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It is possible your Logan is losing correction while he heals so when you put

him back in the shoes, even the right shoes, the foot may not fit well and again

cause sores. Have you considered a " Healing " cast, to hold his correction while

he heals up?

s.

blisters

Hello, I am new to the group and looking for advice. My son Logan

was born 8/11/05. Despite several level 2 US, we did not know about

the unilateral club foot until he was born. We had not heard of

club foot and were led to believe it was no big deal, just a few

casts and all would be well. We went to the ortho recomended by our

ped and felt he was quite knowlegeable. He told us about the serial

casting and the posibility of his heel cord being cut. We did about

4 weeks of casting, then the heel cord was cut. After that cast

came off we were fitted for shoes. Logan screamed for about 24

hours with the FAB, then was generally unhappy for several days. We

had trouble figuring out if his heel was down and back and he was

developing a blister. We went to see the orthotist twice to get

lessons on the shoes. She saw that he was developing a blister. I

asked for the shoes with the open back that I had found on the

Markell site. She ordered these, however by this time there were

several blisters on both feet-seemingly from the padding added by

the orthotist and stitching on the back of the shoe. One foot was

so severe that we had to stop with the shoes and he has a

prescription to help heel the blisters. While with the orthotist,

she could not figure out why 2 pairs of the same size shoe looked so

different. I contacted Markell and discovered that the shoes we

were given were quite out dated, and had we been given the shoe

currently available we could have avoided this. So Logan has been

out of the shoes since Thurs and we see the ortho on Tues. I was

just told to do some stretching with his foot. I am worried that we

are losing ground and he has suffered unnecissarily. We are in CT

and there are no dr's on the Ponseti list. Is there anyone on in

this group that has had a similar experience or could recomend a dr

in CT?

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,

Honey it's a big mistake to start at 45 and " move up " to 70 degrees. The

process just doesn't work that way. The natural tendency of the cf is to revert

to it's cf state - so if you are starting at 45 degrees, that foot is fighting

against the 45, trying to turn back in to it's cf shape, therefore trying to

wrench it back out to 70 with the shoe is a fight you won't win. The casting

process brings the foot out to the 70 degrees - what is called over-correction

- because with time, the foot will gradually revert back a little bit (once the

FAB is discontinued) to a normal state of correctiveness.

Just keep in mind the FAB is used to HOLD correction, it is not designed nor

prescribed to GAIN correction. If you go from 45 to 70 degrees with the shoe,

you are asking that shoe to gain correction and it's just not built for that.

The FAB will only hold the correction the foot had prior to it's use...and with

out proper use, it will not hold that much, thus the foot relapses and you've

got trouble.

I've seen the kind of sore you are talking about, years ago on my oldest cf son.

His heel was hamburger with deep black-purple-red infected holes drilled deep in

to the heel. This ws prior to knowing about Dr. Ponseti and stuff like

that...but the FAB tore him to shreds. I know now it damaged his foot because

his foot was not ready for the FAB - it was like putting a square peg in to a

round hole and expecting it to fit.

More than likely your child will need re-casted to re-gain his proper correction

before you use the shoes again. You may consider biting the bullet and buying

the shoes if this continues, or try cutting the heel out of your

Markell shoes first. Mostly though, be sure the feet are ready for the FAB

before you start using it.

Hang in there, I promise it'll get better eventually!

s.

Re: blisters

Hi, and welcome to the group!

The stretching may help but it's often the case that being out of the

shoes for even a short time can result in relapses - do you notice

Logan's feet seem to be turning back in already? Is his foot abducted

to 70 degrees of outward rotation? Do you feel like his feet were

fully corrected? Often the cause of blisters and sores on the feet

are not just ill fitting shoes, but feet that are not fully corrected.

It is possible that he may not relapse in these few days but your

doctor should definitely look at his foot before just getting you the

new shoes and sending you on your way. If he sees that the foot is

indeed relapsing he should do another cast to regain correction prior

to putting Logan back in the shoes.

If you are looking to get a second opinion, I don't know of any

Ponseti doctors in Connecticut, but there are several in New York and

Dr. Herzenberg in Baltimore is one of the best. Hope this helps and

if you have any other questions feel free to ask!

