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Hi All,

Energy is good, again, today. Feel like I'm walking on the edge, waiting for something to knock me down. I'm sure the reason is the many dashed hopes of Avonex making a difference.

Just read that Bill & Hillary dumped some stocks. One was oil, the other was Biogen (he makers of Avonex). Sure it is political but maybe they have gotten wind of people getting better from ldn as well. Must protect their nest eggs.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of marshiris@...Sent: Monday, June 18, 2007 9:13 AMlow dose naltrexone Subject: Re: [low dose naltrexone] SUCCESS STORY

ANNIE - u're truly an inspiration!! keep on reporting ur success with LDN!! your excitement comes thru you message!! i'm excited for you!! CONTINUED BLESSINGS TO YOU!!

marshirisaol

See what's free at AOL.com.

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Yes, I am sure that is it!!!

Aletha

RE: [low dose naltrexone] SUCCESS STORY

Hi All,

Energy is good, again, today. Feel like I'm walking on the edge, waiting for something to knock me down. I'm sure the reason is the many dashed hopes of Avonex making a difference.

Just read that Bill & Hillary dumped some stocks. One was oil, the other was Biogen (he makers of Avonex). Sure it is political but maybe they have gotten wind of people getting better from ldn as well. Must protect their nest eggs.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of marshirisaolSent: Monday, June 18, 2007 9:13 AMlow dose naltrexone Subject: Re: [low dose naltrexone] SUCCESS STORY

ANNIE - u're truly an inspiration!! keep on reporting ur success with LDN!! your excitement comes thru you message!! i'm excited for you!! CONTINUED BLESSINGS TO YOU!!

marshirisaol

See what's free at AOL.com.

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  • 2 months later...

Thank you for sharing that, .

It is always very encouraging to me to read about such success

stories. I know they happen regularly. I would like to see more of

them posted here.

There will always be lots of similarities in such success stories,

such as the juicing, the sunlight and the exercise, because there

aren't a lot of different ways to regenerate a degenerated body.

Question please: What is OS?

Comment: Nope, the shrinkage and necrosis of the tumors is not from

the chemotherapy she received a month ago. If chemotherapy is going

to work, it does the greatest part of what it does within mere

minutes of being injected, and diminution of tumors is far more rapid

than thirty days subsequent to treatment. As soon as tumor cells

begin turning into recognizable " junk, " the body's immune system

recognizes it as such, and begins digesting it and eliminating it

from the body. The destruction of tumor tissue from chemotherapy is

generally so rapid, (if the chemo works), that in cases where there

is a significant " tumor burden, " drugs are delivered along with the

chemo to prevent the body from being harmed by the large amount of

dead tumor tissue passing through and out of the body.

So the shrinkage that woman is experiencing is definitely due to the

things she is doing now, not to the chemo from a month ago.

Wonderful to read.

Thanks again.

Elliot

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  • 1 year later...
Guest guest

My son measured at 8 mm off. He got his helmet 3 and a half weeks ago, yesterday

he measured at 2mm, the orthotist said we can take it off when ever we're happy

with his head. SO if your doubting that the helmet will work hear my story. We

were told it would take 4 months and it's only been 3 and a half weeks. For once

in our lives some thing has taken less time than expected and i couldn't be

happier. We're going to leave the helmet on for a few more weeks, at least until

it starts to get really hot (we're in CA)

The whole experience has been hard but the weeks really do pass by quicker than

you would expect and the child does adjust very quickly. We delt with rashes and

sweating, bad smells and tantrums, but it's all worth it to know my little boy

has gotten the help he needed and that his head will not bother him in the

future.

We went through Hangers and were very impressed with them. They had a very

friendly staff and they booked us for same day app. when we were concerned about

any thing.

I would recommend seeing a specialist if you think your child has plagiocephaly

even if your doctor tells you to 'wait and see what happens' because the quicker

you catch it the better. We got my son in the helmet right befor a big growth

spurt and thats why we only have to do just over a month in the helmet.

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Guest guest

Are you serious that it only took 3 1/2 WEEKS? That's incredible. We've had

ours on for almost three weeks now and I see improvement, and I " m hoping it's

shorter than planned, but not as fast as yours :)

Betsy

We were told it would take 4 months and it's only been 3 and a half weeks. For

once in our lives some thing has taken less time than expected and i couldn't be

happier.

