Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 I know that these wonderful gals(and guys) will help you out. We have all BTDT, and know how you are feeling. So, first...she has Markell's? Are they open heeled or closed? Most pressure sores appear to come from slipping, so you probably need to position the foot different IF the shoes are the right size (my son's was given the wrong size). Kori, ...anyone out there more knowledgable than me at the moment? > > Hello, > > I have a few questions....our daughter just received her DBB this > past Wednesday and has not been a very happy camper! She is > developing pressure areas on her non-club foot on both sides of her > ankle and the ball of her foot. We have tried changing the type of > socks, using moleskin and blister bandaids and it doesn't seem to > really make any difference. I'm probably a little paranoid because > our daughter was not casted properly by the first doctor and ended up > with a pressure sore from the cast that developed into cellulits and > she had to hospitalized and on IV anti-biotics! And I don't want to > go down that road again! > > Thanks to your site we found out about the s shoes and have > been doing some research. The brace room " guy " associated with our > doctor said that the s are more of an " ankle treatment " and > he wasn't sure about the long-term success rate for cf. However, I > haven't seen that mentioned in any of your wonderfully enlightening > emails! HELP!!! We want to do what is best for our daughter but we > also hate to see her so unhappy and uncomfortable! > > Any help you could offer would be greatly appreciated! > > Thanks, > > laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 , Are you sure her feet are corrected enough at this point to even tolerate the shoes? You're right to be concerned about the sores coming on. The 's are an option. I've been using them on my youngest for 2 years now and love them, never an issue with sores and his feet are holding their correction beautifully. Sometimes they are better for children who had less than adequate treatment such as yours started out with. There are other things though you might want to check in to - the size of the shoes, the angles they'r set at, the condition of the foot itself.... I'm new to all of this and need help! Hello, I have a few questions....our daughter just received her DBB this past Wednesday and has not been a very happy camper! She is developing pressure areas on her non-club foot on both sides of her ankle and the ball of her foot. We have tried changing the type of socks, using moleskin and blister bandaids and it doesn't seem to really make any difference. I'm probably a little paranoid because our daughter was not casted properly by the first doctor and ended up with a pressure sore from the cast that developed into cellulits and she had to hospitalized and on IV anti-biotics! And I don't want to go down that road again! Thanks to your site we found out about the s shoes and have been doing some research. The brace room " guy " associated with our doctor said that the s are more of an " ankle treatment " and he wasn't sure about the long-term success rate for cf. However, I haven't seen that mentioned in any of your wonderfully enlightening emails! HELP!!! We want to do what is best for our daughter but we also hate to see her so unhappy and uncomfortable! Any help you could offer would be greatly appreciated! Thanks, laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Hello , Welcome to the group! First off, sorry to hear that your daughter has had to deal with improper casting/pressure sore! I don't think that you are at all being paranoid by worring about red marks on her feet and her uncomfortability in the shoes, she should have adjusted by now if her feet are properly corrected, the brace is set up right and you are getting the shoes on properly...we will all help you get this figured out so your little girl is comfy and happy =)!! First off a bit of background on her treatment would be helpful. When you say she had unsucessful casting, what did that involve (how many casts, were they full length toe to groin and what kind of results did you see). Was her last cast rotated outward to a 70 degree angle and does she have good dorsiflexion (the ability to bend the foot up towards the knee), it should ideally be 15-20 degrees. How is her brace set up? Her club foot shoe should be set out to a 70 degree outward rotation (this will not be comfortable though if her last cast was not at 70 degrees) and her non club foot should be at around 45 degrees (our daughter is unilateral also - right). We really need to figure out/make sure that her foot has been properly corrected. If not, she will never be comfortable in the brace and will probably end up with more sores/blisters which is what we DO NOT want to see! And also we neeed to make sure that her brace is set up properly. Who is her current doctor btw? It would be really helpful to see pics of her feet and her brace to help us determine if all is OK. We are not medical doctors but many here have a very