Thanks,

Jenna (7/4/01) & Sammy (9/25/04, RCF, Dobbs' Brace, 16hrs/day)

>

> Hello, I am new to the group and looking for advice. My son Logan

> was born 8/11/05. Despite several level 2 US, we did not know about

> the unilateral club foot until he was born. We had not heard of

> club foot and were led to believe it was no big deal, just a few

> casts and all would be well. We went to the ortho recomended by our

> ped and felt he was quite knowlegeable. He told us about the serial

> casting and the posibility of his heel cord being cut. We did about

> 4 weeks of casting, then the heel cord was cut. After that cast

> came off we were fitted for shoes. Logan screamed for about 24

> hours with the FAB, then was generally unhappy for several days. We

> had trouble figuring out if his heel was down and back and he was

> developing a blister. We went to see the orthotist twice to get

> lessons on the shoes. She saw that he was developing a blister. I

> asked for the shoes with the open back that I had found on the

> Markell site. She ordered these, however by this time there were

> several blisters on both feet-seemingly from the padding added by

> the orthotist and stitching on the back of the shoe. One foot was

> so severe that we had to stop with the shoes and he has a

> prescription to help heel the blisters. While with the orthotist,

> she could not figure out why 2 pairs of the same size shoe looked so

> different. I contacted Markell and discovered that the shoes we

> were given were quite out dated, and had we been given the shoe

> currently available we could have avoided this. So Logan has been

> out of the shoes since Thurs and we see the ortho on Tues. I was

> just told to do some stretching with his foot. I am worried that we

> are losing ground and he has suffered unnecissarily. We are in CT

> and there are no dr's on the Ponseti list. Is there anyone on in

> this group that has had a similar experience or could recomend a dr

> in CT?

>

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Hi, and welcome to the group!

The stretching may help but it's often the case that being out of the

shoes for even a short time can result in relapses - do you notice

Logan's feet seem to be turning back in already? Is his foot abducted

to 70 degrees of outward rotation? Do you feel like his feet were

fully corrected? Often the cause of blisters and sores on the feet

are not just ill fitting shoes, but feet that are not fully corrected.

It is possible that he may not relapse in these few days but your

doctor should definitely look at his foot before just getting you the

new shoes and sending you on your way. If he sees that the foot is

indeed relapsing he should do another cast to regain correction prior

to putting Logan back in the shoes.

If you are looking to get a second opinion, I don't know of any

Ponseti doctors in Connecticut, but there are several in New York and

Dr. Herzenberg in Baltimore is one of the best. Hope this helps and

if you have any other questions feel free to ask!

Thanks,

Jenna (7/4/01) & Sammy (9/25/04, RCF, Dobbs' Brace, 16hrs/day)

>

> Hello, I am new to the group and looking for advice. My son Logan

> was born 8/11/05. Despite several level 2 US, we did not know about

> the unilateral club foot until he was born. We had not heard of

> club foot and were led to believe it was no big deal, just a few

> casts and all would be well. We went to the ortho recomended by our

> ped and felt he was quite knowlegeable. He told us about the serial

> casting and the posibility of his heel cord being cut. We did about

> 4 weeks of casting, then the heel cord was cut. After that cast

> came off we were fitted for shoes. Logan screamed for about 24

> hours with the FAB, then was generally unhappy for several days. We

> had trouble figuring out if his heel was down and back and he was

> developing a blister. We went to see the orthotist twice to get

> lessons on the shoes. She saw that he was developing a blister. I

> asked for the shoes with the open back that I had found on the

> Markell site. She ordered these, however by this time there were

> several blisters on both feet-seemingly from the padding added by

> the orthotist and stitching on the back of the shoe. One foot was

> so severe that we had to stop with the shoes and he has a

> prescription to help heel the blisters. While with the orthotist,

> she could not figure out why 2 pairs of the same size shoe looked so

> different. I contacted Markell and discovered that the shoes we

> were given were quite out dated, and had we been given the shoe

> currently available we could have avoided this. So Logan has been

> out of the shoes since Thurs and we see the ortho on Tues. I was

> just told to do some stretching with his foot. I am worried that we

> are losing ground and he has suffered unnecissarily. We are in CT

> and there are no dr's on the Ponseti list. Is there anyone on in

> this group that has had a similar experience or could recomend a dr

> in CT?

>

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I had asked last week about that, however the dr thought it was more

important for the skin to heal. We see the dr tomorrow and I plan to

ask for him to be casted, as now Logan is not used to the 70%. Thanks

for the advice.

