Re: what to do when school ends?

[Guest guest]

Cathy,

You mentioned his food allergies. Have you heard of the sight:

http://www.specialfoods.com/ There is a huge amount of info about food

allergies/intollerances and autism. Take a look!!!

We are just getting ready to do this with our 9 1/2 year old PDD-NOS. Food

allergies are without a question a large pert her problems. I believe that

until we can clear her of the effect that they have on her that we could

medicate her to death and it would still not change her behavior and delays!!

Just some info that might help. Beth

At 08:16 AM 07/27/2001 -0400, you wrote:

>I wish for once I could be the one giving advice because of success I have

>had with my son now 7.5, nonverbal, very low functioning, numerous food

>allergies etc. Once again I need advice and guidance.

>Although progress is slow Sam is making some at his school. He is much more

>calm there because of all the structure and predictability. But when he

gets

>home pinching aggressing rocking all start. I have two other children who

>need to go places and there isn't the same atmosphere here at home as I am

>sure others of you experience. I do have sitters that come and help me but

>there isn't a lot of things he can do. I know the lack of communication

>skills is what motivates his aggression most of the time. He is really

>starting to hurt us all. I can't provide the same setting as school but I

>don't know what to do. What do you guys do with your kids (that are like

>Sam) after school? I guess I need a home program but who should provide

>that. I do have a home trainer that comes for 2 hours every other week but

>that isn't enough. My public school is paying for the out of town placement

>he is in and I don't think they are going to pay for anything else. Where

>would I get someone to set up a home program? His school isn't responding

to

>this idea. I have tried things before where they teach me but after a month

>I just can't do it anymore. I would really appreciate some suggestions or

>ideas of things to do with him. All he likes to do is jump on our beds, and

>eat and listen to music. Help please. thanks Cathy

>

>

>

[Guest guest]

Have you checked into Respite care? I think every state is different but

respite will provide someone to come to your house whatever hours he is

determined to need them, which may in your case be several hours a day.

what to do when school ends?

> I wish for once I could be the one giving advice because of success I have

> had with my son now 7.5, nonverbal, very low functioning, numerous food

> allergies etc. Once again I need advice and guidance.

> Although progress is slow Sam is making some at his school. He is much

more

> calm there because of all the structure and predictability. But when he

gets

> home pinching aggressing rocking all start. I have two other children who

> need to go places and there isn't the same atmosphere here at home as I am

> sure others of you experience. I do have sitters that come and help me

but

> there isn't a lot of things he can do. I know the lack of communication

> skills is what motivates his aggression most of the time. He is really

> starting to hurt us all. I can't provide the same setting as school but I

> don't know what to do. What do you guys do with your kids (that are like

> Sam) after school? I guess I need a home program but who should provide

> that. I do have a home trainer that comes for 2 hours every other week but

> that isn't enough. My public school is paying for the out of town

placement

> he is in and I don't think they are going to pay for anything else. Where

> would I get someone to set up a home program? His school isn't responding

to

> this idea. I have tried things before where they teach me but after a

month

> I just can't do it anymore. I would really appreciate some suggestions or

> ideas of things to do with him. All he likes to do is jump on our beds,

and

> eat and listen to music. Help please. thanks Cathy

>

>

>

[Guest guest]

I don't really know a lot about what I will tell you, but I do know

someone who does.

I don't know if this is in every state or just a few, but there is

something called a Personal Care Assistant. I know someone who has

one of these people come to her house for basically all day, to help

her son with his daily activities, therapies, etc. The PCA has even

attended doctor appts with the mother and son. This person is paid

for by either the school district or SSI, the mother pays nothing. If

you/your son qualify for a PCA, then you can have one, for the hours

you would need, like before school to get ready, after school, etc.

My friend interviews for her PCA, finds someone she likes, and then

that person signs up for the program. This allows her to select

the person who will work with her son.

Anyway if you would like to send me an email, I can forward it to this

person and she can tell you all about a PCA. Or perhaps there are

other people on this message board here, who know about it also.

But it does sound to me, like a PCA would be very helpful for your

situation.

[Guest guest]

Just a suggestion and you probably already do this but we found the PECS

system of communication very helpfull for facilitating communication untill

my son was able to make his needs known. It helped alot with structure and

his aggressiveness during this period. F

what to do when school ends?

> I wish for once I could be the one giving advice because of success I have

> had with my son now 7.5, nonverbal, very low functioning, numerous food

> allergies etc. Once again I need advice and guidance.

> Although progress is slow Sam is making some at his school. He is much

more

> calm there because of all the structure and predictability. But when he

gets

> home pinching aggressing rocking all start. I have two other children who

> need to go places and there isn't the same atmosphere here at home as I am

> sure others of you experience. I do have sitters that come and help me

but

> there isn't a lot of things he can do. I know the lack of communication

> skills is what motivates his aggression most of the time. He is really

> starting to hurt us all. I can't provide the same setting as school but I

> don't know what to do. What do you guys do with your kids (that are like

> Sam) after school? I guess I need a home program but who should provide

> that. I do have a home trainer that comes for 2 hours every other week but

> that isn't enough. My public school is paying for the out of town

placement

> he is in and I don't think they are going to pay for anything else. Where

> would I get someone to set up a home program? His school isn't responding

to

> this idea. I have tried things before where they teach me but after a

month

> I just can't do it anymore. I would really appreciate some suggestions or

> ideas of things to do with him. All he likes to do is jump on our beds,

and

> eat and listen to music. Help please. thanks Cathy

>

>

>