Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 yes it beautiful and where i am queit. not in city.. i live out in the country.. love the fall change of leaves and crisp cool air... enjoy ur trip out west this fall. i never was inCA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Marla, I am sorry your husband has been ill. Please be careful and take care of you too - you don't want to get run down and go into a flare. Is there someone who can help you? You guys are in my prayers. TerriG. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Terri, Thank you, our boys are young adults and they are helpful, and my daughter is almost 14 a big help. So far, so good. Thanks for your prayers, Marla Marla, I am sorry your husband has been ill. Please be careful and take care of you too - you don't want to get run down and go into a flare. Is there someone who can help you? You guys are in my prayers. TerriG. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Marla, Can you take the Tussinex Pearls for cough? Those seem to work the best for me. That and the Mucinex DM. Gets the gunk up out of the lungs, and bronchials and quiets the cough. I'm thinking of you lady. Hugs, Tracie To: Neurosarcoidosis Sent: Saturday, October 24, 2009 7:50:12 PMSubject: Re: marla Thank you, I get Remicade on Wed. and I can't wait, I've coughed so much my ribs ache, more the muscles aroundthem, I'm sure with time this coughing will go away. Thanks for the hugs. Marla On Sat, Oct 24, 2009 at 11:57 AM, <JessicAbouhamama@ aol.com> wrote: I am sorry to hear of ur infections.. . I hope the meds start to work and u get feeling somewhat well again.. many hugs and blessings and a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Good luck on wed.. hope ur rhemacaid goes well and u do not feel to bad aftewards many hugs and blessings and a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Tracie, you just reminded me of the tussinex pearls, I use to get them and they did work, I do use Robitussin DM extra strength and that works good too. I'm not coughing too much during the day, as long as I stay hydrated, but in the morning, I cough for awhile getting all the gunk up, then I'm OK. How are you doing, with winter coming I'm sure you like me are not happy about the cold, I hope you are doing better going into the winter. What do you think about the H1N1 flu shot?? I have to ask my doctor, but I've been so sick for the past 3 weeks, know I can't get while sick, did you get one?? Hugs to you my friend, Marla Marla, Can you take the Tussinex Pearls for cough? Those seem to work the best for me. That and the Mucinex DM. Gets the gunk up out of the lungs, and bronchials and quiets the cough. I'm thinking of you lady. Hugs, Tracie To: Neurosarcoidosis Sent: Saturday, October 24, 2009 7:50:12 PMSubject: Re: marla Thank you, I get Remicade on Wed. and I can't wait, I've coughed so much my ribs ache, more the muscles aroundthem, I'm sure with time this coughing will go away. Thanks for the hugs. Marla On Sat, Oct 24, 2009 at 11:57 AM, <JessicAbouhamama@ aol.com> wrote: I am sorry to hear of ur infections.. . I hope the meds start to work and u get feeling somewhat well again.. many hugs and blessings and a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 's doctor has said she will have to get the regular flu shot. We get that one on Nov 5th and as soon as they have the H1N1 vaccine available they will give her that one as well. Her doctor seems quite concerned that with the meds and a depressed immune system that she get the shots. Matt I am sorry to hear of ur infections.. . I hope the meds start to work and u get feeling somewhat well again.. many hugs and blessings and a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 -Jackiie that was so funny. Sorry about the way I wrote it. Glad u dont get the H1N1 in the butt.lol That is the sarcoidosis workiing!---- Original Message -----To: Neurosarcoidosis Sent: Wednesday, October 28, 2009 9:17:41 PM GMT -05:00 US/Canada EasternSubject: Re: Re: marla  OMG when you asked about the shot I thought you meant something else. You used small letters and it looked like hini (as in butt) I am glad to get it cleared up so I can stop laughing. I have gotten it and I am fine. Jackie Re: marla > > > > > > > > I hope ur infusion goes well and get lots of rest ... > > Many blessings and a pain free day > > Please support Neurosarcoidosis society> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I got the shot two days ago with the dead virus for the H1N1. So far I feel fine. I will see my Neurosarcoidosis doctor in the morning and ask him if it was okay to get the shot (although it's too late). I didn't