Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 , I just wanted to say I totally know what you mean. I have a nephew who just graduated from high school and has had Crohn's for a few years. He has had various surgeries and is on meds and has gained a ton of weight. My daughter is on the SCD and has celiac disease. My sister in law is not interested in the diet at all for her son, and it kills me. I guess it makes me mad when people are closed-minded and won't even look into a diet change or other options for their health. Be informed and then you can make an informed decision. Oh, well. I feel the same way you do as far as relatives not being interested. Marla P. To: BTVC-SCD Sent: Fri, January 29, 2010 4:12:20 PMSubject: Re: Choosing Life Llemar, Good for you and thank you for sharing your story! It is not just with bowel diseases that doctors are pushing drugs. My husbands family suffers from heart disease and diabetes, over the past twelve years I have seen the health of his siblings deteroriate beyond beleif. However, my husband has stuck with me making diet lifestyle changes (no meds or surgeries) and our health seems to keep improving. We have tried to discuss this in the past with his family but they don't listen/believe. They just listen/beleive their doctors who dispense pills and schedule surgeries. My husband is the oldest of his sibs and the only one in good health. It is so sad. From: Llemar Nicholson <llemux (AT) yahoo (DOT) com>To: BTVC-SCD@yahoogroup s.comSent: Fri, January 29, 2010 2:06:11 PMSubject: Choosing Life I just a read a post about a 17 year old who has been recently been diagnosed with IBD. I can advocate for choosing diet and taking care of the cause rather than masking symptoms. I have first-hand knowledge of both approaches. If i had followed my parents would have just followed what doctors said taking medications, eating anything and live as if there were no hope of addressing the cause. I've had Crohn's Disease since I was 15 and that is why I admire the courage that Alyssa has because I knew the courage it took for me. I was pressured to follow the drug path, all I heard was I am a little boy and doctors know this and know that. The truth is that doctors know drugs;how to manage symptoms that's all. Drugs have their place but is I more than misguided to think that a bowel disease is not related to diet. Six years after I'm glad I followed this way, before SCD I saw no hope and didn't really expect to wake up the next day. I was dying and nearly did on more than one occasion. I prefer to do something that makes sense to being hopped on steroids, weigh 89lbs and have no sense of my surroundings with life just flying by. I have a long way to go but I'm committed. I have a friend from Sri Lanka that seems to believe that drugs are the way. He has been sick only two years but has had 5 surgeries. He wants to hang out with his friends Everyone wants to be normal but live throws us curveballs sometimes (what do I know about baseball) but we have to adjust so we can still make contact. Every day I am able to go study what I love I give God thanks.Llemar21 years oldCD 6 years SCD restarted 18 monthsJamaica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 In God we trust = AMEN!!! so awesome that these younger people (not that I'm old - LOL - but this just happened at 36 to me - at 15 , 17 , 21 -I was living off sugar - must be so hard - I have no weird feelings explaining SCD at my age - just annoyed with people saying - i could never do that or I'd just take meds and eat whatever - so silly to me - why wouldn't you save yourself if you could -i'll never get them - like they'll never get SCD - they still think I'm just gluten-free -I joke I'd give my left arm to be GF -I have a 6 y.o. son and he eats whatever it is he wants in GF form - mind you it's all healthy but I LOVED the GF choc chip cookies etc - so I do get bothered when they think i'm just GF - sorry lil vent -LOL eileen 2 years scd > > > > I just a read a post about a 17 year old who has been recently been diagnosed with IBD. I can advocate for choosing diet and taking care of the cause rather than masking symptoms. I have first-hand knowledge of both approaches. If i had followed my parents would have just followed what doctors said taking medications, eating anything and live as if there were no hope of addressing the cause. I've had Crohn's Disease since I was 15 and that is why I admire the courage that Alyssa has because I knew the courage it took for me. > > > > I was pressured to follow the drug path, all I heard was I am a little boy and doctors know this and know that. The truth is that doctors know drugs;how to manage symptoms that's all. Drugs have their place but is I more than misguided to think that a bowel disease is not related to diet. Six years after I'm glad I followed this way, before SCD I saw no hope and didn't really expect to wake up the next day. I was dying and nearly did on more than one occasion. I prefer to do something that makes sense to being hopped on steroids, weigh 89lbs and have no sense of my surroundings with life just flying by. I have a long way to go but I'm committed. I have a friend from Sri Lanka that seems to believe that drugs are the way. He has been sick only two years but has had 5 surgeries. He wants to hang out with his friends Everyone wants to be normal but live throws us curveballs sometimes (what do I know about baseball) but we have to adjust so we can still > make > > contact. Every day I am able to go study what I love I give God thanks. > > > > Llemar > > 21 years old > > CD 6 years SCD restarted 18 months > > Jamaica > > > HI Llemar, > > Thank you for your story. I'm the mom who has the 17 year old with Crohn's. It encourages me to read your thoughts on the drugs. I feel the same. I don't want these in his system-they are so potent and I feel like the doctors themselves don't even know what the long term consequences will be. I feel that they are taking chances with people's lives here. Sort of the approach of, maybe it will work but we can't guarantee that you won't develop something worse. I don't like those odds. > I pray that this is going to be the right approach for my son-that God will bless our efforts and bless him with healing. > You are right to care for yourself in this way. Keep going and let us know how things are with you. > > May God Bless You with health. > > Sherry > Quote Link to comment Share on other sites More sharing options...
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