Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 It sounds as if your child has A-Typical CF AKA Complex CF. If this is the case the Markells are not tolerated, and act more as a torture device. The s are made for A-Typicals. I would take some pics, and send them to Dr. Ponseti, and the group. If he does have A-Typical you need to know and order those s ASAP! --------------------------------- Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Hi nne, I live just outside of Boston, and my daughter, Maddie, is being treated at Children's by both Dr. Mahan and Dr. Kasser, who is on Ponsetti's list. We were being treated in Worcester, but the doctor there messed up Maddie's feet. He moved her into the Markells before her feet were fully corrected. She screamed and wouldn't sleep when she wore her shoes. Leif's feet may not be fully corrected yet, so you may want to check that out. Maybe the brace/shoes aren't fitted right? What doctor are you seeing? Glad to find someone in the Boston area in this group. - Michele 5/18/02 and Maddie 9/6/05 bcf summersinmarion wrote: Hello All, My 11 week old son Leif (bilateral club feet) was just fitted for Markell shoes after 7 weeks of casting and 3 weeks post tenotomy. He is not tolerating the shoes at all. He screams the minute I put them on, won't sleep, won't nurse with them on. I have noticed others use the brace, and it is more tolerated? I have read the post about how to put on the shoes and I am doing it correctly, he has very small feet and I just think the strap in the middle is digging into his fat feet. His right foot is worse than his left and has a crease in the bottom of it that is still present after treatment. If anyone has any suggestions I would love to hear them! Thanks, nne (Boston, MA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 nne: Well I know what you are going through. My son was in the Markells and we had to move to the s. The s have been a god send. The Markells would not work for due to his small, chubby feet with a bit of complexity according to Dr. Ponseti. My son was treated under the Method here in Arkansas but we were having so many issues with the Markells so I went to Dr. Ponseti. My son had lost so much correction during our Markell use. He would not sleep or nurse with those shoes and he screamed when we " tried to place them on his feet " . They would be on maybe 30 minutes and then magically he was throwing them across the room with the strength in his legs. Are you sure your baby is fully corrected? You may want to email Dr. Ponseti for his advice and go from there. Let me know if I can be of any help to you. I k now you are having a tough time.... Mommy to 6-11-05 BL CF - corrected P/M 20/7 summersinmarion wrote: Hello All, My 11 week old son Leif (bilateral club feet) was just fitted for Markell shoes after 7 weeks of casting and 3 weeks post tenotomy. He is not tolerating the shoes at all. He screams the minute I put them on, won't sleep, won't nurse with them on. I have noticed others use the brace, and it is more tolerated? I have read the post about how to put on the shoes and I am doing it correctly, he has very small feet and I just think the strap in the middle is digging into his fat feet. His right foot is worse than his left and has a crease in the bottom of it that is still present after treatment. If anyone has any suggestions I would love to hear them! Thanks, nne (Boston, MA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Thank you for your response. Leif returned to Dr. Kasser today and was recasted awaiting the arrival of the 's in about 3 weeks (we will get the foot impression friday, then back in casts until they are ready) At least Leif is happy in casts! Has anyone had any trouble with the 's??? nne August 04/26/04 Leif BCF 09/10/05 > Hello All, > My 11 week old son Leif (bilateral club feet) was just fitted for > Markell shoes after 7 weeks of casting and 3 weeks post tenotomy. He > is not tolerating the shoes at all. He screams the minute I put them > on, won't sleep, won't nurse with them on. I have noticed others use > the brace, and it is more tolerated? I have read the post > about how to put on the shoes and I am doing it correctly, he has very > small feet and I just think the strap in the middle is digging into > his fat feet. His right foot is worse than his left and has a crease > in the bottom of it that is still present after treatment. > If anyone has any suggestions I would love to hear them! > Thanks, > nne (Boston, MA) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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