Re: J. working to alter brace 4 us...

[Guest guest]

Christee,

This is interesting to me. My son Karter had that problem with the Markells,

we have not had it yet with the s. He also has alot of extra skin on his

feet. When trying to get an IV in on different occasions they have not been

able to, due to the extra skin and how tough the skin is. Hope the 4 straps

work and keep us updated. Thanks

Tabitha

Christee wrote:

I just wanted to give an update on how things are going. Lilee's foot seems to

be good, and flexable. She still has one leg longer than the other that the

Dr.'s refuse to follow-up and address, but I am still watching and researching

this myself. Lilee does hold her foot kinda inwards sometimes when not in the

brace. More so, her heel turns inwards. I dont think it is something to worry

about since she is maintaining correction? Her foot and leg/ankle are so FAT, we

are having some issues with the 's. We love them and they are SO much

better than the Markells for her A-Typical/Complex CF. But I think she has more

than average fat and skin there than most. She gets red marks where the middle

strap is. These red marks do NOT go away, then get hot, it seems to loosen the

skin, then the skin peels off leaving a sore. It doesnt develop a blister. So

and a local Orthotist here where I live and brainstorming up some

ideas to help Lilee, and others possibly that have

the same kind of issue. At this point let me say this, sont let this post

discourage you from getting the s! They are WONDERFUL! My daughter just

has an overly difficult foot reguarding this area! I am sure there is only maybe

a 5% max chance your child would have the issues I am having! I have spoken with

Dr. P about this, and he says that fat feet have alot of extra tissue. They are

real sensitive, and their skin breaks down easier, and they can develop sores

easier. With that said, here is what we have dont with the s so far, and

are going to do...So far alls we have done is move the middle buckle lower

twards the sole and further forwards by about 1/2-3/4 " . This has seemed so far

to improve those red marks greatly and her red marks are disapearing and her

sores are healing! THIS IS GOOD! I do notice I have to make the top strap a tad

tighter to hold her foot back. The top strap hits her at about mid calf level.

So they are sending more leather material. They will

be making 2 straps that will go around her calf. This will make the top part

slightly taller. This will also mean that her sandals will have 4 straps instead

of the standard 3. This will help even out pressure and hold her foot back even

better. I think it'll work! I am so excited!

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

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[Guest guest]

Will do! We should recieve the leather about next Wed. So they should be fully

altered `by Fri. I will send pics then!

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

---------------------------------

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[Guest guest]

How long did it take for th esores to heal? What did you use on it?

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 18/24.

---------------------------------

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