Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Carol, Did you save the last cast? Can you compare the angle of the cast to what the shoes are set at? If the shoes are set at a higher degree of rotation than the last cast was that could be causing her discomfort. I doubt this is the case, but that is the first thing that comes to mind knowing that her foot IS corrected. She could just be pissed off about wearing the shoes and will keep this up for a few days until she realizes that you are not going to give in to her crying. Can you tell if it is a pained cry or just a pissed off cry? I know, difficult to tell. If you have held the bar w/ shoes up to her shoulders and her shoulders fit well between the shoes I can't blame bar length. I'd check that again, it is so often the culprit for what you are describing. The next thing I would suggest is take some good pictures from all angles of her in the shoes and post them to CFPics. Kori or some of the other parents with experience can tell you if you are possibly applying the shoes incorrectly. That's about all I can think of for now, hang in there, we'll help you get this figured out. > > went into the FAB last Thursday evening. She is not > sleeping well night or day and has been fussy but not unbearably so, > just restless at night and a bit more fussy during the day, except > for when I am trying to rock her to sleep and she can't get > comfortable and then she screams bloody murder. Last night was our > worst night yet with night waking. She didn't sleep more than 1 1/2 > hours in a row and sometimes just 30 minutes or so. I have tried > moving the bar to a longer length but that seemed to make her even > madder. It is set at 6 inches. She is a big/tall three month old > but it seems about shoulder width. So my question is: How long > should I expect her to take to adjust? At some point, if she is > still this fussy, does that mean the shoes don't fit right or I am > not putting them on right? > > Also, she has a small red spot on the side of her foot (left) which > has been present for about 2-3 days. It doesn't get any better nor > does it get worse. I pad it with gauze between her sock and shoe. > Is this okay? (Both to pad it as well as the fact it is not going > away?) > > This afternoon she was screaming in the car (really hollering, too) > all the way to get the boys at preschool and all the way back, for > about thirty minutes. I thought she was tired. When I got home, I > took off the shoes to check that they were not hurting her > anywhere. Other than a small red spot on one toe and the red spot > on the side which has been there for several days, all looked fine. > When I touch these red spots, they don't seem to hurt her. But she > immediately stopped screaming the second I took off the shoes and > has been happy and then peacefully napping since (in my arms right > now). Is this part of the adjustment or does it mean there is > something wrong? The s are so much better than the Markells > but we do seem to still struggle with them. > > I think her feet are fully corrected because her last cast was > applied by Dr. Ponseti (for two weeks)so I don't think that is the > issue. But she does have the atypical toes (curving under or > curling inward) which cause issues in the shoes if I don't pad them > with gauze. > > I am pretty exhausted but am committed to seeing this through. (No > real option there, huh?) I will deal with her screaming/fussing/not > sleeping as long as I know it will eventually end when she gets used > to the shoes and that nothing is hurting her. Any feedback is > appreciated. > > Carol and , bcf, 10-27-05, s FAB 23/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 , The last cast was at 70 degrees outward abduction, applied by Dr. Ponseti. Her shoes are set at 60 degrees...came that way from . I think that is standard for the s, but I'm not sure. Her left foot troubles me a bit because the heel cord is tight, but other than that, I do think they are corrected. I am 100% sure they are correct in abduction anyway. The dorsiflexion on her right foot has always been good. She seems mad and uncomfortable during the day. I was concerned that she might be in pain in the car, but a look at her feet really revealed nothing I could tell which would cause her problems...nothing new anyway. I do have a hard time figuring out the width of her shoulders, but her ortho looked at it as well and we both thought the bar length was okay. Thank you for your encouragement, Carol Re: Adjusting to the FAB Carol, Did you save the last cast? Can you compare the angle of the cast to what the shoes are set at? If the shoes are set at a higher degree of rotation than the last cast was that could be causing her discomfort. I doubt this is the case, but that is the first thing that comes to mind knowing that her foot IS corrected. She could just be pissed off about wearing the shoes and will keep this up for a few days until she realizes that you are not going to give in to her crying. Can you tell if it is a pained cry or just a pissed off cry? I know, difficult to tell. If you have held the bar w/ shoes up to her shoulders and her shoulders fit well between the shoes I can't blame bar length. I'd check that again, it is so often the culprit for what you are describing. The next thing I would suggest is take some good pictures from all angles of her in the shoes and post them