Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi Sharon, Yes, you are in the right place. I've had IBS for close to 30 years. Nothing really helped until I started the diet. I felt a chunk better within days. This will help you! I can't do eggs or dairy either. We just have to work around that and perhaps later we will be able to handle them. It really is worth doing. Milk gives me horrible gas. Gluten makes me sleepy. I have an IgG-mediated intolerance to eggs -- they send me running to the bathroom within minutes. Today I had a piece of Orbit chewing gum and within 20 minutes was doubled over in pain for an hour (Orbit has 3 kinds of artificial sweetener). So this will be hard with no milk or eggs, but I'm so tired of the constant gas, bloating and reflux. I've been scoped with biopsies, and don't have Celiac, UC or Crohn's. Am I in the right place? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 You are in the right place. If milk gives you gas and eggs make you run to the bathroom, then it will not be hard to do without them. You will find so many tasty and wonderful foods that will help you to heal and feel better. I substitute my delicious homemade SCD yogurt for most of my milk needs and do just fine. You have a wonderful, educated, caring community here to help you. Welcome. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 > You are in the right place.>> If milk gives you gas...If milk gives you gas it doesn't mean you shouldn't, or can't, or won't be able to ever use milk products, .i.e., SCD yogurt. (Nor does it necessarily mean you couldn't tolerate raw milk if you tried it.) It probably means that you're lactose intolerant, as many if not most of us are. But the SCD yogurt has the lactose eaten out of it by the acidophilis/et al. If you're reacting to the milk protein (casein) that's another story. But I wouldn't shy away from trying the 24-hour yogurt because ordinary milk gives you gas. The yogurt is just too beneficial -- and tastes too good! -- to avoid unless you absolutely must.nand eggs make you run to the bathroom, then it > will not be hard to do without them.>> You will find so many tasty and wonderful foods that will help you to > heal and feel better. I substitute my delicious homemade SCD yogurt for > most of my milk needs and do just fine.>> You have a wonderful, educated, caring community here to help you.>> Welcome.>>> Terry-- ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 I've been away from the SCD boards for a few years since I became free of Crohn's in 1999, no symptoms since then. I came back when a friend came down with this stinkin' disease. With regard to IBS; A friend who lived near Cleveland for over thirty years, and went to a clinic there for fifteen years with IBS, called me one day and asked for help. He said he knew that I had beaten Crohn's so maybe I could help him leave his bathroom for a while. I told him what his diet should be and told him he needed to replace the bad bugs with good ones. I had him alternate a couple of natural antibiotics, monolaurin and olive leaf extract, with primal defence, twice a day. He was well in less than a month. He brought one of his buddies, and the same treatment worked for him. These may be the only two guys that this therapy ever cured, and it may never work again, but I just wanted to throw this out FWIW. Since I've been out of touch for a while, I was wondering if anyone ever used one of the adaptogen herbs, like Reishi or Rhodiola. Another friend of mine has systemic lupus. I told him that since these adaptogens were known to modulate the immune system, they just might help with auto-immune symptoms. I gave him some of the Reishi and his disfiguring facial rash was gone in about a month. He stopped taking the Reishi after about eight months, and it came back. Les > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 It is great to hear from someone who has beaten Chron's. Awesome. How long did it take? For those who are new to SCD, it is important to know that Primal Defense is illegal on SCD. Don't know about the herbs. Congratulations, PJ > > > > > > I've been away from the SCD boards for a few years since I became free of Crohn's in 1999, no symptoms since then. I came back when a friend came down with this stinkin' disease. > With regard to IBS; A friend who lived near Cleveland for over thirty years, and went to a clinic there for fifteen years with IBS, called me one day and asked for help. He said he knew that I had beaten Crohn's so maybe I could help him leave his bathroom for a while. > I told him what his diet should be and told him he needed to replace the bad bugs with good ones. I had him alternate a couple of natural antibiotics, monolaurin and olive leaf extract, with primal defence, twice a day. He was well in less than a month. He brought one of his buddies, and the same treatment worked for him. > These may be the only two guys that this therapy ever cured, and it may never work again, but I just wanted to