Thanks for the responses (re: New to the Group)

[Guest guest]

Thanks for all the responses to my post.

I really appreciate 's advice about doctors. (Thanks for taking the time to post when you were feeling so bad.)

Amelia,

It makes more sense to me to try to taper off the steriods a second time before adding 6MP- he has only been under their care for under two months. If we hold off on the 6MP, and the tapering off of steriods doesn't work, then he would end up being on steriods longer, but I think it is worth a try. I haven't much experience, but it seemed that they tapered fast to me- he was on 9 days at 30mg, 7 days at 21mg, 4 days at 15mg, then he started having symptoms again, so they brought him back up. Currently he is taking 39 mg. I know this is a forum for discussing/support around the diet, and my questions are about medicines, but I appreciate the more wholistic perspective here.

As for LDN, it makes a lot more sense to me to support the immune system (so it can function properly), instead of trying to wipe it out. I saw there is an open clinical trial studing the effects of LDN for kids with Crohn's. http://clinicaltrials.gov/ct2/show/NCT00715117?term=LDN & rank=2

Thanks again for the responses. I've been spending a LOT of time reading the posts from this group, but it has really helped me to feel less alone. Thanks

Calypso

> It sounds like your son is responding to the medication now, which is good. Also, even though it is easier to take by opening the capsules, isn't that also basically doing away with the time release benefit of the capsule?

Inside the capsule are little grainuals that realse the medicine inside them when at a specific pH

[Guest guest]

I haven't much experience, but it seemed that they tapered fast to me- he was on 9 days at 30mg, 7 days at 21mg, 4 days at 15mg, then he started having symptoms again, so they brought him back up. Currently he is taking 39 mg. I know this is a forum for discussing/support around the diet, and my questions are about medicines, but I appreciate the more wholistic perspective here. Don't worry about it. We discuss this, too. A while back someone posted a healthy way to taper off pred. Maybe someone willrepost it.Mara