Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Thanks Jackie. I continue to keep all of you in my prayers that someday soon there will be more research & information available about this evil disease. Then none of you would have to suffer as you do. MattSubject: SarcTo: Neurosarcoidosis Date: Thursday, November 19, 2009, 10:28 PM I have an illness that's oh so rare and no one knows it's really there until it hits your lungs or heart sometimes in your brain it starts When in your lungs it's hard to breath it strips away the air you need When in your heart is slows you down so you can hardly get around Now in your brain it's hard to walk and sit and think or even talk Sometimes it takes it's own sweet time to learn to deal with Sarc you'll fine Then again it takes only days for it to show it's ugly ways You get tired and dizzy weak and gasping for air and with all the meds you may lose your hair you cry and scream oh God why me the answer's not there though you want it to be Accepting: you thank God above for your life and your gamily His wisdom and love Because without His love you couldn't survive So you praise Him be thankful You are still alive Having Sarc alone is a terrible thing. But to have Sarc and another affliction at the same time--- well why???? I have tried to understand all but to no avail. So My prayers are for all of us and epically those dealing with multiple things at once. I am told God only gives us what we can deal with. I wish he didn't trust me so much. I wrote this poem thinking of how strong we all are and how I wouldn't want to deal with this without the support from all of you. Thank you all so much. God Bless and Keep You, now and always Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Tahnk you for sharing Jackie. To: Neurosarcoidosis Sent: Thu, November 19, 2009 8:36:02 PMSubject: Re: Sarc Thanks Jackie. I continue to keep all of you in my prayers that someday soon there will be more research & information available about this evil disease. Then none of you would have to suffer as you do. Matt From: jackie <shadowme810@ verizon.net>Subject: SarcTo: Neurosarcoidosis@ yahoogroups. comDate: Thursday, November 19, 2009, 10:28 PM I have an illness that's oh so rare and no one knows it's really there until it hits your lungs or heart sometimes in your brain it starts When in your lungs it's hard to breath it strips away the air you need When in your heart is slows you down so you can hardly get around Now in your brain it's hard to walk and sit and think or even talk Sometimes it takes it's own sweet time to learn to deal with Sarc you'll fine Then again it takes only days for it to show it's ugly ways You get tired and dizzy weak and gasping for air and with all the meds you may lose your hair you cry and scream oh God why me the answer's not there though you want it to be Accepting: you thank God above for your life and your gamily His wisdom and love Because without His love you couldn't survive So you praise Him be thankful You are still alive Having Sarc alone is a terrible thing. But to have Sarc and another affliction at the same time--- well why???? I have tried to understand all but to no avail. So My prayers are for all of us and epically those dealing with multiple things at once. I am told God only gives us what we can deal with. I wish he didn't trust me so much. I wrote this poem thinking of how strong we all are and how I wouldn't want to deal with this without the support from all of you. Thank you all so much. God Bless and Keep You, now and always Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Thank you, Jackie..........very well said..... Hugs, Darlene NS Co-Owner/Moderator Sarc I have an illness that's oh so rare Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Greg I wrote this from my heart and would relish the thought of it going to others. Thank you for your kind words and go ahead and use my words to your desire. Jackie Sarc Jackie, You continue to amaze and astound me. I knew you were gifted with word. But I did not understand the depth knowledge, compassion, and worldly soul you could project in words until I read this poem. I thank you for gifting us we these words. I commend you on your words. I ask permission to share this poem with friends on line and giving you the credit. Your words explain things better then I could communicate them on my own. Surely you will be blessed all your days. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 JACKIE I LOVE THE POEM YOU WROTE.THANKS FOR SHARING IT WITH US.I WRITE POETRY AND I OFTEN WRITE ABOUT MY DISTURBING CHILDHOOD,THE UNANSWERED QUESTION AND ABOUT MY PAIN.SOME TIMES I WRITE GOD A LETTER.AGAIN I ENJOYED YOUR POEM.KEEP UP THE GOOD WORK. BE BLESSED.HELENSubject: Re: SarcTo: Neurosarcoidosis Date: Friday, November 20, 2009, 12:31 PM Greg I wrote this from my heart and would relish the thought of it going to others. Thank you for your kind words and go ahead and use my words to your desire. Jackie Sarc Jackie, You continue to amaze and astound me. I knew you were gifted with word. But I did not understand the depth knowledge, compassion, and worldly soul you could project in words until I read this poem. I thank you for gifting us we these words. I commend you on your words. I ask permission to share this poem with friends on line and giving you the credit. Your words explain things better then I could communicate them on my own. Surely you will be blessed all your days. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009 Ditto from me, Jackie! It's amazing what can be said in poetry, when words can't describe a situation, feeling,...etc. May I share your poem, too. I'll bet it could help some of my family & friends understand me...Thanks again! HUGS!....shanniemelSubject: SarcTo: Neurosarcoidosis Date: Friday, November 20, 2009, 11:17 AM Jackie, You continue to amaze and astound me. I knew you were gifted with word. But I did not understand the depth knowledge, compassion, and worldly soul you could project in words until I read this poem. I thank you for gifting us we these words. I commend you on your words. I ask permission to share this poem with friends on line and giving you the credit. Your words explain things better then I could communicate them on my own. Surely you will be blessed all your days. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2009 Report Share Posted November 21, 2009  you all may share my words as much as you want. I am humbled at thought that you would want to. Thanks to all who responded. And it has helped my family understand. so go for it. Jackie SarcTo: Neurosarcoidosis Date: Friday, November 20, 2009, 11:17 AM Jackie, You continue to amaze and astound me. I knew you were gifted with word. But I did not understand the depth knowledge, compassion, and worldly soul you could project in words until I read this poem. I thank you for gifting us we these words. I commend you on your words. I ask permission to share this poem with friends on line and giving you the credit. Your words explain things better then I could communicate them on my own. Surely you will be blessed all your days. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Thanks, Jackie! Have a Wonderful Thanksgiving!love, From: Krumme <krumdawg (AT) tx (DOT) .rr.com>Subject: SarcTo: Neurosarcoidosis@ yahoogroups. comDate: Friday, November 20, 2009, 11:17 AM Jackie, You continue to amaze and astound me. I knew you were gifted with word. But I did not understand the depth knowledge, compassion, and worldly soul you could project in words until I read this poem. I thank you for gifting us we these words. I commend you on your words. I ask permission to share this poem with friends on line and giving you the credit. Your words explain things better then I could communicate them on my own. Surely you will be blessed all your days. Greg aka Krumdawg Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.