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Guest guest

wow, congrats. How old was your son when you banded?

>

> My son measured at 8 mm off. He got his helmet 3 and a half weeks ago,

yesterday he measured at 2mm, the orthotist said we can take it off when ever

we're happy with his head. SO if your doubting that the helmet will work hear my

story. We were told it would take 4 months and it's only been 3 and a half

weeks. For once in our lives some thing has taken less time than expected and i

couldn't be happier. We're going to leave the helmet on for a few more weeks, at

least until it starts to get really hot (we're in CA)

> The whole experience has been hard but the weeks really do pass by quicker

than you would expect and the child does adjust very quickly. We delt with

rashes and sweating, bad smells and tantrums, but it's all worth it to know my

little boy has gotten the help he needed and that his head will not bother him

in the future.

> We went through Hangers and were very impressed with them. They had a very

friendly staff and they booked us for same day app. when we were concerned about

any thing.

>

> I would recommend seeing a specialist if you think your child has

plagiocephaly even if your doctor tells you to 'wait and see what happens'

because the quicker you catch it the better. We got my son in the helmet right

befor a big growth spurt and thats why we only have to do just over a month in

the helmet.

>

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Guest guest

That is great! Congrats!

We were about to get our son banded on the 1st, but insurance denied us. We

decided to go ahead with things anyway, but by the time we made that decision,

we weren't be able to get an appointment until the 19th because the orthotist

was on vacation.

In the meantime, we have watched our son go through a growth spurt and his head

has gotten a little better in the meantime. Partially because his torticollis

has improved so he is finally sleeping on his right side about 20% of the time.

I can only imagine how quickly he would have gotten better if we had the helmet

on the last two weeks. Oh well, I am just happy is getting better and it gives

me faith that this will work.

>

> My son measured at 8 mm off. He got his helmet 3 and a half weeks ago,

yesterday he measured at 2mm, the orthotist said we can take it off when ever

we're happy with his head. SO if your doubting that the helmet will work hear my

story. We were told it would take 4 months and it's only been 3 and a half

weeks. For once in our lives some thing has taken less time than expected and i

couldn't be happier. We're going to leave the helmet on for a few more weeks, at

least until it starts to get really hot (we're in CA)

> The whole experience has been hard but the weeks really do pass by quicker

than you would expect and the child does adjust very quickly. We delt with

rashes and sweating, bad smells and tantrums, but it's all worth it to know my

little boy has gotten the help he needed and that his head will not bother him

in the future.

> We went through Hangers and were very impressed with them. They had a very

friendly staff and they booked us for same day app. when we were concerned about

any thing.

>

> I would recommend seeing a specialist if you think your child has

plagiocephaly even if your doctor tells you to 'wait and see what happens'

because the quicker you catch it the better. We got my son in the helmet right

befor a big growth spurt and thats why we only have to do just over a month in

the helmet.

>

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  • 4 months later...

Well, the flip side to that story is, informatively, mine. I had a

microdiscectomy on March 26, as an outpatient. Caught a ride home with friends

the same day, crashed on the couch overnight, and life went on the next day.

(I live alone.)

I had been in pain for over 6 years, but then did a few things that really

pushed it over the edge and on..into the OR.

Recovery went smoothly, I was driving the next day, doing all my usual

(and extensive) chores, just slowly.

Had a few lovely months without significant pain for the first time in

many years, and then...the all-too-familiar blasts of nerve pain into my legs

was back, along with the dull, deep buttock pain.

Saw the ortho guy again this week, and am still digesting it all. Seems

that the next step is a big one, with a full discectomy, laminectony, and

spinal fusion. He was pretty blunt about the post-op recovery differences,

and I specifically asked him if my putting it all a off as long as possible

would make the surgery more difficult or risky, the recovery longer, or

cause additional problems, and his answer was " no. "

But it sure was nice to live without pain for a little while.

judith

In a message dated 10/24/2009 12:40:47 A.M. Eastern Daylight Time,

bugsy1970@... writes:

Lesson here to learn is

do not wait for a long time if you have leg pain the longer you wait the

longer the leg will have to heal after surgery.