Re: blisters

It is possible your Logan is losing correction while he heals so when

you put him back in the shoes, even the right shoes, the foot may not

fit well and again cause sores. Have you considered a " Healing " cast,

to hold his correction while he heals up?

s.

blisters

Hello, I am new to the group and looking for advice. My son Logan

was born 8/11/05. Despite several level 2 US, we did not know about

the unilateral club foot until he was born. We had not heard of

club foot and were led to believe it was no big deal, just a few

casts and all would be well. We went to the ortho recomended by our

ped and felt he was quite knowlegeable. He told us about the serial

casting and the posibility of his heel cord being cut. We did about

4 weeks of casting, then the heel cord was cut. After that cast

came off we were fitted for shoes. Logan screamed for about 24

hours with the FAB, then was generally unhappy for several days. We

had trouble figuring out if his heel was down and back and he was

developing a blister. We went to see the orthotist twice to get

lessons on the shoes. She saw that he was developing a blister. I

asked for the shoes with the open back that I had found on the

Markell site. She ordered these, however by this time there were

several blisters on both feet-seemingly from the padding added by

the orthotist and stitching on the back of the shoe. One foot was

so severe that we had to stop with the shoes and he has a

prescription to help heel the blisters. While with the orthotist,

she could not figure out why 2 pairs of the same size shoe looked so

different. I contacted Markell and discovered that the shoes we

were given were quite out dated, and had we been given the shoe

currently available we could have avoided this. So Logan has been

out of the shoes since Thurs and we see the ortho on Tues. I was

just told to do some stretching with his foot. I am worried that we

are losing ground and he has suffered unnecissarily. We are in CT

and there are no dr's on the Ponseti list. Is there anyone on in

this group that has had a similar experience or could recomend a dr

in CT?

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,

It sounds like you have a good plan of action. Logan's sores sound

similar to what happened to my son, we went through the exact same

thing. I would just be firm with the doctor, even if he tries to tell

you the foot is not relapsing - if you are noticing his foot turning

in plus the fact he was not casted to 70 degrees to start with is a

definite reason to get another cast on him (or two if necessary).

Good luck!

> >

> > Hello, I am new to the group and looking for advice. My son Logan

> > was born 8/11/05. Despite several level 2 US, we did not know about

> > the unilateral club foot until he was born. We had not heard of

> > club foot and were led to believe it was no big deal, just a few

> > casts and all would be well. We went to the ortho recomended by our

> > ped and felt he was quite knowlegeable. He told us about the serial

> > casting and the posibility of his heel cord being cut. We did about

> > 4 weeks of casting, then the heel cord was cut. After that cast

> > came off we were fitted for shoes. Logan screamed for about 24

> > hours with the FAB, then was generally unhappy for several days. We

> > had trouble figuring out if his heel was down and back and he was

> > developing a blister. We went to see the orthotist twice to get

> > lessons on the shoes. She saw that he was developing a blister. I

> > asked for the shoes with the open back that I had found on the

> > Markell site. She ordered these, however by this time there were

> > several blisters on both feet-seemingly from the padding added by

> > the orthotist and stitching on the back of the shoe. One foot was

> > so severe that we had to stop with the shoes and he has a

> > prescription to help heel the blisters. While with the orthotist,

> > she could not figure out why 2 pairs of the same size shoe looked so

> > different. I contacted Markell and discovered that the shoes we

> > were given were quite out dated, and had we been given the shoe

> > currently available we could have avoided this. So Logan has been

> > out of the shoes since Thurs and we see the ortho on Tues. I was

> > just told to do some stretching with his foot. I am worried that we

> > are losing ground and he has suffered unnecissarily. We are in CT

> > and there are no dr's on the Ponseti list. Is there anyone on in

> > this group that has had a similar experience or could recomend a dr

> > in CT?

> >

>

>

>

>

>

>

>

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I live in MA, and I'm very happy with our doctor, Dr. Mahan at Children's

Hospital in Boston. She is not on the Ponsetti list, but works in conjunction

with Dr. Kasser, who is on the list. We had a bad experience out at UMASS in

Worcester, so we just switched recently.