throw this out FWIW. > > Since I've been out of touch for a while, I was wondering if anyone ever used one of the adaptogen herbs, like Reishi or Rhodiola. Another friend of mine has systemic lupus. I told him that since these adaptogens were known to modulate the immune system, they just might help with auto-immune symptoms. I gave him some of the Reishi and his disfiguring facial rash was gone in about a month. He stopped taking the Reishi after about eight months, and it came back. > Les > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 CAM- Complimentary and Alternative Medicine My experience with " Gastros " is what drove me to CAM. My Crohn's Colitis was so severe that my digestive system just shut down. My first Gastro refused to recognize this till I was starved almost to death. When I was so weak I couldn't move, she just discharged me. My friends and family put me in another hospital that day where they hooked me up to IV that would feed me for the next three weeks. It took that long for my system to crank-up again. There were some things I heard over and over during that time; " it doesn't matter what you eat and there are no bacteria involved. It's just auto-immune. " In other words, they didn't have a clue. Les > > > > To the best of my knowledge, we haven't discussed > it while you've been away, but sometimes my brain can go on the blink. > > CAM? > > Let's put it this way: I struggled for 25 years > with my gut issues. SCD resolved that. > > A jerk of a PCP missed my complex sleep apnea and my cancer. > > Fortunately, I had an excellent doc for the > apnea, and found a spectacular website for > anything connected to sleep disorders and CPAP therapy: > > SCD, above all, is the foundation on which we > build all of our other health care > practices. Which is why this list is dedicated > to the implementation of SCD in our daily lives. > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > > > Marilyn, > Thanks for your thoughts. I followed the SCD exactly as BTVC required. I didn't stray at all till almost a year and a half had passed. Then I would taste a little piece of bread to see what would happen. over time the negative reactions became less and less hurtful, till that glorious day when they were gone. Everyone has their own story, and I doubt that any two are alike. > I was aware that the culprit bacteria wrap themselves in biofilm that will protect them from the usual antibiotics, so I used monolaurin to disrupt the biofilm and several other natural antibiotics to try to get to the bad guys. I used the approved probiotics. It took me eighteen months to get to them, but it seems that it all worked out in the end. > I don't want to mislead anyone on the need to adhere absolutely to the instructions in BTVC. When I asked about the adaptogens, I was just wondering if they had been discussed while I was away. > I was almost killed by incompetence in the allopathic system so this caused me to embrace CAM with a lot of enthusiasm. I need to make certain that I don't get too much into that while I'm on this board. Les, A lot of us are interested in this - given the state of traditional medicine and our disease complexes - so talk away. So you found monolaurin effective - any particular brand or dosage? Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 At 10:45 AM 2/13/2010, you wrote: There were some things I heard over and over during that time; " it doesn't matter what you eat and there are no bacteria involved. It's just auto-immune. " In other words, they didn't have a clue. Indeed. But you -- and everyone else who has found healing through SCD -- know better. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 At 11:55 AM 2/13/2010, you wrote: I just read about coconut water (taken from young coconuts). Young green coconut water isn't SCD legal -- because it's from GREEN coconuts. It's recommended on the Body Ecology Diet, which, while better than the Standard American Diet, recommends quite a few things which are SCD-illegal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Mara,I just read about coconut water (taken from young coconuts). It is high in lauric acid. To quote one coconut producer "Coconut water contains high levels of lauric acid, what the body uses to make monolaurin, a disease-fighting fatty acid derivative. Lauric acid has anti-fungal, anti-bacterial and anti-viral properties that protect the body against various infections and boost the immune system."It is like nature's sports drink. I also read that it has been used in place of IV plasma during war. My only question is whether young coconut water is illegal in a similar way that not properly ripe bananas are.Yeah, it's technically illegal. Though there are people on various lists who are quite versed on the topic, whofeel that it is an area that Elaine did not fully research. But one such personhas also stated, that this applies only to water from very, very fresh young green coconuts and quite possibly by the time they are imported to the states and sold here, the correct conditions no longer apply because the sugar in them has matured too much. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > > Les, > > A lot of us are interested in this - given the state of traditional medicine and > our disease complexes - so talk away. > > So you found monolaurin effective - any particular brand or dosage? > > Mara Mara, > You can find monolaurin at Vitamin Shoppe and at Amazon. I don't know why it isn't more widely used. Early on, I learned that the reason for SCD was that the bacteria had to be disabled by taking away their food. They were biofilm-protected and were not vulnerable to ordinary antibiotics. My strategy was to follow the diet as the basis of the program, and then find some way to penetrate the biofilm so I could get to these nasties. I found that monolaurin was effective in killing biofilm-protected bacteria on stainless steel food-handling equipment. I learned that monolaurin and lactoferrin would interrupt the bacteria's film forming process, and that they were safe to take internally. I learned that both were very effective killers of bacteria and yeast. I started on a regimen of SCD, monolaurin, lactoferrin, olive leaf extract, Grapefruit seed extract and oil of oregano. If I was starting out now, I would pursue the SCD till things were more or less stable. Then I would add the rest as conditions in the gut would allow. GSE and OoO are strong and probably wouldn't be tolerated at first. The problem with using a lot of stuff at the same time is that you don't really know what's working and what's hurting. As you and the others know, with Crohn's you're inclined to be kinda desperate. I just believe that Crohn's doesn't like coconut in any form. If I was fighting this battle now, I would find a good recipe for coconut cookies made with almond flour, and eat them every day. I'll have to confess to eating a tablespoon or two of coconut oil each day even now. I actually like it. Now, a question. I've given away my last BTVC book, and I was wondering if later editions allowed Stevia. As I recall, Stevia was not allowed because it was suspect, and not because it was known to be harmful. I wonder also if that is the case with primal defence. Let me know your thinking on that. Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Monolaurin can also be found at www.lauricidin.com That is what I use. Carol CD 22 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of lbrman@... u can find monolaurin at Vitamin Shoppe and at Amazon. I don't know why it isn't more widely used. _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Anything other than standard medical care is referred to as " CAM " , so I would say all of us on SCD are following some sort of CAM, and sadly many of us have similar stories about being let down by the system in some way. We are all open to learning. This is primarily an SCD board, but yes, anything that is helpful is interesting to know. I have learned a lot from this board. If it is helpful, and legal or complementary to SDC, then I would want to know about it. Just be careful with illegals as not to confuse anyone. Marilyn can clarify the rules on this, but if you do discuss an illegal- it has to be very clear that it is illegal and in context. PJ > > > > > > > > To the best of my knowledge, we haven't discussed > > it while you've been away, but sometimes my brain can go on the blink. > > > > CAM? > > > > Let's put it this way: I struggled for 25 years > > with my gut issues. SCD resolved that. > > > > A jerk of a PCP missed my complex sleep apnea and my cancer. > > > > Fortunately, I had an excellent doc for the > > apnea, and found a spectacular website for > > anything connected to sleep disorders and CPAP therapy: > > > > SCD, above all, is the foundation on which we > > build all of our other health care > > practices. Which is why this list is dedicated > > to the implementation of SCD in our daily lives. > > > > > > — Marilyn > > New Orleans, Louisiana, USA > > Undiagnosed IBS since 1976, SCD since 2001 > > Darn Good SCD Cook > > No Human Children > > Shadow & Sunny Longhair Dachshund > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 > > > >> >> Les, >> >> A lot of us are interested in this - given the state of traditional medicine and >> our disease complexes - so talk away. >> >> So you found monolaurin effective - any particular brand or dosage? >> >> Mara > > Mara, >> > You can find monolaurin at Vitamin Shoppe and at Amazon. I don't know why it isn't more widely used. > > Early on, I learned that the reason for SCD was that the bacteria had to be disabled by taking away their food. They were biofilm-protected and were not vulnerable to ordinary antibiotics. > My strategy was to follow the diet as the basis of the program, and then find some way to penetrate the biofilm so I could get to these nasties. > I found that monolaurin was effective in killing biofilm-protected bacteria on stainless steel food-handling equipment. I