think to ask him first, I just jumped at the chance when I heard it was FINALLY in Alabama. I was so anxious not to miss my chance to get it that I just went and did it. Has anyone's doctor told them not to get the shot? > > Has anyone taken the hini shot? > Love to ya, > > Re: marla > > > > > > > > I hope ur infusion goes well and get lots of rest ... > > Many blessings and a pain free day > > Please support Neurosarcoidosis society > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 I saw my Rhuemy yesterday, got my Remicade, and talked to him about the flu shots, he said I should get both, not the nasal one, but injection H1N1, but he didn't have any in stock, and thought they would be getting more the second week in Nov. I see my Plumonologist that week so will see what he says and see if he has any. I'm glad you are feeling ok. I'm still dealing with the Remicade issues I have for the first 2-3 days after I get it, but after that, I'm good. Thanks for sharing. Marla I got the shot two days ago with the dead virus for the H1N1. So far I feel fine. I will see my Neurosarcoidosis doctor in the morning and ask him if it was okay to get the shot (although it's too late). I didn't think to ask him first, I just jumped at the chance when I heard it was FINALLY in Alabama. I was so anxious not to miss my chance to get it that I just went and did it. Has anyone's doctor told them not to get the shot? > > Has anyone taken the hini shot? > Love to ya, > > Re: marla > > > > > > > > I hope ur infusion goes well and get lots of rest ... > > Many blessings and a pain free day > > Please support Neurosarcoidosis society > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Matt, hang in there I know it's difficult to do, Im sick of being sick too. One day at at time. Have you tried contacting the drug companies for help, sometimes they'll help, especially I would think for someone like you caught in the middle?? I'm thinking of you with my most positive thoughts, Marla Marla Hi Marla i do have medicare but my co pays are high and Washington state wont help me because I make 12 dollars a year too much with my SSDI. I have appealed it 3 times and lost all three times. My co-pays cost me about 500 dollars a month. i have also unsuccessfully tried to get to see Dr Ragu at the Univ of Wash but have had no luck with that either. Beginning to feel hopeless and helpless. warn out from being sick. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Matt, contact your local Senator and Congressman and let them know this info-- they can go to bat for you, --also, Medicare has a special Part D drug assistance program where the income levels are a bit higher than MediCaid provides. Regardless of whether you meet that income level, apply anyhow-- they may very well pick up your Part D montly premium and lower your copays. You can apply at ANY time- not just during the open enrollment period. Here is the link: http://www.medicare.gov/navigation/medicare-basics/medical-and-drug-costs.aspx#PAP My parents qualified for this-- and instead of a $40 mo premium and copays of $33+ per prescription-- they pay $6.00 for each 30 days, and if they use the mail order option- they pay only $12.00 for each 90 days. Her montly premium is only $12. Mom can finally afford her insulin! She gets 90 day supplies where previously they paid $18 per vial-- she now gets 10 vials for $12. As for you being so tired of being sick-- I can fully understand-- and it is so important to get outside into the daylight (we still get the Vit D effect when it's rainy or overcast) as it is the UV that we need-- and that will help tremendously. Hang in there, and know that you have more than 600 of us that are pulling for you. Sincerely, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Thu, April 29, 2010 3:01:30 PMSubject: RE: Marla Matt, hang in there I know it's difficult to do, Im sick of being sick too. One day at at time. Have you tried contacting the drug companies for help, sometimes they'll help, especially I would think for someone like you caught in the middle?? I'm thinking of you with my most positive thoughts, Marla MarlaHi Marlai do have medicare but my co pays are high and Washington state wont help me because I make 12 dollars a year too much with my SSDI. I have appealed it 3 times and lost all three times. My co-pays cost me about 500 dollars a month. i have also unsuccessfully tried to get to see Dr Ragu at the Univ of Wash but have had no luck with that either. Beginning to feel hopeless and helpless. warn out from being sick. Quote Link to comment Share on other sites More sharing options...
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