- Michele

5/18/02 and Maddie 9/6/05 bilateral clubfeet

erl81105 wrote:

Hello, I am new to the group and looking for advice. My son Logan

was born 8/11/05. Despite several level 2 US, we did not know about

the unilateral club foot until he was born. We had not heard of

club foot and were led to believe it was no big deal, just a few

casts and all would be well. We went to the ortho recomended by our

ped and felt he was quite knowlegeable. He told us about the serial

casting and the posibility of his heel cord being cut. We did about

4 weeks of casting, then the heel cord was cut. After that cast

came off we were fitted for shoes. Logan screamed for about 24

hours with the FAB, then was generally unhappy for several days. We

had trouble figuring out if his heel was down and back and he was

developing a blister. We went to see the orthotist twice to get

lessons on the shoes. She saw that he was developing a blister. I

asked for the shoes with the open back that I had found on the

Markell site. She ordered these, however by this time there were

several blisters on both feet-seemingly from the padding added by

the orthotist and stitching on the back of the shoe. One foot was

so severe that we had to stop with the shoes and he has a

prescription to help heel the blisters. While with the orthotist,

she could not figure out why 2 pairs of the same size shoe looked so

different. I contacted Markell and discovered that the shoes we

were given were quite out dated, and had we been given the shoe

currently available we could have avoided this. So Logan has been

out of the shoes since Thurs and we see the ortho on Tues. I was

just told to do some stretching with his foot. I am worried that we

are losing ground and he has suffered unnecissarily. We are in CT

and there are no dr's on the Ponseti list. Is there anyone on in

this group that has had a similar experience or could recomend a dr

in CT?

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ee,

I was wanting to ask you about the sores that had - I understand

they were really bad, did they leave scars? I am still worried about

Sammy's heels, his sores, especially on his Non-CF foot were really

bad and you can still see the scars from those sores. He's still only

13 months so I keep hoping that they will fade but I do worry about

it. I kick myself daily for not being smart enough to keep that from

happening, and I worry about that scar tissue.

Thanks,

> >

> > Hello, I am new to the group and looking for advice. My son Logan

> > was born 8/11/05. Despite several level 2 US, we did not know about

> > the unilateral club foot until he was born. We had not heard of

> > club foot and were led to believe it was no big deal, just a few

> > casts and all would be well. We went to the ortho recomended by our

> > ped and felt he was quite knowlegeable. He told us about the serial

> > casting and the posibility of his heel cord being cut. We did about

> > 4 weeks of casting, then the heel cord was cut. After that cast

> > came off we were fitted for shoes. Logan screamed for about 24

> > hours with the FAB, then was generally unhappy for several days. We

> > had trouble figuring out if his heel was down and back and he was

> > developing a blister. We went to see the orthotist twice to get

> > lessons on the shoes. She saw that he was developing a blister. I

> > asked for the shoes with the open back that I had found on the

> > Markell site. She ordered these, however by this time there were

> > several blisters on both feet-seemingly from the padding added by

> > the orthotist and stitching on the back of the shoe. One foot was

> > so severe that we had to stop with the shoes and he has a

> > prescription to help heel the blisters. While with the orthotist,

> > she could not figure out why 2 pairs of the same size shoe looked so

> > different. I contacted Markell and discovered that the shoes we

> > were given were quite out dated, and had we been given the shoe

> > currently available we could have avoided this. So Logan has been

> > out of the shoes since Thurs and we see the ortho on Tues. I was

> > just told to do some stretching with his foot. I am worried that we

> > are losing ground and he has suffered unnecissarily. We are in CT

> > and there are no dr's on the Ponseti list. Is there anyone on in

> > this group that has had a similar experience or could recomend a dr

> > in CT?

> >

>

>

>

>

>

>

>

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His 1st (non Ponseti) tenotomy left bad scars, three in a row up each heel -

then the FAB came along and sort of chews those lump/scars off his heels and did

their own work, so ya, he has scars on his heels but over time they have

lessened quite a bit. No other shoes have ever torn him back open, so it's not

a factor anymore.

s.

Re: blisters

ee,

I was wanting to ask you about the sores that had - I understand

they were really bad, did they leave scars? I am still worried about

Sammy's heels, his sores, especially on his Non-CF foot were really

bad and you can still see the scars from those sores. He's still only

13 months so I keep hoping that they will fade but I do worry about

it. I kick myself daily for not being smart enough to keep that from

happening, and I worry about that scar tissue.

