Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 ,l Sorry to hear about college. I admire you for going. I have twins that are going to be seniors next year. They are majoring in biology in hopes in go to med. school. I see how it is on, them with all of the studying, and know there is no way I could go now. Glad I went when I was young because I don't have the energy of mind now. It is great that you were doing so well and I am sure you will be back in the fall. Take care, okay update on me.... Well I am titrated up to the full dose of Cellcept now and off the steriods.today. I am taking 2000 mg of cellcept a day.. two 500mg morning and two 500mg at bedtime. Last week i was to be off the predisone but when i got down to 10 & 10 the severe pain in my neck, back shoulders and arms and legs started again. Now i am off steriods today totally and so far not much pain as last week. I hope the cellcept is kicked in now. I had to withdraw from college for the semester... so the depression is setting in. I was on the deans list two times in the past year and so proud of myself and i look at my awards letter on the wall and just cry. but my body just is not letting me do what i want right now. since I withdrew for all classes I cannot go back to class until fall. and hopefully i can get my fin aid back. I will have to submit my drs excuse and letters to the fin board to see if they will reinstate my aid for fall. so far no sideffects from the cellcept , cross your fingers for me. the only thing i do notice is i get a werid taste in my mouth after i take it. the first time i took the two at one time.. my throat felt funny and i thought i was closing up with allerigic reaction..and took 3 benadryl and i was fine then the second time i took the two i still had the taste but not the feeling of any reaction.. I think i panic the first time..i took a xananx and was fine. But with these meds you get so worked up because of there sideffects and you almost make yourself feel like your having a reaction. The good thing is I am not getting sick like i did with the imuran. for 7 years i was throwing up several times a week. no matter how i took them. Hope this email finds everyone in a pain free day and stay clear of big crowds because of this swine flu.. since most of us do not have immune systems. from the meds. love to you all and many hugs Many Blessings A. Big savings on Dell XPS Laptops and Desktops! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 , I to was saddened to read that you had to stop your courses. Things aren't fair wit this disease, and I know that we constantly find ourself adapting, time and again. You know how very proud we are of you- in managing to go back, and not just do well- but do extremely well! Deans lists only happen when people really apply themself-- and you have the passion. Now-- we just need to all visualize you with the health regained by Fall semester. Hugs, Tracie Subject: Re: okay update on me....To: Neurosarcoidosis Date: Wednesday, April 29, 2009, 7:13 PM ,l Sorry to hear about college. I admire you for going. I have twins that are going to be seniors next year. They are majoring in biology in hopes in go to med. school. I see how it is on, them with all of the studying, and know there is no way I could go now. Glad I went when I was young because I don't have the energy of mind now. It is great that you were doing so well and I am sure you will be back in the fall. Take care, okay update on me.... Well I am titrated up to the full dose of Cellcept now and off the steriods.today. I am taking 2000 mg of cellcept a day.. two 500mg morning and two 500mg at bedtime. Last week i was to be off the predisone but when i got down to 10 & 10 the severe pain in my neck, back shoulders and arms and legs started again. Now i am off steriods today totally and so far not much pain as last week. I hope the cellcept is kicked in now. I had to withdraw from college for the semester... so the depression is setting in. I was on the deans list two times in the past year and so proud of myself and i look at my awards letter on the wall and just cry. but my body just is not letting me do what i want right now. since I withdrew for all classes I cannot go back to class until fall. and hopefully i can get my fin aid back. I will have to submit my drs excuse and letters to the fin board to see if they will reinstate my aid for fall. so far no sideffects from the cellcept , cross your fingers for me. the only thing i do notice is i get a werid taste in my mouth after i take it. the first time i took the two at one time.. my throat felt funny and i thought i was closing up with allerigic reaction..and took 3 benadryl and i was fine then the second time i took the two i still had the taste but not the feeling of any reaction.. I think i panic the first time..i took a xananx and was fine. But with these meds you get so worked up because of there sideffects and you almost make yourself feel like your having a reaction. The good thing is I am not getting sick like i did with the imuran. for 7 years i was throwing up several times a week. no matter how i took them. Hope this email finds everyone in a pain free day and stay clear of big crowds because of this swine flu.. since most of us do not have immune systems. from the meds. love to you all and many hugs Many Blessings A. Big savings on Dell XPS Laptops and Desktops! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009  I too am sorry to hear about school. I am going in the fall but I am doing the courses right here at home. I am taking medical transcriptionist. You will be able to go back in the Fall. I know we all will pray for you and you know how good prayer is. I believe in you and the system. Take care and rest until then. Jackie okay update on me.... Well I am titrated up to the full dose of Cellcept now and off the steriods.today. I am taking 2000 mg of cellcept a day.. two 500mg morning and two 500mg at bedtime. Last week i was to be off the predisone but when i got down to 10 & 10 the severe pain in my neck, back shoulders and arms and legs started again. Now i am off steriods today totally and so far not much pain as last week. I hope the cellcept is kicked in now. I had to withdraw from college for the semester... so the depression is setting in. I was on the deans list two times in the past year and so proud of myself and i look at my awards letter on the wall and just cry. but my body just is not letting me do what i want right now. since I withdrew for all classes I cannot go back to class until fall. and hopefully i can get my fin aid back. I will have to submit my drs excuse and letters to the fin board to see if they will reinstate my aid for fall. so far no sideffects from the cellcept , cross your fingers for me. the only thing i do notice is i get a werid taste in my mouth after i take it. the first time i took the two at one time.. my throat felt funny and i thought i was closing up with allerigic reaction..and took 3 benadryl and i was fine then the second time i took the two i still had the taste but not the feeling of any reaction.. I think i panic the first time..i took a xananx and was fine. But with these meds you get so worked up because of there sideffects and you almost make yourself feel like your having a reaction. The good thing is I am not getting sick like i did with the imuran. for 7 years i was throwing up several times a week. no matter how i took them. Hope this email finds everyone in a pain free day and stay clear of big crowds because of this swine flu.. since most of us do not have immune systems. from the meds. love to you all and many hugs Many Blessings A. Big savings on Dell XPS Laptops and Desktops! Quote Link to comment Share on other sites More sharing options...
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