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But it sure was nice to live without pain for a little while.

Judith,

My dad had to back to back microdiectimies during his recovery where as I

had just had my second one after 4 years of comfort.

When it comes to the back and spine you almost never want to see an ortho Dr

and they deal with bone but Neurosurgions are great for the back and are

authority when it comes to back. I would seek a second opinion from a good

local Neurosurgeon with your updated MRI in hand.

Roman Good luck.

On Sat, Oct 24, 2009 at 12:27 AM, <jarcher107@...> wrote:

>

>

> Well, the flip side to that story is, informatively, mine. I had a

> microdiscectomy on March 26, as an outpatient. Caught a ride home with

> friends

> the same day, crashed on the couch overnight, and life went on the next

> day.

> (I live alone.)

>

> I had been in pain for over 6 years, but then did a few things that really

> pushed it over the edge and on..into the OR.

>

> Recovery went smoothly, I was driving the next day, doing all my usual

> (and extensive) chores, just slowly.

>

> Had a few lovely months without significant pain for the first time in

> many years, and then...the all-too-familiar blasts of nerve pain into my

> legs

> was back, along with the dull, deep buttock pain.

>

> Saw the ortho guy again this week, and am still digesting it all. Seems

> that the next step is a big one, with a full discectomy, laminectony, and

> spinal fusion. He was pretty blunt about the post-op recovery differences,

> and I specifically asked him if my putting it all a off as long as possible

>

> would make the surgery more difficult or risky, the recovery longer, or

> cause additional problems, and his answer was " no. "

>

> But it sure was nice to live without pain for a little while.

>

> judith

>

>

> In a message dated 10/24/2009 12:40:47 A.M. Eastern Daylight Time,

> bugsy1970@... <bugsy1970%40gmail.com> writes:

>

> Lesson here to learn is

> do not wait for a long time if you have leg pain the longer you wait the

> longer the leg will have to heal after surgery.

>

>

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Thanks, though in all fairness, the ortho isn't pushing surgery, but the

MRIs tell a painfully (literally and figuratively) clear story: there is

basically no disk left at L4-L5.

In a message dated 10/24/2009 2:11:01 A.M. Eastern Daylight Time,

bugsy1970@... writes:

When it comes to the back and spine you almost never want to see an ortho

Dr

and they deal with bone but Neurosurgions are great for the back and are

authority when it comes to back. I would seek a second opinion from a good

local Neurosurgeon with your updated MRI in hand.

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My guy cheerily said " It will be at least three months before you even

begin to think this was worth it. " And he knows I " m in good shape, have a

high pain threshold, don't waste time on whining. and basically heal fast.

judith

In a message dated 10/25/2009 11:17:53 P.M. Eastern Daylight Time,

tpowell1977@... writes:

And let me tell you, a fusion is no joke. It takes longer to recover than

open heart surgery...much longer.

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Actually Bugsy...you are completely wrong in your assumption, but it's a common

thought. In reality, neuro surgeons are not as good of a choice as ortho spine

surgeons. Neurosurgeons are the experts for the brain and spinal cord...and a

perfect choice for when they need to be operated on. An ortho spine surgeon is

an expert on bone, cartilage and joints... like you said, and  spine surgeries

are performed on those. The pathologies of the spine will impinge on nerves at

times, but you are not operating on nerves.

This opinion comes from many years of performing spine surgeries alongside BOTH

neuro and ortho spine docs. Also, I have been operated on by both...I thought

like you many years ago, and I insisted in neuro, and they didn't fix me, they

made my worse by performing unhelpful surgeries and procedures. The ortho spine

surgeon who fixed me is the ONLY surgeon who will ever touch my spine again.

AND, while you are pain free NOW after your discectomy, that will NOT last. What

you probably don't know is that your surgeon had to create a hole in your disc

to remove the extruded disc material. The hole isn't closed, so within a short

time, more disc material will move through that surgical opening and will cause

the same symptoms...only worse because the disc material will actually come in

contact with your surrounding tissues...and that is quite painful because the

material is very caustic. The cartilaginous casing of the disc protects you from

this inflammatory substance, but once an opening is made, your disc material

will slide on through and your disc annulus will begin to lose moisture which

will lead to degeneration. Within two years time you will likely need a fusion.