Thanks,

> >

> > Hello, I am new to the group and looking for advice. My son Logan

> > was born 8/11/05. Despite several level 2 US, we did not know about

> > the unilateral club foot until he was born. We had not heard of

> > club foot and were led to believe it was no big deal, just a few

> > casts and all would be well. We went to the ortho recomended by our

> > ped and felt he was quite knowlegeable. He told us about the serial

> > casting and the posibility of his heel cord being cut. We did about

> > 4 weeks of casting, then the heel cord was cut. After that cast

> > came off we were fitted for shoes. Logan screamed for about 24

> > hours with the FAB, then was generally unhappy for several days. We

> > had trouble figuring out if his heel was down and back and he was

> > developing a blister. We went to see the orthotist twice to get

> > lessons on the shoes. She saw that he was developing a blister. I

> > asked for the shoes with the open back that I had found on the

> > Markell site. She ordered these, however by this time there were

> > several blisters on both feet-seemingly from the padding added by

> > the orthotist and stitching on the back of the shoe. One foot was

> > so severe that we had to stop with the shoes and he has a

> > prescription to help heel the blisters. While with the orthotist,

> > she could not figure out why 2 pairs of the same size shoe looked so

> > different. I contacted Markell and discovered that the shoes we

> > were given were quite out dated, and had we been given the shoe

> > currently available we could have avoided this. So Logan has been

> > out of the shoes since Thurs and we see the ortho on Tues. I was

> > just told to do some stretching with his foot. I am worried that we

> > are losing ground and he has suffered unnecissarily. We are in CT

> > and there are no dr's on the Ponseti list. Is there anyone on in

> > this group that has had a similar experience or could recomend a dr

> > in CT?

> >

>

>

>

>

>

>

>

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Hi ,

So sorry to hear that you and Logan are having such a difficult time

with the Markell shoes!! It may be that Logan will need the

's but it also may be that Logan's feet were never properly

and fully corrected, you will find this out when you see Dr. H =).

I think it is very wise of you to take Logan to see Dr. Herzenberg!

He is one of the best and it sounds like at this point, Logan really

needs his expert hands!

Big red flag for your doctor to tell you to start at 45 and work up

to 70 degrees in the shoes!!! The shoes are NOT meant to do that at

all, they cannot possibly function that way. Look at how the casts go

all the way up the thigh, and are worn for a solid week, this is the

only way to bring the foot to the desired 70 degree outward rotation.

For your doctor to tell you that you could use the shoes to bring

Logan from 45 to 70 degrees is just NOT right!! This will cause him

more discomfort, blisters and will just not work!

We are really glad to hear that you are seeking a second opinion with

Dr. Herzenberg! Be sure to tell his asst. what has been going on and

that it is very important for Logan to be seen right away!!

Best of luck and please let us know when you get your appt!

& Grace 15 mos

unilateral right FAB 13 hrs

> > >

> > > Hello, I am new to the group and looking for advice. My son

Logan

> > > was born 8/11/05. Despite several level 2 US, we did not know

about

>

> > > the unilateral club foot until he was born. We had not heard

of

> > > club foot and were led to believe it was no big deal, just a

few

> > > casts and all would be well. We went to the ortho recomended by

our

> > > ped and felt he was quite knowlegeable. He told us about the

serial

>

> > > casting and the posibility of his heel cord being cut. We did

about

>

> > > 4 weeks of casting, then the heel cord was cut. After that

cast

> > > came off we were fitted for shoes. Logan screamed for about 24

> > > hours with the FAB, then was generally unhappy for several

days. We

>

> > > had trouble figuring out if his heel was down and back and he

was

> > > developing a blister. We went to see the orthotist twice to

get

> > > lessons on the shoes. She saw that he was developing a

blister. I

> > > asked for the shoes with the open back that I had found on the

> > > Markell site. She ordered these, however by this time there

were

> > > several blisters on both feet-seemingly from the padding added

by

> > > the orthotist and stitching on the back of the shoe. One foot

was

> > > so severe that we had to stop with the shoes and he has a

> > > prescription to help heel the blisters. While with the

orthotist,

> > > she could not figure out why 2 pairs of the same size shoe

looked so

>

> > > different. I contacted Markell and discovered that the shoes

we

> > > were given were quite out dated, and had we been given the shoe

> > > currently available we could have avoided this. So Logan has

been

> > > out of the shoes since Thurs and we see the ortho on Tues. I

was

> > > just told to do some stretching with his foot. I am worried

that we

>

> > > are losing ground and he has suffered unnecissarily. We are in

CT

> > > and there are no dr's on the Ponseti list. Is there anyone on

in

> > > this group that has had a similar experience or could recomend

a dr

> > > in CT?

