Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Hey everyone, my husband just got diagnosed with neurosarcoidosis last week. Of course, our neurologist spent a lot of time going over the severe side effects of taking the high doses of prednisone, but I really want to hear how others & their spouses are dealing with this same thing. He has it in his hypothalamus, which I've heard is a rare area, so I just haven't found any information out there. Any information would be appreciated. The side effects that they talked about him having with the medication seem to be right in line with the symptoms that he was experiencing that lead us to go to the doctors in the first place-weight gain, severe irritability ,diabetes symptoms, etc. I already have seen our marriage be affected by this & it hurts so much. He & I are both in our 20's & have only been married for a year, so this has really tested us. Quote Link to comment Share on other sites More sharing options...
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