Re: I need some tough love right now. - Just Venting. Nothing to do

[Guest guest]

I turned out to be really allergic to either asacol or nystatin (still not sure

which), but I had to stop both. If it really was the asacol, I didn't exhibit

any allergic response at first, it took a month to develop the allergy. With

these autoimmune disorders, the T2 response is revved up, so it makes sense that

we'd get more and more allergies throughout the years. I've also read that this

seems to be happening with the general population. We're just the lucky ones

that really notice it! ;b

Kat

27

UC since June 09

SCD since Feb 10

Prednisone 10mg, acyclovir, multivitamin

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> MY doc is not very challenging, I tell him what I want to do and he nodds his

head and writes the script. I stay with him because he doesn't put up a fight

whereas the other GI I went to say it's his way or get out, so I left.

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> I've taken all these meds before, and the pred didn't do anything last time,

but I take it just in case. We'll see.

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> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

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> To: BTVC-SCD

> From: My-Stitches@...

> Date: Tue, 23 Mar 2010 17:46:08 -0800

> Subject: Re: I need some tough love right now. - Just Venting.

Nothing to do

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> Isn't it the truth. Once my doctor (when things were very bad)

> asked me if I was depressed and I said I didn't think I was clinically

> depressed but I sure was discouraged and gloomy most of the time. He

> replied, " Well, with what you are up against, if you were sitting

> here feeling cheerful about it all I'd have to send you to a

> Psychiatrist. "

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> One other thought, . I don't know if your doctor is smart

> enough to do this or not, but since you are on several meds, I am

> wondering if you could possibly just be allergic or having a toxic

> reaction from one of the meds itself. I say this because a couple months

> ago I was put on Diflucan to be followed by Nystatin. NO problems at all

> with the Diflucan and since they had my on Nystatin years ago, I figured

> that would be easy-peasy. When I started sneaking very slowly into

> the Nystatin I felt worse and worse and worse. By the time I got up

> to the full dose and saw my doctor again I told him this die-off was

> really really hard to take and in fact I was back feeling as bad as

> pre-SCD. I asked if I could take a smaller dose for longer to make the

> die-off more bearable. He said, " Hmmm, " and after thinking

> about it a bit said my description did not sound like die-off. He decided

> it sounded more like allergy or toxic reaction to the Nystatin (not

> die-off from it). So he told me to keep on wiht the Diflucan, drop the

> Nystatin and see if I started feeling better. I felt much better in two

> days! I'm so glad I asked because otherwise I would have just

> figured this was the expected candida die-off and I'd have to put up with

> it for a few months. Just an idea, because people can actually be

> allergic to a med itself, not side-effects or even fillers.

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> I used to have periods of depressions before I was diagnosed, during

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> years I was in denial that I was sick. And then it took me years and

> years after that to realize that that level of depression came from

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> illness and was not part of my behavioral-psychological makeup. It

> came from a chemical deficit or imbalance, which is a whole 'nother

> thing. They vanished after I began treatment.

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