Re: Worried about food

[Guest guest]

Sonya,

I am sooo sorry you have to have a second surgery. I have been wired

completely shut for over five weeks now. I too paniced in the

hospital because I felt I couldn't breath and was afraid toswallow

liquids. I had a syringe with a catheter tube attached so I could

poke it back in my mouth were those gaps are. I have a gap where my

wisdom teeth were removed. Did you have yours removed? However, the

space is small and thick liquids and pureed foods would just come

right back out and get all over my face so I have only been drinking

Boost, chicken broth, a thin liquified potatoe soup (that didn't work

the best though), very thin smoothies with heavy whipping cream. I

feel for you. Some just puree everything and suck it down. I just

can't. I ordered the zip n squeeze bags and recipe book. That was

helpful. I warn you though prepare an eating plan and schedule. I

still am not drinking enough and continue to lose weight. I feel

awful and just want food again!! I hope this helps. My doctors kept

assuring me no one suffocated or choked to death but I wasn't

convinced I wouldn't. I suppose its mind over matter. I am getting

unwired Friday. I am ssoo scared about that! But at the same time

and sooo ready to move on to the next stage of recovery. Good luck

and hang in there.

Jane

> Hi Everyone,

>

> I'm ten days post-op from upper, lower and genio now, and I /had/

been

> recovering well. But on Thursday I was told that my midline is off

and

> my bite isn't coming together properly so they're going to do a

second

> operation this Wednesday.

>

> This time they're going to remove the plates from my lower jaw

and 'fix'

> it by banding it very tightly to my upper jaw. They did this once

in

> hospital last week, two days post-op I think, and I wasn't able to

get

> the syringe in my mouth to eat, drink or take any of my

painkillers. The

> nurses were no use - they didn't know what to do and just left me.

> Eventually I had a panic attack and a doctor had to cut the

elastics off.

>

> And this seems like exactly what they're going to do to me again

next

> week, only this time I'm going to be banded for six weeks. I am

very

> frightened of not being able to drink, and all the surgeon said on

> Thursday was that there is a 'gap' somewhere down the side of my

mouth

> where I will be able to squeeze in liquids, but I don't know what

he means.

>

> I know other people get banded tightly, so you can survive, but I'm

> still frightened.

>

> Can anyone please tell me in some detail, how you eat (drink) when

> you're banded this tightly shut?

>

> Thanks,

>

> Sonya

>

>

>

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