Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Hi Phyllis, Your granddaughter is very young so it is good that you are addressing the issues of speech early. I hope that you have found a good speech therapist who is certified to teach apraxia. You are right that she will need extensive and intensive therapy. The more speech you can get for her the better. Each child with apraxia/dyspraxia is different and develops language at different times. In the beginning lessons the therapist may want to see how the tongue, lips and muscles of the mouth work together. She may suggest blowing bubbles, sucking through straws, using mouth stimulators, messaging the mouth muscles, etc. You can do all of this at home and the PST can concentrate on the speech. It depends on how well your granddaughter and the therapist work together and the results your little one makes. It's good too if you know someone who has been to the therapist and can tell you if the PST gets results. Just talking to mothers in the office can teach you a lot about different ST. Personally speaking, my granddaughter has been in therapy for over a year and she is 3 !/2 yrs. We have seen very little progress and just recently have added a new PST who seems to be very good. Many mothers have said that their child didn't have words until about 4 1/2 and then began talking and within a few year are talking very well and eventually are saying that the dyspraxia is resolved. The child is speaking very well. Best of luck and I hope I have answered some of your questions for you. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Phyllis- I am a mom of a 3 year old boy who has just been diagnosed with mild oral/verbal apraxia. He was previously diagnosed with hypotonia and sensory integration dysfunction (at about 10 months). From what I have read, more is much better than less. My school district put my son in an intergrated classroom with 3 days a week private speech and one day a week OT. We are going to supplement that with private speech therapy with a PROMPT therapist - she will meet with him twice a month and give us daily " homework " . In addition, we are looking into craniosacral therapy. He also takes ProEFA -- this has given him a dramatic increase in word approximations. He now speaks in full sentences. Unfortunately, this has not improved his clarity (he is still at least 90% unintelligible to stangers). We are hoping the appropriate speech therapy will work on the clarity. I understand you fears - I am not sure anyone can answer your question of, " will she ever talk clearly " . All children do differently. I am sure she will do great. She has been diagnosed young and has such a wonderful grandma. My advice would be to do as much as possible now while she is young -- it can only help. Good Luck! Lynaugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Bill Tone, your staff member, has called us twice to ask questions concerning our home, inspections and mold. We have answered all of his questions. We have also offered to come and speak before the Committee and to give you all of the town and state public records documents. They show a very compelling trail of corruption, lies, perjury and obstruction. We have also offered to take a lie detector test and invited you to our home so you can witness the devastation with your own eyes. Ken Moulton 508-771-6365 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 Hi Ron, In October, 2002 my 87 year old dad was diagnosed with multiple myeloma (bone marrow plasma cancer). He refused chemotherapy, and fortunately for us, I found Dr. Bihari and low dose naltrexone. Follow-up blood tests in April showed no disease progression and improvement in a few areas. Dad's appetite is good, he has not lost any weight, still drives his car and goes out every day, and hopes to play golf again soon. Reversing this type of cancer is a slow process, so he's sticking with the LDN at 4.5 mg. every night before going to bed without any adverse side effects at any time. My dad celebrated his 88th birthday on January 17th, enjoying life and looking forward to each new day. I highly recommend that you contact Dr. Bihari in New York City - 212-929-4196. I believe he has saved my father's life with LDN, and I am so grateful. You will be in our prayers; good luck and God Bless, Susie ----- Original Message ----- From: low dose naltrexone Sent: Wednesday, July 09, 2003 8:18 PM Subject: [low dose naltrexone] information Found LDN a week ago, have lung cancer, this list was mentioned so joined.Are their any lung cancer or other cancers beside MS? Need information, thistreatment may be one I need.Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 Yes. I have Chronic Lymphocytic Leukemia and some have Non-Hodgkins Lymphoma. Noland ----- Original Message ----- From: " " <ronlwilson@...> <low dose naltrexone > Sent: Wednesday, July 09, 2003 6:18 PM Subject: [low dose naltrexone] information > > Found LDN a week ago, have lung cancer, this list was mentioned so joined. > Are their any lung cancer or other cancers beside MS? Need information, this > treatment may be one I need. > Ron > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi Ron, My father 65 years was recently diagnosed with kidney cancer(renal cell carcinoma). As it is chemoresistant there is no systemic therapy to prevent recurrence, I did some research and came up with LDN, which my father has been on for 6 weeks. He has had no side effects, and feels good. He has his first CT scan since his kidney removal next week so we are praying it is clear. I got some personal testimonies from the kidney cancer group I belong to. 2 people have no evidence of disease and 1 had disease progression. I feel you have nothing to lose as it is such a low dose. It is impossible to know if it works with cancer apart from testimonies and ldn website, but is worth a shot I feel. It is uplifting to hear from all the people with MS it appears to be working for. If it can work for them why not cancer sufferers? lots of luck....... in Australia ----- Original Message ----- From: " " <ronlwilson@...> <low dose naltrexone > Sent: Thursday, July 10, 2003 10:18 AM Subject: [low dose naltrexone] information > > Found LDN a week ago, have lung cancer, this list was mentioned so joined. > Are their any lung cancer or other cancers beside MS? Need information, this > treatment may be one I need. > Ron > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi , Please let us know how your father is doing after his test. Marie ----- Original Message ----- From: " pete/lisa " <petelisa@...> " " <ronlwilson@...> Cc: <low dose naltrexone > Sent: Saturday, July 12, 2003 12:32 AM Subject: Re: [low dose naltrexone] information > Hi Ron, > My father 65 years was recently diagnosed with kidney cancer(renal cell > carcinoma). As it is chemoresistant there is no systemic therapy to prevent > recurrence, > I did some research and came up with LDN, which my father has been on for 6 > weeks. He has had no side effects, and feels good. > He has his first CT scan since his kidney removal next week so we are > praying it is clear. > I got some personal testimonies from the kidney cancer group I belong to. 2 > people have no evidence of disease and 1 had disease progression. I feel > you have nothing to lose as it is such a low dose. > It is impossible to know if it works with cancer apart from testimonies and > ldn website, but is worth a shot I feel. It is uplifting to hear from all > the people with MS it appears to be working for. > If it can work for them why not cancer sufferers? > lots of luck....... in Australia > > ----- Original Message ----- > From: " " <ronlwilson@...> > <low dose naltrexone > > Sent: Thursday, July 10, 2003 10:18 AM > Subject: [low dose naltrexone] information > > > > > > Found LDN a week ago, have lung cancer, this list was mentioned so > joined. > > Are their any lung cancer or other cancers beside MS? Need information, > this > > treatment may be one I need. > > Ron > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Ron: I would definitely try LDN. You have nothing to lose and everything to win. Also, I've seen a report or two that it has helped lung cancer patients significantly. Noland ----- Original Message ----- From: " pete/lisa " <petelisa@...> " " <ronlwilson@...> Cc: <low dose naltrexone > Sent: Friday, July 11, 2003 10:32 PM Subject: Re: [low dose naltrexone] information > Hi Ron, > My father 65 years was recently diagnosed with kidney cancer(renal cell > carcinoma). As it is chemoresistant there is no systemic therapy to prevent > recurrence, > I did some research and came up with LDN, which my father has been on for 6 > weeks. He has had no side effects, and feels good. > He has his first CT scan since his kidney removal next week so we are > praying it is clear. > I got some personal testimonies from the kidney cancer group I belong to. 2 > people have no evidence of disease and 1 had disease progression. I feel > you have nothing to lose as it is such a low dose. > It is impossible to know if it works with cancer apart from testimonies and > ldn website, but is worth a shot I feel. It is uplifting to hear from all > the people with MS it appears to be working for. > If it can work for them why not cancer sufferers? > lots of luck....... in Australia > > ----- Original Message ----- > From: " " <ronlwilson@...