Re: Re: Boots and Bars

January 25, 2006

I know I dont want nas feet to relapse because it just feels like its

taken so much to get to this point. na's dorsiflexion scores are both

15. She doesnt seem to mind when I put them on during the day. I was just

thinking that maybe the bar hurt her or maybe doesn't even hurt, she just

cant move as well and she gets frustrated......I dont know-its so hard to

tell. Dr. Alvarez told me to have it at 45 degrees but I heard from

everyone here that it was supposed to be at 70. I dont think na is

ready for that. I think maybe I will just keep na in the AFO's until

Dr. Pirani gets back. I have to bring her to the family doc's tommorrow cuz

I think her skin might be infected still from the casts 3 weeks ago

..

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: Boots and Bars

>Date: Thu, 26 Jan 2006 05:06:24 -0000

>

>Once her feet are properly corrected, you won't have any

>problems!!!!! You may need the shoes for na but they

>can be ordered when she is actually ready to be in the shoes.

>I am sure will pipe in here but Dr. Alvarez put her son Hayden in the

>brace well well well before his feet were fully corrected with

>distasterous results.

>

>I am just so frustrated that Dr. Pirani is away right now! I am

>wondering if I should call him on his cell and ask him if you should

>just let her feet relapse a bit until he gets back because the LAST

>thing you want to do is have her in the shoes before her feet are

>fully corrected.

>

>Maybe you could see our orthotist who is very experienced with

>the Markell's and the Ponseti method and she could set your shoes to

>the degree of outward rotation that na has been casted to, yes I

>think that this a better idea since Dr. Pirani won't be able to do

>anything from so far away.

>

>, all I can see is frustration and possible blisters and or

>sores by keeping you daughter in these shoes when her feet are most

>likely NOT ready for them, PLEASE give me a call at home and let's

>get you and Brinna in to see to fit the shoes the best they can

>until Dr. Pirani gets back.

>

>My home # is 604 942-6645

>

>Hugs,

>

>michelle & grace

>

> > > >

> > > > I was just wonderin if anyone has any links as to what the

> > >different

> > > > types of shoes look like----- and Markell etc

> > > > I looked but couldn't find anything myself. And what is the

> > > > difference betweeen them all????

> > > >

> > >

> >

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January 26, 2006

If you're on your way to see a Ponseti qualified doctor, I guess I would just

opt to keep a in a " holding pattern " until then - say with the AFO's. I

doubt she'll gain anything but I doubt she'll lose enough to matter either at

this point. The FAB on uncorrected feet, and a FAB set in-correctly can both

cause a kid a great deal of discomfort, sores, etc.

s.

Re: Boots and Bars

>Date: Thu, 26 Jan 2006 05:06:24 -0000

>

>Once her feet are properly corrected, you won't have any

>problems!!!!! You may need the shoes for na but they

>can be ordered when she is actually ready to be in the shoes.

>I am sure will pipe in here but Dr. Alvarez put her son Hayden in the

>brace well well well before his feet were fully corrected with

>distasterous results.

>

>I am just so frustrated that Dr. Pirani is away right now! I am

>wondering if I should call him on his cell and ask him if you should

>just let her feet relapse a bit until he gets back because the LAST

>thing you want to do is have her in the shoes before her feet are

>fully corrected.

>

>Maybe you could see our orthotist who is very experienced with

>the Markell's and the Ponseti method and she could set your shoes to

>the degree of outward rotation that na has been casted to, yes I

>think that this a better idea since Dr. Pirani won't be able to do

>anything from so far away.

>

>, all I can see is frustration and possible blisters and or

>sores by keeping you daughter in these shoes when her feet are most

>likely NOT ready for them, PLEASE give me a call at home and let's

>get you and Brinna in to see to fit the shoes the best they can

>until Dr. Pirani gets back.

>

>My home # is 604 942-6645

>

>Hugs,

>

>michelle & grace

>

> > > >

> > > > I was just wonderin if anyone has any links as to what the

> > >different

> > > > types of shoes look like----- and Markell etc

> > > > I looked but couldn't find anything myself. And what is the

> > > > difference betweeen them all????

> > > >

> > >

> >

> > _________________________________________________________________

> > Take charge with a pop-up guard built on patented Microsoft®

>SmartScreen

> > Technology.

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>

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January 26, 2006

I dont know if the skin irratation is due to improper casting-cuz they used

a stockanette after her surgery for the first time instead of the usual

stuff they used and na's skin still broke down-maybe not as quick but

it still did- I have taken na to a dermatologist over this and she said

na has overly sensitive skin as well as baby exzema.

Last nite, na had her Boots and Bars on and she was really fussy-I

thought she was just tired. Then she kept crying so I took the bar off and

that didnt settle her either so I took the boots off and she stopped

crying-it was never a bad cry-just a little whining here and there- but I

dont know maybe her feet arent corrected enough. The Afo's seem to keep her

position well so we wont lose any dorsiflexion until we go see Dr.

Pirani-----I hope and wish

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: Boots and Bars

>Date: Thu, 26 Jan 2006 06:08:06 -0000

>

>Awww poor little thing, hope your doc finds that she's ok!!!!!!!

>

>I totally hear ya , you have been through a LOT to get to

>where you are at! If the shoes are set at a 45 degree angle then

>thats what she was probably corrected to and hopefully she will be ok

>in them. I would keep her in the shoes as much as possible as opposed

>to the AFO's, if she is tolerating them during the day with no

>prob's, great! Try to get in as many hours as you can.