Within a few months to a year, your disc bulge symptoms will return with a

vengence.

THIS is the painful reality of discectomy, the reality that many of us on here

have lived through. The reality that started the ball rolling for the six spine

surgeries I have undergone over the last 16 years.

A very lucky few will never have back problems again.

Good luck!

 --- Babbitt

________________________________

From: " jarcher107@... " <jarcher107@...>

spinal problems

Sent: Sat, October 24, 2009 10:07:47 AM

Subject: Re: Success Story

 

Thanks, though in all fairness, the ortho isn't pushing surgery, but the

MRIs tell a painfully (literally and figuratively) clear story: there is

basically no disk left at L4-L5.

In a message dated 10/24/2009 2:11:01 A.M. Eastern Daylight Time,

bugsy1970gmail (DOT) com writes:

When it comes to the back and spine you almost never want to see an ortho

Dr

and they deal with bone but Neurosurgions are great for the back and are

authority when it comes to back. I would seek a second opinion from a good

local Neurosurgeon with your updated MRI in hand.

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Obviously Judith can attest to my previous post as being true.

 I just read your post, and though it's sad...I had to laugh. Discectomies need

to be stopped. At least if they didnt operate for the disc bulge/herniation ,

the disc would still maintain it's moisture  which gives it stability. When you

lose moisture, you lose height and stability...fusion is the onlyfix. Then

fusion often leads to more problems due to our bodies never being designed to

operate that way. You pay a price for sure.

 --- Babbitt

________________________________

From: " jarcher107@... " <jarcher107@...>

spinal problems

Sent: Sat, October 24, 2009 1:27:34 AM

Subject: Re: Success Story

 

Well, the flip side to that story is, informatively, mine. I had a

microdiscectomy on March 26, as an outpatient. Caught a ride home with friends

the same day, crashed on the couch overnight, and life went on the next day.

(I live alone.)

I had been in pain for over 6 years, but then did a few things that really

pushed it over the edge and on..into the OR.

Recovery went smoothly, I was driving the next day, doing all my usual

(and extensive) chores, just slowly.

Had a few lovely months without significant pain for the first time in

many years, and then...the all-too-familiar blasts of nerve pain into my legs

was back, along with the dull, deep buttock pain.

Saw the ortho guy again this week, and am still digesting it all. Seems

that the next step is a big one, with a full discectomy, laminectony, and

spinal fusion. He was pretty blunt about the post-op recovery differences,

and I specifically asked him if my putting it all a off as long as possible

would make the surgery more difficult or risky, the recovery longer, or

cause additional problems, and his answer was " no. "

But it sure was nice to live without pain for a little while.

judith

In a message dated 10/24/2009 12:40:47 A.M. Eastern Daylight Time,

bugsy1970gmail (DOT) com writes:

Lesson here to learn is

do not wait for a long time if you have leg pain the longer you wait the

longer the leg will have to heal after surgery.

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I predict a multi-level fusion for you within two years..probably less due to

the fact that this is your second go around. You already have degeneration (

moisture and height loss) due to your previous surgery. And let me tell you, a

fusion is no joke. It takes longer to recover than open heart surgery...much

longer.

 --- Babbitt

________________________________

From: Bugsy <bugsy1970@...>

spinal problems

Sent: Sat, October 24, 2009 12:40:36 AM

Subject: Success Story

 

I would like to share a success story, I try not to make it long. I was

suffering back pain because of a disc issue. I was getting epidural shots

for it that was helping. I left on a 13 day vacation. when I returned I was

having extremely bad back pain and asked my parents to come over and make my

bed. I was resting couple of days and Sunday was all better, I even walked

couple miles with my visiting grandparents. Then things turned for the

worse the next day. I could not walk or sit because of bad leg and back

pain. Tuesday came and I called an ambulance to take me to the hospital

because I could not take myself. Tuesday night I was admitted and Thursday

afternoon I had an microdisctemy. I swear to you right after the surgery I

had no pain at all and was able to walk right away and till this day two

weeks after I am pain free. I do have to note that 4 years ago I had to

have a similar surgery witch gave me little post op pain in my back and

leg. This time they wanted to do a fusion but they held off because of the

leg pain. I am very happy that I did what I did. Lesson here to learn is

do not wait for a long time if you have leg pain the longer you wait the

longer the leg will have to heal after surgery.