good eye and will know if her foot is corrected or not. There is also a nurse who worked directly with Dr. Ponseti named Beth here who's advise and knowledge have been invaluable, it would be really good for her to see your daughter's foot. You will need to join the CFPics site as this site does not support attachments. There is a small survey to be filled out and sent back and then one of the moderators will approve you so you can send off the pics. Here is the link... http://health.groups.yahoo.com/group/CFPics/ You should take the following pics: *One directly from the back with her standing and bearing weight *One from the front with her standing bearing weight *One from the top showing her foot at rest *One dorsiflexing her foot (cup her foot and apply pressure with your thumb and get her foot to go as high up toward the knee as is comfortable possible) *One from the bottom showing the sole of her foot *One with her wearing her brace from the front (try to take the pic so that we can see the rotation of her shoes and distance appart they are, take a few if needed) This will help ease your mind that she is fully corrected and that her brace is properly set up so that you will only need to deal with getting the shoes on properly. Some kids do have a real problem tolerating the Markell shoes (our daughter didn't) it's usually kids that have atypical/complex clubfoot and this is why the shoes were designed and made. Not sure where your orthotist got his information from but it is NOT correct - they were specially designed by with Dr. Ponseti's help for our kids. Glad that you found this group, you will find the parents here so caring, supportive and informative! As I said, we will all put our heads together here and help you get this figured out! Whats your little girls name btw and how old is she? Smiles, & Grace 18mos urcf FAB 13hrs > > Hello, > > I have a few questions....our daughter just received her DBB this > past Wednesday and has not been a very happy camper! She is > developing pressure areas on her non-club foot on both sides of her > ankle and the ball of her foot. We have tried changing the type of > socks, using moleskin and blister bandaids and it doesn't seem to > really make any difference. I'm probably a little paranoid because > our daughter was not casted properly by the first doctor and ended up > with a pressure sore from the cast that developed into cellulits and > she had to hospitalized and on IV anti-biotics! And I don't want to > go down that road again! > > Thanks to your site we found out about the s shoes and have > been doing some research. The brace room " guy " associated with our > doctor said that the s are more of an " ankle treatment " and > he wasn't sure about the long-term success rate for cf. However, I > haven't seen that mentioned in any of your wonderfully enlightening > emails! HELP!!! We want to do what is best for our daughter but we > also hate to see her so unhappy and uncomfortable! > > Any help you could offer would be greatly appreciated! > > Thanks, > > laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 It has already been such a blessing to find this group! Your response have brought tears to my eyes as I don't feel so alone in this very confusing process! Thank you! Okay....our daughter's name is Mallory and she is 3 1/2 months old. I will definitely join the pix site and send the pictures you indicated...any assistance would be greatly appreciated! We did not know that Mallory had a right club foot until she was born. She had severe jaundice and had to be admitted to NICU. Because we didn't know anything about club foot or its treatment we went with local ortho who said he knew what he was doing but he obviously didn't! She had 2 casts put on by him...the first stopped below her knee and the second was full length. He put a thumb imprint on the outside of her casts on her ankle which is what caused the half-dollar sized sore! Her current Doctor is with Riley Hospital in Indianapolis and his name is Dr. Randall Loder. We have been very happy with him and his treatment. She had a total of 5 casts with him (not including the 3 weeks cast after surgery). She had the tendon surgery and final cast 3 weeks ago. Her last cast was at 70 degrees. She does have good dorsiflexion but it is painful to her and makes her cry...is this normal? I just checked her brace and in my very limited opinion it looks to be 70 and 45. Is is normal for the sore areas to be on the non-club foot? Thanks for your help and i'll get the pictures. You all are truly a blessing! > > > > Hello, > > > > I have a few questions....our daughter just received her DBB this > > past Wednesday and has not been a very happy camper! She is > > developing pressure areas on her non-club foot on both sides of her > > ankle and the ball of her foot. We have tried changing the type > of > > socks, using moleskin and blister bandaids and it doesn't seem to > > really make any difference. I'm probably a little paranoid > because > > our daughter was not casted properly by the first doctor and ended > up > > with a pressure