> > >

> >

> >

> >

> >

> >

> >

> >

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I am new to this so I am afraid I can not address some of your issues

as well as some others here but I will encourage you to seek a second

opinion. My 5 month old was seeing a pediatric orthopedic surgeon who

was highly recommended and something told me that I needed a second

opinion. I am so glad I went for one! We are seeing Dr. Herzenberg

now and I can not say enough good things about him. We are very

pleased with the care he is giving our son.

6-19-05 LCF

> > >

> > > Hello, I am new to the group and looking for advice. My son

Logan

> > > was born 8/11/05. Despite several level 2 US, we did not know

about

>

> > > the unilateral club foot until he was born. We had not heard

of

> > > club foot and were led to believe it was no big deal, just a

few

> > > casts and all would be well. We went to the ortho recomended by

our

> > > ped and felt he was quite knowlegeable. He told us about the

serial

>

> > > casting and the posibility of his heel cord being cut. We did

about

>

> > > 4 weeks of casting, then the heel cord was cut. After that

cast

> > > came off we were fitted for shoes. Logan screamed for about 24

> > > hours with the FAB, then was generally unhappy for several

days. We

>

> > > had trouble figuring out if his heel was down and back and he

was

> > > developing a blister. We went to see the orthotist twice to

get

> > > lessons on the shoes. She saw that he was developing a

blister. I

> > > asked for the shoes with the open back that I had found on the

> > > Markell site. She ordered these, however by this time there

were

> > > several blisters on both feet-seemingly from the padding added

by

> > > the orthotist and stitching on the back of the shoe. One foot

was

> > > so severe that we had to stop with the shoes and he has a

> > > prescription to help heel the blisters. While with the

orthotist,

> > > she could not figure out why 2 pairs of the same size shoe

looked so

>

> > > different. I contacted Markell and discovered that the shoes

we

> > > were given were quite out dated, and had we been given the shoe

> > > currently available we could have avoided this. So Logan has

been

> > > out of the shoes since Thurs and we see the ortho on Tues. I

was

> > > just told to do some stretching with his foot. I am worried

that we

>

> > > are losing ground and he has suffered unnecissarily. We are in

CT

> > > and there are no dr's on the Ponseti list. Is there anyone on

in

> > > this group that has had a similar experience or could recomend

a dr

> > > in CT?

> > >

> >

> >

> >

> >

> >

> >

> >

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I can highly recommend Dr. Mack at Shriner's in Springfield, MA,

which is not far from Hartford, CT. He follows the Ponseti method

exactly and has done wonders with my son's bilateral clubfeet. Here

is their website http://www.shrinershq.org/shc/springfield/ It may

take a month to get an appointment, but don't settle for any other

doctor there, Dr. Mack is the only Ponseti doctor there.

Depending on how far away you are you might want to consider Angel

Flight, http://www.angelflightamerica.org/index.php They will fly

you there for free and Shriner's will arrange a van to pick you up

at the airport and take you back. They are really wonderful there

and everything is free. Let me know if you end up going there and

feel free to e-mail me personally for more info.

and 11/10/03 bilateral cf dbb 14/7

>

> Hello, I am new to the group and looking for advice. My son Logan

> was born 8/11/05. Despite several level 2 US, we did not know

about

> the unilateral club foot until he was born. We had not heard of

> club foot and were led to believe it was no big deal, just a few

> casts and all would be well. We went to the ortho recomended by

our

> ped and felt he was quite knowlegeable. He told us about the

serial

> casting and the posibility of his heel cord being cut. We did

about

> 4 weeks of casting, then the heel cord was cut. After that cast

> came off we were fitted for shoes. Logan screamed for about 24

> hours with the FAB, then was generally unhappy for several days.

We

> had trouble figuring out if his heel was down and back and he was

> developing a blister. We went to see the orthotist twice to get

> lessons on the shoes. She saw that he was developing a blister.