> > <low dose naltrexone > > Sent: Thursday, July 10, 2003 10:18 AM > Subject: [low dose naltrexone] information > > > > > > Found LDN a week ago, have lung cancer, this list was mentioned so > joined. > > Are their any lung cancer or other cancers beside MS? Need information, > this > > treatment may be one I need. > > Ron > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 TO BE REAL HONEST LIN, I THINK IT SOUNDS LIKE A RACKET....THERE IS ABSOLUTE NOW PROOF THAT THIS STUFF WORKS ANY BETTER THAN ALL THE OTHER SUPLEMENTS WE CHOSE TO TAKE. BY THE WAY WHERE DO YOU SPRAY IT??? AFTER SPENDING ALL THAT MONEY.......YOU'LL PROBABLY END UP SPRAYING IT YOU KNOW WHERE...LOL WOW LIN, WE AREN'T THIS DESPARATE...ARE WE? LOVE AND HUGS, SALLY ----- Original Message ----- From: Bruce Riker sally chrisman ; Guy Du Monte ; LarryGC Sent: Wednesday, August 06, 2003 12:33 PM Subject: Fw: information TELL ME WHAT YOU THINK. LIN ----- Original Message ----- From: Sam6041@... DaddysGirl63@... Sent: Wednesday, August 06, 2003 12:48 AM Subject: information Mylinda, This is my fifth time today trying to get you e-mailed. I was glad to get your e-mail, and even more glad to get the chance to help you. Before I get into the details, I want to ask you a question. Did you ever have any kind of illness that was caused by a herpes virus? When I went to the last SolutionsIE meeting it was learned that most people with M.S. have had one. I had mononucleosis in 1973. I talked to two other M.S. people, and they also had had an illness caused by the herpes virus. One had had mononucleosis and the other had had shingles. That`s interestingly scary. Anyway that information has improved the way SolutionsIE deals with M.S. The amount of $ Solutions costs is up to you. Any amount of SolutionsIE sprays you use will do their job. It is just that the more frequent you use them, the quicker they work. They are always looking for places to repair and regenerate your cells. Thanks to my mother-in-law I was able to start out with the amounts did. This is the sprays and the amounts he and I used. 160 sprays=1 Tablespoon daily of Colloidal Silver 1 spray each 12 times daily of Allergy Season Plus, Metabo V1, Pure Energy Plus, Metabo V5, Joint V1 and Dermal V9. I took the Dermal V9 for 1 month. Now because of the herpes connection Dermal V2 has been added. We both took these amounts for 5 weeks. Then we took half of the amounts for another 5 weeks. After 3 weeks that started his sprays his symptoms went a way. I wasn`t quite that lucky, but I was still impressed with the improvements I did have. I have a really bad right hip that slides around. I was at the local fitness club. I used a leg machine where you lift weights up with the tops of your feet while in a sitting position. When I lifted the weights up, my hip popped. Up until then I didn`t even know I had a problem. Anyway, now just takes the maintenence amounts. I try to take a little over the maintenence amounts. My leg is alot better, but I want off of my walker. I am going to tell what all of these sprays do. COLLOIDAL SILVER PLUS; Immune System Booster for many applications. Helps your body naturally resist infections from bacteria, virus, fungus, yeast, etc. Enhances cell hydration.Burn and sunburn relief. ALLERGY SEASONAL PLUS; Anti-Oxidant. Natural decongestant. Helps the body resist allergic response of all types and causes, and insect bites. PH balance normalizer that helps reestablish the " good bacteria. " METABO V1; Metabolic Health: Sugar and starch metabolism, appetite suppressor & normalizer, experience weight management without stimulants, blood sugar normalizer, candida rejection. PURE ENERGY PLUS: Seratonin/Melatonin Enhancement. Combat Fatigue, feel energy naturally, experience relief from depression without stimulants and sleep naturally without sedatives. The spray herbs I just typed out are what is known as THE CORE FOUR. They build your body`s immune system foundation. For the lucky people who have no health issues, the Core Four are all they need to take. For people like you and I with M.S. the other following spray