sore from the cast that developed into cellulits > and > > she had to hospitalized and on IV anti-biotics! And I don't want > to > > go down that road again! > > > > Thanks to your site we found out about the s shoes and > have > > been doing some research. The brace room " guy " associated with > our > > doctor said that the s are more of an " ankle treatment " and > > he wasn't sure about the long-term success rate for cf. However, > I > > haven't seen that mentioned in any of your wonderfully enlightening > > emails! HELP!!! We want to do what is best for our daughter but > we > > also hate to see her so unhappy and uncomfortable! > > > > Any help you could offer would be greatly appreciated! > > > > Thanks, > > > > laura > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 , Our original orthotist told us the same thing about the s...That they were more of an ankle treatment...Mine was confused and turns out didn't really know much about them. More than likely, your daughter is just experiencing her adjustment period to the Markells. Hang in there...it will probably get better soon. Check the bar length, like said. If the bar is adjustable, make sure that bolt to bolt, it is the width of her shoulders. Our orho didn't believe in that theory (of bar being shoulder width). did not have an adjustable bar, and they wouldn't get us a longer one. The width can make a huge difference! We also thought that our daughter was fully corrected, but after taking her to Dr. Ponseti and letting him recast her, we now know that she was never fully corrected before when she was not tolerating the shoes. Her feet looked straight to us, but she was never able to put either foot flat on the floor. Dr. Ponseti took care of that. She is now in the s and they are wonderful. ( 2/1/05: bcf P/M 22/7) > > Hello, > > I have a few questions....our daughter just received her DBB this > past Wednesday and has not been a very happy camper! She is > developing pressure areas on her non-club foot on both sides of her > ankle and the ball of her foot. We have tried changing the type of > socks, using moleskin and blister bandaids and it doesn't seem to > really make any difference. I'm probably a little paranoid because > our daughter was not casted properly by the first doctor and ended up > with a pressure sore from the cast that developed into cellulits and > she had to hospitalized and on IV anti-biotics! And I don't want to > go down that road again! > > Thanks to your site we found out about the s shoes and have > been doing some research. The brace room " guy " associated with our > doctor said that the s are more of an " ankle treatment " and > he wasn't sure about the long-term success rate for cf. However, I > haven't seen that mentioned in any of your wonderfully enlightening > emails! HELP!!! We want to do what is best for our daughter but we > also hate to see her so unhappy and uncomfortable! > > Any help you could offer would be greatly appreciated! > > Thanks, > > laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 , Sorry I don't have a lot of time to give you right now, but rest assured that we can help you get to the bottom of what is causing these sores for your daughter. I mainly wanted to say that the brace was designed specifically to hold the correction of a clubfoot and nothing else. It has nothing to do with ankle treatment. Your brace guy has no clue! : ) I'm sure you'll get lots of feedback here and I can chime in more later! Gotta run, Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 14hrs/day) > > Hello, > > I have a few questions....our daughter just received her DBB this > past Wednesday and has not been a very happy camper! She is > developing pressure areas on her non-club foot on both sides of her > ankle and the ball of her foot. We have tried changing the type of > socks, using moleskin and blister bandaids and it doesn't seem to > really make any difference. I'm probably a little paranoid because > our daughter was not casted properly by the first doctor and ended up > with a pressure sore from the cast that developed into cellulits and > she had to hospitalized and on IV anti-biotics! And I don't want to > go down that road again! > > Thanks to your site we found out about the s shoes and have > been doing some research. The brace room " guy " associated with our > doctor said that the s are more of an " ankle treatment " and > he wasn't sure about the long-term success rate for cf. However, I > haven't seen that mentioned in any of your wonderfully enlightening > emails! HELP!!! We want to do what is best for our daughter but we > also hate to see her so unhappy and uncomfortable! > > Any help you could offer would be greatly appreciated! > > Thanks, > > laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 I just realized you wrote that the sores are on the normal foot, not the clubfoot. What is the angle at for that foot? Should be around 45 degree. The sides and the ball of the foot, hmmm, is it possible that the normal foot needs a different size shoe, like a regular or narrow? Has she been slipping in them or