--

Roman Segal

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Actually, you are both incorrect. Spinal surgery has such a terrible history of

failure, it has it's own ICD-9 code. Be it neuro or ortho, neither has skill to

manage much less select appropriate candidates. It's understandable that this

froup of butchers continue their scam, they have to suck up in wasted resource

" hazement " forever, have object impunity to any clinical and certainly,

financial regulation and are king of the hill when it comes to more equipment

and staff resource allocations.

Yes, the King has no close and it's about time we exposed the bloated Paunzi

Scheme medicne has become.  Let US take away their public funding ($1.5 Trillion

per year Medicare Dope Act of 2002, Muni Bonds, etc) and learn what really

works.

Thanks for this opportunity to share fact based observations.

AQUADC, DABCN

From: Babbitt <tpowell1977@...>

Subject: Re: Success Story

spinal problems

Date: Sunday, October 25, 2009, 10:06 PM

 

Actually Bugsy...you are completely wrong in your assumption,

but it's a common thought. In reality, neuro surgeons are not as good of a

choice as ortho spine surgeons. Neurosurgeons are the experts for the brain and

spinal cord...and a perfect choice for when they need to be operated on. An

ortho spine surgeon is an expert on bone, cartilage and joints... like you said,

and  spine surgeries are performed on those. The pathologies of the spine will

impinge on nerves at times, but you are not operating on nerves.

This opinion comes from many years of performing spine surgeries alongside BOTH

neuro and ortho spine docs. Also, I have been operated on by both...I thought

like you many years ago, and I insisted in neuro, and they didn't fix me, they

made my worse by performing unhelpful surgeries and procedures. The ortho spine

surgeon who fixed me is the ONLY surgeon who will ever touch my spine again.

AND, while you are pain free NOW after your discectomy, that will NOT last. What

you probably don't know is that your surgeon had to create a hole in your disc

to remove the extruded disc material. The hole isn't closed, so within a short

time, more disc material will move through that surgical opening and will cause

the same symptoms...only worse because the disc material will actually come in

contact with your surrounding tissues...and that is quite painful because the

material is very caustic. The cartilaginous casing of the disc protects you from

this inflammatory substance, but once an opening is made, your disc material

will slide on through and your disc annulus will begin to lose moisture which

will lead to degeneration. Within two years time you will likely need a fusion.

Within a few months to a year, your disc bulge symptoms will return with a

vengence.

THIS is the painful reality of discectomy, the reality that many of us on here

have lived through. The reality that started the ball rolling for the six spine

surgeries I have undergone over the last 16 years.

A very lucky few will never have back problems again.

Good luck!

 --- Babbitt

____________ _________ _________ __

From: " jarcher107aol (DOT) com " <jarcher107aol (DOT) com>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Sat, October 24, 2009 10:07:47 AM

Subject: Re: Success Story

 

Thanks, though in all fairness, the ortho isn't pushing surgery, but the

MRIs tell a painfully (literally and figuratively) clear story: there is

basically no disk left at L4-L5.

In a message dated 10/24/2009 2:11:01 A.M. Eastern Daylight Time,

bugsy1970gmail (DOT) com writes:

When it comes to the back and spine you almost never want to see an ortho

Dr

and they deal with bone but Neurosurgions are great for the back and are

authority when it comes to back. I would seek a second opinion from a good

local Neurosurgeon with your updated MRI in hand.

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I suggest that you deserve to tell the world what's happened to you in the hands

of medical authorities. Everyone from those you meet in the grocery line to the

medically paid off politicians. Especially the politicians, tell them that they

are " On Notice " to stop medical welfare .And, before their next election, tell

them and all you meet your story again.

Helping others is the greatest reward.

