Re: [Neurosarcoidosis Rose from

[Guest guest]

Rose,

Now I know i am not alone with this.. you have a lot to be proud of rose . the only thing that bothers me is at our age we have it a lot harder than younger people to start, and lets face it.. we are middle age and we do not have as much time as someone you to complete the schooling we want. So even a semester off seems like a lifetime.

Hopefully you and I get back to good health and complete our degrees. We need to win over this sarc monster !!

I will keep you in my prayers

many hugs and much love rose

Many Blessings A.

, I wanted to encourage you on the school thing. I'm amazed at how much & how well you've done so far, and I'm betting on you to get back to it soon. You probably will have to take it a little slower (slow & steady like the tortoise!), which will be very hard to accept. I'm just a few credits shy of a bachelor's degree in business. I started an accelerated program when the fatigue, etc. started & I knew that something was wrong. I figured when I couldn't practice midwifery anymore I could use that business degree. Well, for the first 18 mos. I did great--Dean's list, loved the classes--then the brain fog & fatigue, along with neuropathy & other symptoms just did me in. I took what I thought would be a semester off, but never have gone back. That's when my teen granddaughter that lived with me really got out of control, one thing after another, last year my mom's Alzheimer's worsening until she died, this year more kids & grandkids with problems. So I really believe that God has other plans for me right now. If & when the time comes & I am able to concentrate enough, I'll complete that degree. I've stayed in touch with the program administrator & they send me info on activities. So, go with the flow as much as you can.

Ramblin' RoseModerator

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: JessicAbouhamama (AT) aol (DOT) comDate: Tue, 5 May 2009 11:37:19 -0400Subject: Re: Asking for help

Tracie

Please take some time for yourself and rest. You are always here for everyone, we will be ok.

you are in my prayers

Many Blessings A.

In a message dated 05/04/09 22:27:01 Eastern Daylight Time, mary_s777 (AT) yahoo (DOT) com writes:

Tracie, I didn't know you were in hyperdrive. But when I'm in a lot of pain I can be clueless. I honestly didn't know or couldn't read between the lines. I pray you get through all your paperwork and get the needed work done. The last few days have been horrible for pain and last night was bad. But I am here for you in spirit and want you to know you are in my thoughts. hugs S.

From: tracie feldhaus <tiodaat2001 (AT) yahoo (DOT) com>Subject: Asking for helpTo: neurosarcoidosis Date: Monday, May 4, 2009, 6:41 PM

Ok gang,

I am really struggling. This is the last couple of days prior to my Remicade infusion, and I'm seeing a pattern here.

Last week was like I was majorally manic all week long. One minute I was bouncing off the walls, then the next minute I was in tears. It was and continues to be the rollercoaster ride from hell.

There were times when my breathing was so bad, that getting into the truck had me gasping for air. I also find that I'm having more chest pain around my heart-- but my heart is only slightly enlarged, and we know that 3 of the valves--the aorta is 46% stenosed, the tricuspid is not closing all the way, along with one other.

I have found that this week prior to the next infusion is this way, and this has been the pattern for months now. As soon as I get the infusion, I'll be back to my normal self (isn't that an oxymoron) and doing fine for the following 3 wks.

The challenge is this last week-- and I know I drive everyone nuts--

I did go out last Friday and purchased a scooter, and today I need to pull myself together and go down to Chico to take care of some paperwork. It'll do me good to get out, but damn I'm tired.

At the same time that I've been firing off this last week, you all disappear. What's up? You can all ask for help, and yet when you see me in hyperdrive, you all run. Even our moderators and owners need support. We're dealing with this bugger also, including the crazy mind stuff that happens to all of us.

Help,

Tracie

NS Co-owner/moderator

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