out of them entirely? My original orthotist had no clue either. We will figure this out, ok! > > Hello, > > I have a few questions....our daughter just received her DBB this > past Wednesday and has not been a very happy camper! She is > developing pressure areas on her non-club foot on both sides of her > ankle and the ball of her foot. We have tried changing the type of > socks, using moleskin and blister bandaids and it doesn't seem to > really make any difference. I'm probably a little paranoid because > our daughter was not casted properly by the first doctor and ended up > with a pressure sore from the cast that developed into cellulits and > she had to hospitalized and on IV anti-biotics! And I don't want to > go down that road again! > > Thanks to your site we found out about the s shoes and have > been doing some research. The brace room " guy " associated with our > doctor said that the s are more of an " ankle treatment " and > he wasn't sure about the long-term success rate for cf. However, I > haven't seen that mentioned in any of your wonderfully enlightening > emails! HELP!!! We want to do what is best for our daughter but we > also hate to see her so unhappy and uncomfortable! > > Any help you could offer would be greatly appreciated! > > Thanks, > > laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 , has it right on here, shoe angle first - is her non-affected foot set to somewhere between 35-45 degrees? If it is set for more than this it is too much. Can you tell me more about the sores? Just red areas? Any broken skin? Or are they dark purple deep like the pressure sore she got from the cast? Shoe size: you can download the Markell shoe size chart from here - http://www.markellshoe.com/ponsetiflyer.pdf My understanding is that the foot should match up width wise with the chart for a Medium width shoe. If your daughter's foot is wider than this, she should have a wide width shoe. If they are pressure sores, the fact that they are on the ball of her foot and sides would indicate that this is likely the issue. The other thing that may be a problem is the bar itself. Not only bar length which could be playing a role here too, but the bend in the bar. If the bend is too severe it will cock her unaffected foot at an odd angle. Actually the unaffected side does not need a bend in the bar at all, it depends on how your orthotist bends it - one curving bend will automatically bend both sides. If they do a bend at either end then you don't even need it bent on the side with the unaffected foot. Tell us more about how your bar and shoes are set up and we can certainly help you diagnose this! Hang in there, we'll help you get your baby back to being a happy girl. : ) Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 14hrs/day) > > > > Hello, > > > > I have a few questions....our daughter just received her DBB this > > past Wednesday and has not been a very happy camper! She is > > developing pressure areas on her non-club foot on both sides of > her > > ankle and the ball of her foot. We have tried changing the type > of > > socks, using moleskin and blister bandaids and it doesn't seem to > > really make any difference. I'm probably a little paranoid > because > > our daughter was not casted properly by the first doctor and ended > up > > with a pressure sore from the cast that developed into cellulits > and > > she had to hospitalized and on IV anti-biotics! And I don't want > to > > go down that road again! > > > > Thanks to your site we found out about the s shoes and > have > > been doing some research. The brace room " guy " associated with > our > > doctor said that the s are more of an " ankle treatment " > and > > he wasn't sure about the long-term success rate for cf. > However, I > > haven't seen that mentioned in any of your wonderfully > enlightening > > emails! HELP!!! We want to do what is best for our daughter but > we > > also hate to see her so unhappy and uncomfortable! > > > > Any help you could offer would be greatly appreciated! > > > > Thanks, > > > > laura > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Could I ask who your first doctor was? We are from Indianapolis, and switched doctors because our first altered the bracing. I often noticed thumb prints in 's as well, but he never got sores. Just thought I would see if it was the same doctor. We switched to a certified doctor in Cinnicinnati because we wanted to make sure everything went right the second time. I am glad you are having success with a local doctor. Are you sure it hurts her to dorsiflex? resists a lot, but have very good flexiblity. Could it be that she just doesn't like it? As for sores: She shouldn't have them anywhere. Do you think her shoe should be a different size on the nonclubfoot like maybe a narrow width. lovetolaughalot72 wrote: It has already been such a blessing to find this group! Your response have brought tears to my eyes as I don't feel so alone in this very confusing process! Thank you! Okay....our daughter's name is Mallory and she is 3 1/2 months old. I will definitely join the pix site and send the