AQUADC, DABCN

From: jarcher107@... <jarcher107@...>

Subject: Re: Success Story

spinal problems

Date: Sunday, October 25, 2009, 10:28 PM

 

My guy cheerily said " It will be at least three months before

you even

begin to think this was worth it. " And he knows I " m in good shape, have a

high pain threshold, don't waste time on whining. and basically heal fast.

judith

In a message dated 10/25/2009 11:17:53 P.M. Eastern Daylight Time,

tpowell1977 writes:

And let me tell you, a fusion is no joke. It takes longer to recover than

open heart surgery...much longer.

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In a message dated 10/28/2009 9:32:11 PM Eastern Daylight Time,

tpowell1977@... writes:

Judith,

I feel your pain hun...truly I do. I hope you find the easiest and least

invasive path to relief!

--- Babbitt

Oh, the really bad pain is history since the discectomy, though there are

tweaks and twinges that may increase. But that level of nerve pain really

does re-set your idea of what " really hurts. "

The only really bad time now is when my 95-pound puppy charges past and

hits a knee and does a sharp external rotation..that one is still good for a

scream and drop, though neither the hip ortho surgeon nor the back ortho

surgeon wants to guess if this is from the back, or if it's jut a hip bone

spur snagging a nerve.

I can still basically push through the pain, for now anyway. Sounds like

that means I " m a lot better off than many here, which is important to keep

in mind when I start feeling sorry for myself. But I remain interested in

how others manage to live with pain.

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Judith,

I feel your pain hun...truly I do. I hope you find the easiest and least

invasive path to relief!

 --- Babbitt

________________________________

From: " jarcher107@... " <jarcher107@...>

spinal problems

Sent: Wed, October 28, 2009 6:47:33 PM

Subject: Re: Re: Success Story

 

In a message dated 10/28/2009 6:39:18 PM Eastern Daylight Time,

tpowell1977 writes:

I have found that after someone has endured terrible sciatic pain due to

stenosis, they are quite happy with the results frojust decompression

Hey, I think I could have a root canal done without any pain control with

a lot less pain than that caused by my smashed disk (there eas NO room left

in the MRI, everything on one side was just squisjed together, not to get

too technical about it.)

THAt level of pain...I call it " twist up like a pretzel and

scream " ....puts

juditha lot of things into perspective. I'm hoping not to end up there

again.

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  • 2 weeks later...

what about disk replacement or lazar surgery?

>

> Obviously Judith can attest to my previous post as being true.

>

>  I just read your post, and though it's sad...I had to laugh. Discectomies

need to be stopped. At least if they didnt operate for the disc bulge/herniation

, the disc would still maintain it's moisture  which gives it stability. When

you lose moisture, you lose height and stability...fusion is the onlyfix. Then

fusion often leads to more problems due to our bodies never being designed to

operate that way. You pay a price for sure.

>  --- Babbitt

>

>

>

>

> ________________________________

> From: " jarcher107@... " <jarcher107@...>

> spinal problems

> Sent: Sat, October 24, 2009 1:27:34 AM

> Subject: Re: Success Story

>

>  

> Well, the flip side to that story is, informatively, mine. I had a

> microdiscectomy on March 26, as an outpatient. Caught a ride home with friends

> the same day, crashed on the couch overnight, and life went on the next day.

> (I live alone.)

>

> I had been in pain for over 6 years, but then did a few things that really

> pushed it over the edge and on..into the OR.

>

> Recovery went smoothly, I was driving the next day, doing all my usual

> (and extensive) chores, just slowly.

>

> Had a few lovely months without significant pain for the first time in

> many years, and then...the all-too-familiar blasts of nerve pain into my legs

> was back, along with the dull, deep buttock pain.

>

> Saw the ortho guy again this week, and am still digesting it all. Seems

> that the next step is a big one, with a full discectomy, laminectony, and

> spinal fusion. He was pretty blunt about the post-op recovery differences,

> and I specifically asked him if my putting it all a off as long as possible

> would make the surgery more difficult or risky, the recovery longer, or

> cause additional problems, and his answer was " no. "

>

> But it sure was nice to live without pain for a little while.

>

> judith

>

>

> In a message dated 10/24/2009 12:40:47 A.M. Eastern Daylight Time,

> bugsy1970gmail (DOT) com writes:

>

> Lesson here to learn is

> do not wait for a long time if you have leg pain the longer you wait the

> longer the leg will have to heal after surgery.

>

>

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