to CFPics. Kori or some of the other parents with experience can tell you if you are possibly applying the shoes incorrectly. That's about all I can think of for now, hang in there, we'll help you get this figured out. > > went into the FAB last Thursday evening. She is not > sleeping well night or day and has been fussy but not unbearably so, > just restless at night and a bit more fussy during the day, except > for when I am trying to rock her to sleep and she can't get > comfortable and then she screams bloody murder. Last night was our > worst night yet with night waking. She didn't sleep more than 1 1/2 > hours in a row and sometimes just 30 minutes or so. I have tried > moving the bar to a longer length but that seemed to make her even > madder. It is set at 6 inches. She is a big/tall three month old > but it seems about shoulder width. So my question is: How long > should I expect her to take to adjust? At some point, if she is > still this fussy, does that mean the shoes don't fit right or I am > not putting them on right? > > Also, she has a small red spot on the side of her foot (left) which > has been present for about 2-3 days. It doesn't get any better nor > does it get worse. I pad it with gauze between her sock and shoe. > Is this okay? (Both to pad it as well as the fact it is not going > away?) > > This afternoon she was screaming in the car (really hollering, too) > all the way to get the boys at preschool and all the way back, for > about thirty minutes. I thought she was tired. When I got home, I > took off the shoes to check that they were not hurting her > anywhere. Other than a small red spot on one toe and the red spot > on the side which has been there for several days, all looked fine. > When I touch these red spots, they don't seem to hurt her. But she > immediately stopped screaming the second I took off the shoes and > has been happy and then peacefully napping since (in my arms right > now). Is this part of the adjustment or does it mean there is > something wrong? The s are so much better than the Markells > but we do seem to still struggle with them. > > I think her feet are fully corrected because her last cast was > applied by Dr. Ponseti (for two weeks)so I don't think that is the > issue. But she does have the atypical toes (curving under or > curling inward) which cause issues in the shoes if I don't pad them > with gauze. > > I am pretty exhausted but am committed to seeing this through. (No > real option there, huh?) I will deal with her screaming/fussing/not > sleeping as long as I know it will eventually end when she gets used > to the shoes and that nothing is hurting her. Any feedback is > appreciated. > > Carol and , bcf, 10-27-05, s FAB 23/7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I will check this again. It is very confusing to me to measure them and get it correct. Thanks for the tips, Carol Re: Adjusting to the FAB For the 's, I think the recommended measurement is between the centers of the backs of the heels. 6 " does seem short. HTH, Kim needing prayers > wrote: Carol, did she start out sleeping okay when she first started wearing the s? Or did she cry from the very beginning? I'm definitely no pro at this but if the bar is only 6 " long, it may be too short for her. Are you measuring from the center screw to the center screw on the bottom heel of each shoe? I just measured Marcus's shoes and they are 8 " apart. This was before he was placed in another cast (I don't know if you remember the whole c-shape problem we had). Anyway, when he starts the shoes again I will probably readjust the bar to 9 " . Marcus is exactly a week younger than and he too is pretty big. Just a thought. Carol wrote: went into the FAB last Thursday evening. She is not sleeping well night or day and has been fussy but not unbearably so, just restless at night and a bit more fussy during the day, except for when I am trying to rock her to sleep and she can't get comfortable and then she screams bloody murder. Last night was our worst night yet with night waking. She didn't sleep more than 1 1/2 hours in a row and sometimes just 30 minutes or so. I have tried moving the bar to a longer length but that seemed to make her even madder. It is set at 6 inches. She is a big/tall three month old but it seems about shoulder width. So my question is: How long should I expect her to take to adjust? At some point, if she is still this fussy, does that mean the shoes don't fit right or I am not putting them on right? Also, she has a small red spot on the side of her foot (left) which has been present for about 2-3 days. It doesn't get any better nor does it get worse. I pad it with gauze between her sock and shoe. Is this okay? (Both to pad it as well as the fact it is not going away?) This afternoon she was screaming in the car (really hollering, too) all the way to get the boys at preschool and all the way back, for about thirty minutes. I thought she was tired. When I got home, I took off the shoes to check that they were not hurting her anywhere. Other than a small red spot on one toe and the red spot on the side which has been there for several days, all looked fine. When I touch these red spots, they don't seem to hurt her. But she immediately stopped screaming the second I took off the shoes and has been happy and then peacefully napping since (in my arms right now). Is this part of the adjustment or does it