests results could be wrong or not even show that the diet could help, when in fact it can. I wiuld just say - go with it - and best of luck. You have nothing to lose and just so much to benefit from with the diet. It can't hurt your child - its not a drug that can have side effects or later on damage. Either way you choose, I wish you the best (LJs mom) on Long Islnad New York ***** On Wed, 25 Jul 2001 09:39:01 -0700 (PDT) Merwin writes: > I have had my son on a GFCF diet for a week. My > husband and I noticed a big improvement. I saw the > dr. yesterday and told her i had put him on the diet > and drooling had stopped. She said she would like to > do a gluten test, however she thinks he has to go back > on gluten for it to detect. My husband says no way. > Has anybody encountered this. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 At 09:39 am 7/25/01 -0700, you wrote: >I have had my son on a GFCF diet for a week. My >husband and I noticed a big improvement. I saw the >dr. yesterday and told her i had put him on the diet >and drooling had stopped. She said she would like to >do a gluten test, however she thinks he has to go back >on gluten for it to detect. My husband says no way. >Has anybody encountered this. I've encountered this attitude of testing the diet by going off of it. I've heard this suggestion from a couple of sources and have the same response as your husband. My feeling is : 1) if the diet works, and works according to the proposed theory, then intentionally taking my child off it is very much like giving a large dose of dangerous drugs to my kid... unthinkable 2) if a professional wants to run experiments to verify the diet they should get themselves some funding, a lab, and some experimental animals (no offense meant to anti-vivisectionists out there). NO WAY will I ever agree to anyone using my son for their interest in studying what happens when you go off the diet, for the reason stated first. Just my two cents, good luck. Marty Gluten & Casein Free Recipes and Resources Contributed by Families on the GF/CF Diet http://www.newdiets.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 I wouldn't put my daughter back on gluten or casein again. I know the MD's want everything tied up nicely especially when they don't fully understand it and they didn't come up with the solution. I went to a gastro and allergy person before I started the diet and no one wanted to do any labs on Sam. One person stated well most kids with autism have loose stools and there isn't any reason to the testing that he knew of. The allergies actually stated it " wouldn't be worth it " There is an increasing amount of literature out there if they need to learn and there is a ton anecdotal stuff. I just don't to live with the consequences. We are just getting over a major infringement. I am becoming more than slightly paranoid about what if the diet infringement behavior won't go away next time. So I am become hypervigilant with what she eats. I guess the ultimate question is how will the testing change what you do with him/ or her. If the diet works it works. Jeneane, Houston Nick 5 -NT 3- PDD nos Beth 2-NT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 Yes, if your child is having an upper or lower gi to test for this, they must reintroduce the gluten for about 3 weeks prior. My friend did this and her child regressed horribly. I refuse to do it and my son is being tested tomorrow. Phyllis Quote Link to comment Share on other sites More sharing options...
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