Re: Re: Another question...

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Stacee,

It is our right and our responsibility to our children to ask questions of

ANY doctor including Dr. Ponseti. I have a tremendous amount of respect for

him but there is not a doctor out there that I would trust implicitly with my

children. If you have questions about how he deviated from the standard

protocol with your child, you should be able to ask. That nurse is lucky she

did not say things like that to me or I would have told her where she could

shove her opinion.

Jenni

littleman1013 wrote: Kori--

Thanks!

I didn't want to bother Dr P, since he's such a busy man, but I think I may

just call

tomorrow, or send him an email today when I've regained composure. I just

hate to

bother the doc when I'm pretty sure the nurse can answer the same questions.

I thought I

was asking pretty reasonable questions, but maybe not. Maybe I didn't phrase

them right

or maybe she was just having a terrible, terrible day. Who knows. All I can

say for sure is

that I'm definitely afraid to ask more questions right now!

I just don't understand why, when everything I have seen states otherwise, our

protocol is

so different. I thought that the Ponseti method was a pretty general

treatment with minor

adjustments to each individual, but overall the same (eg 23/7 for everyone for

the first 3

months, using Markells first, then trying other like the mitchells, etc)....

That's all I wanted

to get clarified.

I guess I just can't put into words (clearly, anyway) what my concerns are,

not without

seeming like I'm placing blame or lack of trust.

I guess we'll figure it out eventually.

Stacee

> >I called one of the nurses in Dr P's office to get some

> >clarification on a few questions and

> >she attacked me like I have never been attacked before. I'm really

> >peeved with this! I

> >actually broke down in tears when I hung up, and am on the verge of

> >it again now just

> >thinking about it.

> >

> >Having never had kids with clubfoot before, this is the first time

> >I'm dealing with things

> >like serial casting, dennis brown bars, markells, FABs, etc., and as

> >you might imagine I

> >have more questions than I can count. After leaving Dr P's office

> >yesterday, I had

> >questions about why he only " prescribed " 20/7 for our 3 mo old son

> >fresh out of a post-

> >tenotomy cast. I also wondered why he gave us a premade brace he

> >said he had in his

> >office rather than sending us to the orthotics dept at the hospital

> >yesterday. So I called to

> >ask. is gone till after the new year, so I spoke with another

> >nurse (didn't get her

> >name) who proceeded to ask me about 5 times why I was questioning Dr

> >P's knowledge,

> >experience, and why I didn't believe he was doing what was best for

> >my child!! I explained

> >as many times that I was NOT in any way intending to sound like I

> >didn't trust his

> >judgement or knowledge, just that I'm curious why this path rather

> >than what I've read to

> >be the norm per the Ponseti method. She jumped down my throat and

> >told me (almost

> >yelled at me) that my child is my child, not the norm, that the

> >global booklet was not

> >written for my child, and that the information I've gathered, while

> >great, has been taken

> >out of context and may not be applicable to my

> >situation. Understood. But, I never even

> >gave her my name or my child's name, so how can she make any

> >assumptions? Isn't what

> >she did exactly what she was yelling at me for doing? Making

> >generalizations? I'm just so

> >frustrated. I realize that they're very busy, but %$*^$% & this

> >is my child and his foot

> >that he'll have for the rest of his life. Isn't it ok for me to ask

> >questions about why this or

> >why that, without it being interpreted as a lack of trust? I always

> >thought that making

> >yourself informed was the best thing to do, and actually encouraged

> >by most docs, not

> >frowned upon. I'm afraid to ask ANYTHING of the nurse now! God

> >forbid I have any

> >trouble in the next 3 months before our next appt! I'm going to be

> >afraid to ask, for fear

> >I'll be blacklisted for a presumed lack of trust of the doctor's

experience!

> >

> >Sorry to rant, but I was literally crying when I hung up because I

> >felt so attacked. All I was

> >trying to do was get a little more information about what we

> >were(are) embarking on!

> >

> >Stacee and 9/24/05 rcf, brace 20/7 as of yesterday

> >

> >

> >

> >

> >

> >

> >