pictures you indicated...any assistance would be greatly appreciated! We did not know that Mallory had a right club foot until she was born. She had severe jaundice and had to be admitted to NICU. Because we didn't know anything about club foot or its treatment we went with local ortho who said he knew what he was doing but he obviously didn't! She had 2 casts put on by him...the first stopped below her knee and the second was full length. He put a thumb imprint on the outside of her casts on her ankle which is what caused the half-dollar sized sore! Her current Doctor is with Riley Hospital in Indianapolis and his name is Dr. Randall Loder. We have been very happy with him and his treatment. She had a total of 5 casts with him (not including the 3 weeks cast after surgery). She had the tendon surgery and final cast 3 weeks ago. Her last cast was at 70 degrees. She does have good dorsiflexion but it is painful to her and makes her cry...is this normal? I just checked her brace and in my very limited opinion it looks to be 70 and 45. Is is normal for the sore areas to be on the non-club foot? Thanks for your help and i'll get the pictures. You all are truly a blessing! > > > > Hello, > > > > I have a few questions....our daughter just received her DBB this > > past Wednesday and has not been a very happy camper! She is > > developing pressure areas on her non-club foot on both sides of her > > ankle and the ball of her foot. We have tried changing the type > of > > socks, using moleskin and blister bandaids and it doesn't seem to > > really make any difference. I'm probably a little paranoid > because > > our daughter was not casted properly by the first doctor and ended > up > > with a pressure sore from the cast that developed into cellulits > and > > she had to hospitalized and on IV anti-biotics! And I don't want > to > > go down that road again! > > > > Thanks to your site we found out about the s shoes and > have > > been doing some research. The brace room " guy " associated with > our > > doctor said that the s are more of an " ankle treatment " and > > he wasn't sure about the long-term success rate for cf. However, > I > > haven't seen that mentioned in any of your wonderfully enlightening > > emails! HELP!!! We want to do what is best for our daughter but > we > > also hate to see her so unhappy and uncomfortable! > > > > Any help you could offer would be greatly appreciated! > > > > Thanks, > > > > laura > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 - Welcome aboard-our son was treated at Riley hospital and we sometimes still get his brace/boots from the brace shop. I love Dan- however his coworker is not so very nice-just didn't have much of a soft touch towards our little man. Dan made sure before he sent us home that we knew what we were doing and that they fit properly-the other guy handed us the new boots/bar and sent us out the door- without even trying them on!! Ugh. Our doctor is not at St s but like I said-I still like going to Riley-i love that place! Sned us some pictures so we can see whats going on with Mallory. If its just her ncf foot-my bet is the shoe is either too big or too small for her(more likely too small)-some ucf need 2 different shoe sizes. We live in sunny south bend! Take care, kathleen mom to david bcf fab 12/7 > > > > > > Hello, > > > > > > I have a few questions....our daughter just received her DBB this > > > past Wednesday and has not been a very happy camper! She is > > > developing pressure areas on her non-club foot on both sides of > her > > > ankle and the ball of her foot. We have tried changing the type > > of > > > socks, using moleskin and blister bandaids and it doesn't seem > to > > > really make any difference. I'm probably a little paranoid > > because > > > our daughter was not casted properly by the first doctor and > ended > > up > > > with a pressure sore from the cast that developed into cellulits > > and > > > she had to hospitalized and on IV anti-biotics! And I don't > want > > to > > > go down that road again! > > > > > > Thanks to your site we found out about the s shoes and > > have > > > been doing some research. The brace room " guy " associated with > > our > > > doctor said that the s are more of an " ankle treatment " > and > > > he wasn't sure about the long-term success rate for cf. > However, > > I > > > haven't seen that mentioned in any of your wonderfully > enlightening > > > emails! HELP!!! We want to do what is best for our daughter > but > > we > > > also hate to see her so unhappy and uncomfortable! > > > > > > Any help you could offer would be greatly appreciated! > > > > > > Thanks, > > > > > > laura > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 --- Sorry it took so long to respond....our first Doctor was in Fort Wayne....Dr. Karr....he was the one who put the thumbrpints that caused the cast sores. We then switched to Dr. Randall Loder at Riley and we have been happy with him. Are you familiar with him? We actually got his name from the Head of Orthopaedics at Children's Hospital in Cincinnati! Are you happy with your doctor in