>

>I wouldn't advise keeping her in the AFO's on for long periods esp.

>if she has some skin irritation due to improper casting...have you

>talked to about the difference she has seen between Dr.

>Alvarez' and Dr. Pirani's casts?

>

>Just Please know that it will get better, Dr. Pirani will be able to

>get na on track in no time!!! So glad that you found this group

>=)

>

> & Grace

>

> > > > > >

> > > > > > I was just wonderin if anyone has any links as to what the

> > > > >different

> > > > > > types of shoes look like----- and Markell etc

> > > > > > I looked but couldn't find anything myself. And what is the

> > > > > > difference betweeen them all????

> > > > > >

> > > > >

> > > >

>_________________________________________________________________

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>r

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> > >

> >

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>scheduling

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January 27, 2006

Thanks for the compliments

Yeah, at the orthotists office after na's surgery, we fitted her for

the Dennis Browne boots however she was very sensitive and screamed so we

decided not to go with them and finish the AFO's instead. The next day we

went to her appt with Dr. Alvarez and her and the orthotist both decided

that we could try to put the AFO's inside the boots and bars to see if that

would work. Of course it didnt. na just kicked them off along with

her AFO's. So those were only used for one day. So we went back after the

weekend and she was fitted again for the boots and bars and thats when the

problems started that I already mentioned.

>

>Candi,

>I just happened to run across na's pictures that you put in the

>photos section of the group. First let me say what a beautiful girl

>she is! She is so adorable in that little pink outfit!

>A couple things I noticed in the pictures that I wanted to mention or

>ask about.

>First, it looks like her bar width is REALLY narrow. I don't know if

>you've tried holding them up to her shoulders but it looks like the

>heels of her shoes are very close together, which as you know can

>really cause discomfort.

>The second thing I wanted to ask about is about the use of the AFO's

>inside the Markell shoes. I've never seen this or heard of this being

>done. I'm mainly curious on this one and wondering if anyone else has

>had experience with this type of set up. Did the Dr. or orthotist

>tell you to do this? Was this the way they measured her for the

>shoes, with the AFO's on? Did they tell you what they were trying to

>accomplish by having her wear them like this? Sorry for all the

>questions, this just really peaked my curiosity.

>

>Thanks,

>

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January 27, 2006

The bar she has on in the pics we dont have anymore. The bar she has now is

a lot longer. So I am not sure what the problem was.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: Boots and Bars

>Date: Sat, 28 Jan 2006 01:51:30 -0000

>

>I didn't know that you had posted pics...she is just tooo cute =)

>Looks like she has lots of socks lol, all our babies do me thinks. At

>least they are always matching right?

>

> had the same prob with the set up of her brace at Children's

>(with dr. alvarez), the shoes are waaay to close together! No wonder

>she was uncomfortable + I am pretty sure that her feet wern't ready

>for them anyway but MAN someone has to teach them to set up a brace

>properly! At least Dr. Pirani has cc'd her on everything he has done

>for Hayden and will do the same for na I'm sure - not that it

>will probably change anything - but at least it's there on record for

>her to see.

>

>She is really so cute ! Love that pink hat too!

>

> & Grace

>

> >

> > Thanks for the compliments

> >

> > Yeah, at the orthotists office after na's surgery, we fitted

>her for

> > the Dennis Browne boots however she was very sensitive and screamed

>so we

> > decided not to go with them and finish the AFO's instead. The next

>day we

> > went to her appt with Dr. Alvarez and her and the orthotist both

>decided

> > that we could try to put the AFO's inside the boots and bars to see

>if that

> > would work. Of course it didnt. na just kicked them off

>along with

> > her AFO's. So those were only used for one day. So we went back

>after the

> > weekend and she was fitted again for the boots and bars and thats

>when the

> > problems started that I already mentioned.

> > >

> >

> > >Candi,

> > >I just happened to run across na's pictures that you put in

>the

> > >photos section of the group. First let me say what a beautiful

>girl

> > >she is! She is so adorable in that little pink outfit!

> > >A couple things I noticed in the pictures that I wanted to mention

>or

> > >ask about.

> > >First, it looks like her bar width is REALLY narrow. I don't know

>if

> > >you've tried holding them up to her shoulders but it looks like the

> > >heels of her shoes are very close together, which as you know can

> > >really cause discomfort.

> > >The second thing I wanted to ask about is about the use of the

>AFO's

> > >inside the Markell shoes. I've never seen this or heard of this

>being

> > >done. I'm mainly curious on this one and wondering if anyone else

>has

> > >had experience with this type of set up. Did the Dr. or orthotist

> > >tell you to do this? Was this the way they measured her for the

> > >shoes, with the AFO's on? Did they tell you what they were trying

>to

> > >accomplish by having her wear them like this? Sorry for all the

> > >questions, this just really peaked my curiosity.

> > >

> > >Thanks,

> > >

> >

> > _________________________________________________________________

> > Take charge with a pop-up guard built on patented Microsoft®

>SmartScreen

> > Technology.

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>ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Mar

>ket_MSNIS_Taglines

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>the

> > first two months FREE*.

> >

>

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January 27, 2006

Hayden says he can't wait to see his girlfriend again because she is lookin'

FINE! Hee hee! So glad you are set up to see Dr. Pirani - you're gonna love

him! Call me when you are in town and I'll come out with you if you want.

We'll be about due for an appointment then anyway.

Huston wrote: Thanks for the compliments