herbs are needed. DERMAL V9: Skin and internal health. Strenghthens the immune system to combat various types of staph infection that cause deep painful skin eruptions, eye infection, severe joint inflammation and pain, etc. ( I only took that 1 month.) JOINT HEALTH V1: Joint, Connective Tissue and Muscle Health. Relief from joint and muscle discomfort, stiffness and inflammation. Use with disorders causing severe soft tissue pain accompanied by severe fatigue. METABO V5: Neurological Health: Neuropathy, nerve damage, neuromuscular health and all nerve related issues. DERMALV2: Skin Health: Strengthens the immune system to combat various types of herpes that break out around the mouth and other areas, or at a time form small blisters accompanied by intense pain and itching. The cost of the Colloidal Silver is approximately $70 for 16 ozs. There is around 33 Tblspns. in it. The cost of the other sprays is approximately $23 each for 1 oz. There is approximately 180 sprays in each bottle. It is about $585 for the first 5 weeks and half of that for the next 5 weeks to take the sprays as frequently as and I did. If you buy nine 1oz. sprays you get 1 free. Now remember I told you that you can take them like you want. Any amount is better than none.They will just take longer. They go to the most damaged areas first. Everyone reacts differently. After the 10 weeks my cost isn`t that bad. This months was $75. I would like to take more but can`t afford it now. ( my mother-n-law isn`t paying for it now.) The maintenence level is 1 spray of each spray 3 times a day. The Colloidal Silver is 10 sprays once or twice a day. Bobbie, the woman that introduced me to SolutionsIE sprays is unavailable this week, but will be back next week, if you would like to e-mail her. Her address is in your letter I mailed you. She is much more knowledgeable than I am. If you would like to look SolutionsIE.com up on the computer, the way I put it down, is just the way you look it up. Mylinda, if I can be of any more help let me know. P.S. I was touched by your e-mail name. I was a Daddy`s Girl to. He died in 1995, 2 days before my 40th birthday. I bought him a coffee cup that had " MY HEART BELONGS TO DADDY. " ON IT. He used it for years. When he died, I asked my mom if I could have it back, and she wouldn`t let me. She started drinking out of it. I guess that probably made her feel closer to my dad. (I bought her a cup that had " I LOVE MOM " on it.) Anyway, Mom died in early 2002. I drink out of that cup now. Nobody else is allowed to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 , Thank you for the very quick response. I am glad that the information on LDN is on your site, although it is inconsistent in the way that it is written. I also noted that some pharmacist stated that this is an not an "FDA approved use and dosage”. It is unfortunate that this attitude, fear, and lack of aggressiveness still exists as opposed to putting efforts toward pushing the medication LDN to be tested. I believe that adequate anecdotal evidence exists so that a good and truthful survey, by the FDA and NIH staff, would answer many of the questions that people with MS continue to ask. Dan ----- Original Message ----- From: monique fraser deglines@... Sent: 11/25/2003 8:40:21 AM Subject: RE: Information Hello , If you go to our website www.msfocus.org and type in low dose naltrexone and endorphins in the search box on the home page you should see some information come up about these topics. Sincerely,Multiple Sclerosis Foundation -----Original Message-----From: Glines [mailto:deglines@...]Sent: Tuesday, November 25, 2003 1:19 AMsupport@...Subject: Information I was looking through your web site for information on Low Dose Naltrexone and endorphins. Can your point the way to this information? Glines deglines@... Why Wait? Move to EarthLink. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Dan & : For additional information on LDN, check the following web sites: www.LDNinfo.org http://www.mwt.net/~drbrewer/ http://www.remedyfind.com http://www.digitalnaturopath.com/treat/T74481.html http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK Also, surf the LDN chat board that is accessed through the LDN web site. You'll find that LDN is working miracles for a lot of people. Noland ----- Original Message ----- From: Glines monique fraser Sent: Tuesday, November 25, 2003 4:50 PM Subject: [low dose naltrexone] RE: Information , Thank you for the very quick response. I am glad that the information on LDN is on your site, although it is inconsistent in the way that it is written. I also noted that some pharmacist stated that this is an not an "FDA approved use and dosage”. It is unfortunate that this attitude, fear, and lack of aggressiveness still exists as opposed to putting efforts toward pushing the medication LDN to be tested. I believe that adequate anecdotal evidence exists so that a good and truthful survey, by the FDA and NIH staff, would answer many of the questions that people with MS continue to ask. Dan ----- Original Message ----- From: monique fraser deglines@... Sent: 11/25/2003 8:40:21 AM Subject: RE: Information Hello , If you go to our website www.msfocus.org and type in low dose naltrexone and endorphins in the search box on the home page you should see some information come up about these topics. Sincerely,Multiple Sclerosis Foundation -----Original Message-----From: Glines [mailto:deglines@...]Sent: Tuesday, November 25, 2003 1:19 AMsupport@...Subject: Information I was looking through your web site for information on Low Dose Naltrexone and endorphins. Can your point the way to this information? Glines deglines@... Why Wait? Move to EarthLink. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Yolanda, I saw it also. It seemed to suggest that Alpha Lipoic Acid helped with fatigue. Must say it was quite a BIG build up for a 10 second spot. New York Channel 2 CBS @ 5pm . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 In a message dated 10/22/2004 11:27:54 AM Eastern Daylight Time, GOMEZGUILLEN2@... writes: about something I saw on the news yesterday regarding Alpha Lapoic Acid and it's effects on MS patients. They did a trial on some MS patients and one report came back as having changed something in the cells of the brain. They increased the ALA dosage to 1200 mg and apparently it had some good effects. I Hi I'm another list (MS-diet, the BBD) and something was just posted that we should not take Alpha Lapoic Acid if we had any mercury (fillings). Something about the ALA just moving the merc around in our systems and making us worse. Don't know all the details, but it might be worth researching. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi Arlene, For sure it's worth looking into. Let us know what you find. Take care and... God Bless Yolanda ----- Original Message ----- From: arlizotte@... low dose naltrexone Sent: Friday, October 22, 2004 4:38 PM Subject: Re: [low dose naltrexone] Information In a message dated 10/22/2004 11:27:54 AM Eastern Daylight Time, GOMEZGUILLEN2@... writes: about something I saw on the news yesterday regarding Alpha Lapoic Acid and it's effects on MS patients. They did a trial on some MS patients and one report came back as having changed something in the cells of the brain. They increased the ALA dosage to 1200 mg and apparently it had some good effects. I Hi I'm another list (MS-diet, the BBD) and something was just posted that we should not take Alpha Lapoic Acid if we had any mercury (fillings). Something about the ALA just moving the merc around in our systems and making us worse. Don't know all the details, but it might be worth researching. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Whatever it takes, it's worth finding out more information about it. I hope and pray something good will come out of this. Maybe our neuro's would have more information. Take care and... God Bless Yolanda ----- Original Message ----- From: noclue915@... low dose naltrexone Sent: Friday, October 22, 2004 3:53 PM Subject: Re: [low dose naltrexone] Information Yolanda, I saw it also. It seemed to suggest that Alpha Lipoic Acid helped with fatigue. Must say it was quite a BIG build up for a 10 second spot. New York Channel 2 CBS @ 5pm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 Hello Everyone, I just wanted to remind everyone that as a sponsor of this list serv, the National Center for Farmworker Health, does not endorse or censor people’s responses as long as they pertain to migrant health. We welcome differing opinions and want to maintain an open dialogue that allows us to continue to learn from one another. However, we do ask that this list serv remains a venue for positive dialogue and does not become a place for personal attacks. Thank you. Josh Shepherd National Center For Farmworker Health Resource Center Manager (512) 312-5463 Quote Link to comment Share on other sites More sharing options...
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