Re: Been really sick.. on new meds

[Guest guest]

,

So sorry to hear your feeling under the weather. But I am happy to hear from you. It is my hope, wish, and prayer that this pain is only temporary for you. May you be blessed with pain-free days.

Greg

From: JessicAbouhamama@...

Sent: Tuesday, July 21, 2009 11:34 AM

To: Neurosarcoidosis

Subject: Been really sick.. on new meds

Hi everyone,

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am. Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

[Guest guest]

oh

I am so sorry for you pain. I will be praying for you. I will be thinking of you and hoping for the best. I am glad you were able to let us know what is happening. We have missed your encouraging posts.

Take care of yourself

Jackie

Been really sick.. on new meds

Hi everyone,

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am. Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

[Guest guest]

, I'm sorry that you are so miserable. I hope your docs can find something to help. The whole list is pretty quiet; this is Tracie's Remicade week, so don't expect to hear from her for awhile, plus she's got a lot of other health issues. I'm seeing a neurosurgeon in the morning for an opinion on my disc pain--I can tolerate the back pain; it's the leg pain that makes me want to scream. Plus my doggie with the epilepsy has been watering the kitchen carpet 2-3 times a day now. We put her on antibiotics for a UTI & she did better for a couple of days, now we're back to the same. And she goes gallons, it seems. So, probably have to take her back to the vet & adjust her phenobarb dose.

Well, sorry to get off track. Remember to keep braiding your thread with others in the group & it will become a strong rope to hold onto. Love from Indiana.

Ramblin' RoseModerator

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: JessicAbouhamama@...Date: Tue, 21 Jul 2009 12:34:22 -0400Subject: Been really sick.. on new meds

Hi everyone,

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am. Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

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[Guest guest]

Don't worry about being quiet , you have enough going on right now. Sorry to hear of all the symptoms you are experiencing and hope they level off soon. You are an important and well loved part of the group and we do think of you . Hope you feel better soon, Debbie

Subject: Been really sick.. on new medsTo: Neurosarcoidosis Date: Tuesday, July 21, 2009, 12:34 PM

Hi everyone,

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am. Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

[Guest guest]

, I'm sorry you are hurting so much, and I hope you start to feeling better soon, are you getting Methotrexate injections?  I took it orally for 5 years, and it workedgreat for me, for all those years, I hope you have the same luck I had with it,

am also on Plaquanil too, Now I'm on the Remicade and off the Methotrexate, as my liver enzymes went up, but just fatty liver from gaining weight too fast on Pred. and GI said I could go back on, but Rhumy and Pulmo docs say no.

The Remicade is going well.  I will keep you in my thoughts and prayers, Marl a

 

Hi everyone,

 

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am.  Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

 

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.

[Guest guest]

, I am so sorry your feeling so sick right now. Hopefully, the doctors will get everything going in the right direction soon. Please take care, and be especially kind to a wonderful lady named so she can feel better soon...Connie

Subject: Been really sick.. on new medsTo: Neurosarcoidosis Date: Tuesday, July 21, 2009, 12:34 PM

Hi everyone,

Sorry I have been so quiet, but the Rheumy and my Neuro dr changed from cellcept to Methotraxate treatment every Saturday morning at 10am. Everything has just been going haywire with me since my decline in Nov when I ended up inpatient for the wk. the test results has come back that my spleen is really enlarged and it hurts when i lay down and try to breath. and there is sarcoid in the bones of my feet. The rheumy said she will have to talk to the radiologist to see if he thinks it might need to come out. so I am waiting to hear if i need to go to the surgeorn.

there is so much else, but my arms hurt .... I hope all is well with everyone and think of you all everyday.

Blessings and hugs and a pain free day

What's for dinner tonight? Find quick and easy dinner ideas for any occasion.