Re: Re: extremely concerned...

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Thanks, . I guess my orthotist was listening all along and shared in my concerns because she immediately said she was going to scan him for a new band today.

The scan went well and we pick up the new band on Tues!

She just wanted to give him a chance to either "fill in" or for the adjustment to fix the problems we have had with the fit. And she needed approval from someone above her to make the decision to re-make the band.

I received some updated data on him, too (they took all new pics and measurements) and there has been AMAZING changes! His assymetry went from 19mm to 4mm! His forehead is still a little slanted and the back of his head is unchanged, but the top of his head is round!! He was a very severe case and, yes, he has/had a VERY complex head shape.

Like I said, the band did not fit right and I was completely neurotic about it, but there WAS correction that I could see with my naked eye. So, I did follow the 23 hour treatment rule and tried to squelch my concern about any potential facial deformity from the ill-fitted sideburn.

All is well. I can't wait to see the new band (fit)!

From: <nwilkens2275@...>Subject: Re: extremely concerned...Plagiocephaly Date: Wednesday, June 10, 2009, 4:12 PM

Have you had a chance to study his original "headcicle" in the office? It is REALLY easy to forget what their head looked like before starting treatment and it might help to see him side by side with it to be sure you're seeing what you're seeing (not that I don't believe you, I just know from experience that my eyes can play tricks VERY easily). I would just voice your concerns and see what they say. I mentioned in my other post re: "Problems with DOCBand" that maybe you're dealing with a complex head shape and it may need some extra attention. Is your therapist aware of your concerns up to this point? They should be willing to listen to you and possibly take a new set of photos to see if the left side is shifting wrong. I know a 2 hour commute is tough (we had to go 2.5 each way), but it will be worth it if you can put your fears to rest. Please keep us posted. Good luck!Jake-2.5 (DOCBand Grad 9/08)Jordan-5>> I have made a few posts regarding my son's DOC band shifting and the sideburn portion covering his left ear. It still continues to shift despite an adjustment to the sideburn portion to alleviate any pressure on his ear.> This morning, I was doing a thorough check of his head and ears b/c I am becoming more and more concerned that the band is possibly pushing his left ear back. His left ear was never off, it was his right ear from right side plagio.> I noticed that the left ear does seem a bit pushed back (but it was never even with his right ear due to the right side assymetry) and the cheekbone area in front of his left ear appears to be dented from the sideburn of the DOC

band.> While there has been some correction of the frontal bossing and the top of his head where there was a flat spot, I can't help but wonder if the shifting is causing permanent damage to the left side of his face. It doesn't seem right to me that the band can be working effectively when it's always shifted to the left.> How would I go about directing these concerns to the orthotist so that I don't get that "look" and a polite brush-off? Can someone tell me if I am over reacting to something that is normal in DOC band treatment? Is there any other ortho centers in the NY/NJ area that I can consult for a second opinion? I live in upstate NY, so the weekly drive down to Paramus is over 2 hours. AND our insurance wouldn't cover the band, so we are OOP for it.> Thanks for your opinions.> > > Mom 2:> Oliver, 18 weeks, sliding DOC band since May 7th> , 3

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