Cincinnati? Just curious about options around us! Thanks, and Mallory In nosurgery4clubfoot , JGOODIN wrote: > > Could I ask who your first doctor was? We are from Indianapolis, and switched doctors because our first altered the bracing. I often noticed thumb prints in 's as well, but he never got sores. Just thought I would see if it was the same doctor. We switched to a certified doctor in Cinnicinnati because we wanted to make sure everything went right the second time. I am glad you are having success with a local doctor. > > Are you sure it hurts her to dorsiflex? resists a lot, but have very good flexiblity. Could it be that she just doesn't like it? > > As for sores: She shouldn't have them anywhere. Do you think her shoe should be a different size on the nonclubfoot like maybe a narrow width. > > lovetolaughalot72 wrote: > It has already been such a blessing to find this group! Your > response have brought tears to my eyes as I don't feel so alone in > this very confusing process! Thank you! > > Okay....our daughter's name is Mallory and she is 3 1/2 months old. > I will definitely join the pix site and send the pictures you > indicated...any assistance would be greatly appreciated! > > We did not know that Mallory had a right club foot until she was > born. She had severe jaundice and had to be admitted to NICU. > Because we didn't know anything about club foot or its treatment we > went with local ortho who said he knew what he was doing but he > obviously didn't! She had 2 casts put on by him...the first stopped > below her knee and the second was full length. He put a thumb > imprint on the outside of her casts on her ankle which is what caused > the half-dollar sized sore! > > Her current Doctor is with Riley Hospital in Indianapolis and his > name is Dr. Randall Loder. We have been very happy with him and his > treatment. She had a total of 5 casts with him (not including the 3 > weeks cast after surgery). She had the tendon surgery and final > cast 3 weeks ago. Her last cast was at 70 degrees. She does > have good dorsiflexion but it is painful to her and makes her > cry...is this normal? I just checked her brace and in my very > limited opinion it looks to be 70 and 45. Is is normal for the sore > areas to be on the non-club foot? > > Thanks for your help and i'll get the pictures. > > You all are truly a blessing! > > > > > > > > > > > > > Hello, > > > > > > I have a few questions....our daughter just received her DBB this > > > past Wednesday and has not been a very happy camper! She is > > > developing pressure areas on her non-club foot on both sides of > her > > > ankle and the ball of her foot. We have tried changing the type > > of > > > socks, using moleskin and blister bandaids and it doesn't seem > to > > > really make any difference. I'm probably a little paranoid > > because > > > our daughter was not casted properly by the first doctor and > ended > > up > > > with a pressure sore from the cast that developed into cellulits > > and > > > she had to hospitalized and on IV anti-biotics! And I don't > want > > to > > > go down that road again! > > > > > > Thanks to your site we found out about the s shoes and > > have > > > been doing some research. The brace room " guy " associated with > > our > > > doctor said that the s are more of an " ankle treatment " > and > > > he wasn't sure about the long-term success rate for cf. > However, > > I > > > haven't seen that mentioned in any of your wonderfully > enlightening > > > emails! HELP!!! We want to do what is best for our daughter > but > > we > > > also hate to see her so unhappy and uncomfortable! > > > > > > Any help you could offer would be greatly appreciated! > > > > > > Thanks, > > > > > > laura > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Kathleen, We too have been very happy with Riley but until this bracing process! We are from Fort wayne....not too far away from South Bend! Who is your Doctor at St.V's? Are you familiar with or have you had any experience with Dr. Loder at Riley? We like him and believe he knows what he is doing but we are also very new to all of this and just want to make sure we are doing what's best! Thanks, (Mallory 3 months....waiting for 's to arrive so she can re- start the 23/7 ) > > > > > > > > Hello, > > > > > > > > I have a few questions....our daughter just received her DBB > this > > > > past Wednesday and has not been a very happy camper! She is > > > > developing pressure areas on her non-club foot on both sides > of > > her > > > > ankle and the ball of her foot. We have tried changing the > type > > > of > > > > socks, using moleskin and blister bandaids and it doesn't > seem > > to > > > > really make any difference. I'm probably a little paranoid > > > because > > > > our daughter was not casted properly by the first doctor and > > ended > > > up > > > > with a pressure sore from the cast that developed into > cellulits > > > and > > > > she had to hospitalized and on IV anti-biotics! And I don't > > want > > > to > > > > go down that road again! > > > > > > > > Thanks to your site we found out about the s