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Re: New and need help

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We had the peptide urine tests done to check for the gluten and casein. It

didn't cost us anything as the Autisum Center here received funding to test

150 kids. Our son is not autistic, but has motor and speech delays. His OT is

the one the recommended that we have the tests done, because of his lack of

speech.

Good luck

Rhonda (also a newbie)

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At 01:01 AM 8/22/01 +0000, you wrote:

>We are trying once again to get all this diet stuff going. What test

>were done to decide your children needed to stay away from gluten and

>casein?

I don't know how common this is, but we haven't done ANY and our son's been

on the diet since December. My wife who's more critical about the diet than

me became convinced it was effective after we saw the affects of

infringements last spring (and others, but spring break was the real kicker).

>We are on a limited budget and want to spend wisely.

Since the diet can't hurt anything - we didn't, and don't, see any harm to

doing it w/o the benefit of tests. We also haven't been to any DAN doctors;

our son's ABA pre-school repeatedly mentioned the one in our area after we

said we put on the diet. But he sounds expensive and our insurance

won't cover it, and since we don't know of any great reasons to see him we

haven't.

>Also what do you do with a child that refuses food (normal food), I will

>never be able to get him to eat the gluten free. He will be six next

>month and weighs

>only 30 lbs. Any other ideas on weight gain?

This sounds similar to our experience but far more extreme. was below

the weight chart all his life until a few months after we put him on the

GFCF diet. Now he looks just right for a 4 1/2 yr old imo and last time he

was charted he was at the 15th percentile. If it were my child I would

consult with the doctor and explain what you want to do; maybe print off

some of the science behind it from the gfcfdiet.com website or bring a copy

of " Special Diets... " to loan the doc. With medical supervision I would

hope you could get your child to change to a GFCF diet and not worry about

health risks during the transition period.

Best of luck,

Marty

Gluten & Casein Free Recipes and Resources

Contributed by Families on the GF/CF Diet

http://www.newdiets.com

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