Re: New Member-seeking opinions

[Guest guest]

That is so good to hear - the orthotist didn't give any

indication on what to expect- but we are believing we will see a

huge improvement!

Take care!

>

> Just wanted to share that my son did not get his helmet until he

was 9.5 months old.  He had severe brachy and plagio.  His starting

cephalic index was 108% and he had 10mm of asymmetry.  His cephalic

index at his 14 week visit was down to 89% and he has 0mm asymmetry

(he reached 0mm at his 9 week visit).  Also, at his 14 week visit, I

thought (hoped) we would be graduating, but my orthotist said that

even though he was a little over 12 months old, he still is having

significant growth at each visit.  She said as long as he is

producing good numbers, we might as well leave it on another 3 weeks

and reevaluate then.   I am telling you all this to give you hope

that it is not too late.  I was very skeptical at first and thought

that my son was too old, but he has had significant improvement. 

>

>

>

> Re: New Member-seeking opinions

>

>

> I think it is very important to practice Back to Sleep. My son who

> always slept on his back never moved at night did not delevop this

> problem. For I feel the problem had to do with not getting

> enough tummy time. My husband got injured a week after she was

born

> and then had surgery when she was 6weeks old. With my son it was

> just him and I at home for those first months and I was strict

about

> tummy time etc. Poor came into the world and then we had

all

> this turmiol and while she got lots of attention espciallly from

> Daddy who held her tons we just did not get on the floor with her

> very much and I feel guilty about that and that we were guilty of

> using the swing maybe a bit too much. That being said, I know I

can't

> hop in a time machine and fix it so I feel that I am now doing

what

> needs to be done to help prevent any problems that could spring up

in

> her future. Also, I knew nothing about this and thought the flat

> spot would work itself out. I mentioned the whole thing to our

Pedi

> as an afterthought at her 4mos visit and then hemmed and hawed

over

> if I should even bother about making the appt for the scan.

>

> So now I look at myself as an advocate and educator with this. I

> have friends having babies and have told them to keep an eye those

> babies heads and ask their peds to take a look every visit. In

this

> day and age no matter how good your Dr's are or how much you like

> them you must advocate for your own healthcare and as parents that

of

> your kids. We have a ped who is consistanly listed as one of the

top

> docs in the state and even he didn't catch it.

>

> So please don't feel guilty. There are no perfect moms. We all ae

> just doing our best in this world and the Back To Sleep campaign

is a

> wonderful campaign. As I say to my friends I would rather have put

> " Back to Sleep " and have her have to wear the helmet all

over

> again then what the horrible alternative could be. Of course, now

> that she can roll over she is a total side to almost stomach

sleeper

> anyway and moves all around but I still put her on her back to

start.

>