I

> asked for the shoes with the open back that I had found on the

> Markell site. She ordered these, however by this time there were

> several blisters on both feet-seemingly from the padding added by

> the orthotist and stitching on the back of the shoe. One foot was

> so severe that we had to stop with the shoes and he has a

> prescription to help heel the blisters. While with the orthotist,

> she could not figure out why 2 pairs of the same size shoe looked

so

> different. I contacted Markell and discovered that the shoes we

> were given were quite out dated, and had we been given the shoe

> currently available we could have avoided this. So Logan has been

> out of the shoes since Thurs and we see the ortho on Tues. I was

> just told to do some stretching with his foot. I am worried that

we

> are losing ground and he has suffered unnecissarily. We are in CT

> and there are no dr's on the Ponseti list. Is there anyone on in

> this group that has had a similar experience or could recomend a

dr

> in CT?

>

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  • 2 months later...

Amber,

if it's " just " a blister, there are things you can do while still using the FAB

to protect the foot and avoid relapses...but if it's the start of a

pressure-sore, that's another matter. Have you looked at any of the tips

documents in the files/links? They can help you sort it out with ideas.

s.

Blisters

Keegan had his last cast removed on January 24th, and had the Markell

shoes with the DBB put on the very next day. I noticed tonight while I

was bathing him that he has a blister on his right heel.

It's 11pm here, so it's too late to call our doctor. We called the

health line, and they don't know very much about clubfoot, so they

weren't much help. All she said was to put a sterile bandage over it.

He's been a lot more cranky lately, and it's clear to me now as to

why. I don't want to put the shoes back on, and so far from what I

have read, I shouldn't anyways. Not until it's healed. So what am I

supposed to do? Just let his poor little feet rest overnight, and then

call our doctor tomorrow?

Gah. If it's not one thing, it's something else with us. Any advice

would be greatly appreciated.

- Amber

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Amber,

Blisters are caused by friction. This means his shoes are not tight

enough. Now that he's got a blister, it isn't the best option to

keep putting them on, especially if you're not getting them tight enough.

Some blisters can heal while in the shoes. But you MUST make sure

that you're getting them on properly and the heel is deeply seated in

the shoe.

Here's an option for you. Put a bandaid over his blister. Then mark

on the bandaid with a water based marker (crayola works great) so

that it's wet and open the shoe up completely. Then lay his foot

into the shoe and make sure the heel is deep down in there, press

into the back of the shoe. With the shoe completely open, this will

show you where his foot should be if it was seated properly. Then,

look inside the shoe and see where the mark is. This spot can be

removed from the shoe with a sharp knife (exacto, razor blade,

etc.) and you can put the shoes back on and if you can get that foot

seated properly the area that may rub the blister is gone. The

blister heals. you have a holed shoe but that's ok. They will hold up fine.

Have you read the tips .pdf? If not, read that and follow the

instructions carefully. With the hole, you can see inside the shoe

to know if the heel is down. Once you get that, you should be able

to get one or two holes tighter on the strap. At this point, make

sure the shoes are tight, tight, tight.

LMK if you have any other questions. I will email you the file here

in a second so you have it.

hang in there! We're here to help, let us know how it goes.

Kori

At 08:05 PM 2/2/2006, you wrote:

>Keegan had his last cast removed on January 24th, and had the Markell

>shoes with the DBB put on the very next day. I noticed tonight while I

>was bathing him that he has a blister on his right heel.

>It's 11pm here, so it's too late to call our doctor. We called the

>health line, and they don't know very much about clubfoot, so they

>weren't much help. All she said was to put a sterile bandage over it.

>

>He's been a lot more cranky lately, and it's clear to me now as to

>why. I don't want to put the shoes back on, and so far from what I

>have read, I shouldn't anyways. Not until it's healed. So what am I

>supposed to do? Just let his poor little feet rest overnight, and then

>call our doctor tomorrow?

>

>Gah. If it's not one thing, it's something else with us. Any advice

>would be greatly appreciated.

>

>- Amber

>

>

>

>

>

>

>

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  • 3 weeks later...

My daughter too gets the red marks. Where the middle strap is, right? It wont go

away,but keep on padding the feet cause they can turn into sores/blisters. I use

MOLE FOAM. More padding. I also use 2nd Skin Burn Pads over the red marks, and

Kling-Gauze (a special made top gauze tahts real soft like cotton). Let me know

if You find something that works better!

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

---------------------------------

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