learned that monolaurin and lactoferrin would interrupt the bacteria's film forming process, and that they were safe to take internally. I learned that both were very effective killers of bacteria and yeast. I started on a regimen of SCD, monolaurin, lactoferrin, olive leaf extract, Grapefruit seed extract and oil of oregano. > If I was starting out now, I would pursue the SCD till things were more or less stable. Then I would add the rest as conditions in the gut would allow. GSE and OoO are strong and probably wouldn't be tolerated at first. Yeah - I kind of jumped in with all this stuff too when I first started and it all got very confusing and I hadn't a clue what helped and what didn't -- there was too much going on. Currently I handle a fairly high dose of OO fairly well. Haven't restarted the GSE, more out of it is hard to find time to fit everything in in the day. And though I'm currently drinking a lot of coconut milk - in my coffee, among other places - and using a lot of coconut flour to bake, I never tried monolaurin pills as a supplement. I didn't know it was supposed to disrupt the biofilm so well. Will have to get ahold of them to see if taking them as a supplement helps. > The problem with using a lot of stuff at the same time is that you don't really know what's working and what's hurting. As you and the others know, with Crohn's you're inclined to be kinda desperate. > I just believe that Crohn's doesn't like coconut in any form. If I was fighting this battle now, I would find a good recipe for coconut cookies made with almond flour, and eat them every day. I'll have to confess to eating a tablespoon or two of coconut oil each day even now. I actually like it. > Now, a question. I've given away my last BTVC book, and I was wondering if later editions allowed Stevia. As I recall, Stevia was not allowed because it was suspect, and not because it was known to be harmful. Yes, this has remained the same. > I wonder also if that is the case with primal defence. This has bifidus in it, I believe. So, it's a different case. It's illegal on SCD - though, as it happens, it works very well for some individuals. And in some individuals it overgrows. I know that , one of the mods at Healing Crow and extremely well informed, believes that Primal Defense helped her. > Let me know your thinking on that. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Didn't someone on here study coconuts and say a while ago (I couldn't tell you who or when) that coconuts basically acted the opposite way bananas did and so having the young coconut was more likely legal than the older coconut (where the sugars have been built up)? I thought I remembered someone saying that in one of the discussions. Stacey > >I just read about coconut water (taken from young coconuts). > > Young green coconut water isn't SCD legal -- > because it's from GREEN coconuts. It's > recommended on the Body Ecology Diet, which, > while better than the Standard American Diet, > recommends quite a few things which are SCD-illegal. > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 At 09:43 PM 2/13/2010, you wrote: Didn't someone on here study coconuts and say a while ago (I couldn't tell you who or when) that coconuts basically acted the opposite way bananas did and so having the young coconut was more likely legal than the older coconut (where the sugars have been built up)? I thought I remembered someone saying that in one of the discussions. This is what the proponents of young, green coconut water say. There's been quite a bit of argumentation on the subject, with proponents saying that Elaine didn't bother to research it properly. Same argument I've heard for allowing bifidus and other non-legal probiotic strains. That Elaine didn't research it properly. Young green coconut water may be great for people without gut issues. It is NOT, however, SCD legal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Yep. One of the moderators at pecanbread, I believe. Also someone at Healing Crow who has done quite a bit of research on it. Mara > Didn't someone on here study coconuts and say a while ago (I couldn't tell you who or when) that coconuts basically acted the opposite way bananas did and so having the young coconut was more likely legal than the older coconut (where the sugars have been built up)? I thought I remembered someone saying that in one of the discussions. > Stacey > > >>> I just read about coconut water (taken from young coconuts). >> >> Young green coconut water isn't SCD legal -- >> because it's from GREEN coconuts. It's >> recommended on the Body Ecology Diet, which, >> while better than the Standard American Diet, >> recommends quite a few things which are SCD-illegal. >> >> >> — Marilyn >> New Orleans, Louisiana, USA >> Undiagnosed IBS since 1976, SCD since 2001 >> Darn Good SCD Cook >> No Human Children >> Shadow & Sunny Longhair Dachshund >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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