shoes > and > > > have > > > > been doing some research. The brace room " guy " associated > with > > > our > > > > doctor said that the s are more of an " ankle > treatment " > > and > > > > he wasn't sure about the long-term success rate for cf. > > However, > > > I > > > > haven't seen that mentioned in any of your wonderfully > > enlightening > > > > emails! HELP!!! We want to do what is best for our daughter > > but > > > we > > > > also hate to see her so unhappy and uncomfortable! > > > > > > > > Any help you could offer would be greatly appreciated! > > > > > > > > Thanks, > > > > > > > > laura > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 We are very happy with our doctor. I am not familiar with Dr. Loder. Has he been at Riley for a long time? Good to know there are local doctors in case we needed to swich for some reason! 11/19/04 lovetolaughalot72 wrote: --- Sorry it took so long to respond....our first Doctor was in Fort Wayne....Dr. Karr....he was the one who put the thumbrpints that caused the cast sores. We then switched to Dr. Randall Loder at Riley and we have been happy with him. Are you familiar with him? We actually got his name from the Head of Orthopaedics at Children's Hospital in Cincinnati! Are you happy with your doctor in Cincinnati? Just curious about options around us! Thanks, and Mallory In nosurgery4clubfoot , JGOODIN wrote: > > Could I ask who your first doctor was? We are from Indianapolis, and switched doctors because our first altered the bracing. I often noticed thumb prints in 's as well, but he never got sores. Just thought I would see if it was the same doctor. We switched to a certified doctor in Cinnicinnati because we wanted to make sure everything went right the second time. I am glad you are having success with a local doctor. > > Are you sure it hurts her to dorsiflex? resists a lot, but have very good flexiblity. Could it be that she just doesn't like it? > > As for sores: She shouldn't have them anywhere. Do you think her shoe should be a different size on the nonclubfoot like maybe a narrow width. > > lovetolaughalot72 wrote: > It has already been such a blessing to find this group! Your > response have brought tears to my eyes as I don't feel so alone in > this very confusing process! Thank you! > > Okay....our daughter's name is Mallory and she is 3 1/2 months old. > I will definitely join the pix site and send the pictures you > indicated...any assistance would be greatly appreciated! > > We did not know that Mallory had a right club foot until she was > born. She had severe jaundice and had to be admitted to NICU. > Because we didn't know anything about club foot or its treatment we > went with local ortho who said he knew what he was doing but he > obviously didn't! She had 2 casts put on by him...the first stopped > below her knee and the second was full length. He put a thumb > imprint on the outside of her casts on her ankle which is what caused > the half-dollar sized sore! > > Her current Doctor is with Riley Hospital in Indianapolis and his > name is Dr. Randall Loder. We have been very happy with him and his > treatment. She had a total of 5 casts with him (not including the 3 > weeks cast after surgery). She had the tendon surgery and final > cast 3 weeks ago. Her last cast was at 70 degrees. She does > have good dorsiflexion but it is painful to her and makes her > cry...is this normal? I just checked her brace and in my very > limited opinion it looks to be 70 and 45. Is is normal for the sore > areas to be on the non-club foot? > > Thanks for your help and i'll get the pictures. > > You all are truly a blessing! > > > > > > > > > > > > > Hello, > > > > > > I have a few questions....our daughter just received her DBB this > > > past Wednesday and has not been a very happy camper! She is > > > developing pressure areas on her non-club foot on both sides of > her > > > ankle and the ball of her foot. We have tried changing the type > > of > > > socks, using moleskin and blister bandaids and it doesn't seem > to > > > really make any difference. I'm probably a little paranoid > > because > > > our daughter was not casted properly by the first doctor and > ended > > up > > > with a pressure sore from the cast that developed into cellulits > > and > > > she had to hospitalized and on IV anti-biotics! And I don't > want > > to > > > go down that road again! > > > > > > Thanks to your site we found out about the s shoes and > > have > > > been doing some research. The brace room " guy " associated with > > our > > > doctor said that the s are more of an " ankle treatment " > and > > > he wasn't sure about the long-term success rate for cf. > However, > > I > > > haven't seen that mentioned in any of your wonderfully > enlightening > > > emails! HELP!!! We want to do what is best for our daughter > but > > we > > > also hate to see her so unhappy and uncomfortable! > > > > > > Any help you could offer would be greatly appreciated! > > > > > > Thanks, > > > > > > laura > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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