mean there is something wrong? The s are so much better than the Markells but we do seem to still struggle with them. I think her feet are fully corrected because her last cast was applied by Dr. Ponseti (for two weeks)so I don't think that is the issue. But she does have the atypical toes (curving under or curling inward) which cause issues in the shoes if I don't pad them with gauze. I am pretty exhausted but am committed to seeing this through. (No real option there, huh?) I will deal with her screaming/fussing/not sleeping as long as I know it will eventually end when she gets used to the shoes and that nothing is hurting her. Any feedback is appreciated. Carol and , bcf, 10-27-05, s FAB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 the Ponseti shoes come with instructions to put the distance as heel to heel, same as shoulder width. At least that's what I was told by my orthotist who was looking in on an argument I'd had with another orthotist about length (when they wouldn't believe me that Darbi's bar was too short) and he purposely checked for this information when she got her first pair of PM's. So just hold the brace up to his shoulders (with heels facing in towards him) and see if the shoulders fit inside the shoes. It doesn't have to be perfect, but you can make it perfect with this kind of adjustable bar. Also, some kids seem more comfortable at bolt to bolt instead of heel to heel. But so far, it's the minority of parents who say this. In the end, it's somewhere in between bolt to bolt and heel to heel which is your *range* of comfort. Those babes in fixed length bars may start out at heel to heel, and grow through bolt to bolt as time passes and are perfectly happy. Much past bolt to bolt makes for night waking, meaning time for a new bar :~} Kori At 07:40 PM 2/7/2006, you wrote: >I will check this again. It is very confusing to me to measure them >and get it correct. Thanks for the tips, > >Carol > Re: Adjusting to the FAB > > > For the 's, I think the recommended measurement is > between the centers of the backs of the heels. 6 " does seem > short. > > HTH, > > Kim > > needing prayers > > wrote: > Carol, did she start out sleeping okay when she first started > wearing the s? Or did she cry from the very beginning? I'm > definitely no pro at this but if the bar is only 6 " long, it may > be too short for her. Are you measuring from the center screw to > the center screw on the bottom heel of each shoe? I just measured > Marcus's shoes and they are 8 " apart. This was before he was placed > in another cast (I don't know if you remember the whole c-shape > problem we had). Anyway, when he starts the shoes again I will > probably readjust the bar to 9 " . Marcus is exactly a week younger > than and he too is pretty big. Just a thought. > > > Carol wrote: > went into the FAB last Thursday evening. She is not > sleeping well night or day and has been fussy but not unbearably so, > just restless at night and a bit more fussy during the day, except > for when I am trying to rock her to sleep and she can't get > comfortable and then she screams bloody murder. Last night was our > worst night yet with night waking. She didn't sleep more than 1 1/2 > hours in a row and sometimes just 30 minutes or so. I have tried > moving the bar to a longer length but that seemed to make her even > madder. It is set at 6 inches. She is a big/tall three month old > but it seems about shoulder width. So my question is: How long > should I expect her to take to adjust? At some point, if she is > still this fussy, does that mean the shoes don't fit right or I am > not putting them on right? > > Also, she has a small red spot on the side of her foot (left) which > has been present for about 2-3 days. It doesn't get any better nor > does it get worse. I pad it with gauze between her sock and shoe. > Is this okay? (Both to pad it as well as the fact it is not going > away?) > > This afternoon she was screaming in the car (really hollering, too) > all the way to get the boys at preschool and all the way back, for > about thirty minutes. I thought she was tired. When I got home, I > took off the shoes to check that they were not hurting her > anywhere. Other than a small red spot on one toe and the red spot > on the side which has been there for several days, all looked fine. > When I touch these red spots, they don't seem to hurt her. But she > immediately stopped screaming the second I took off the shoes and > has been happy and then peacefully napping since (in my arms right > now). Is this part of the adjustment or does it mean there is > something wrong? The s are so much better than the Markells > but we do seem to still struggle with them. > > I think her feet are fully corrected because her last cast was > applied by Dr. Ponseti (for two weeks)so I don't think that is the > issue. But she does have the atypical toes (curving under or > curling inward) which cause issues in the shoes if I don't pad them > with gauze. > > I am pretty exhausted but am committed to seeing this through. (No > real option there, huh?) I will deal with her screaming/fussing/not > sleeping as long as I know it will eventually end when she gets used > to the shoes and that nothing is hurting her. Any feedback is > appreciated. > > Carol and , bcf, 10-27-05, s FAB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
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