Re: if its not only thing its another

[Guest guest]

i am goin to try my best to get him up to St Louis even if i have to wait

until his daddies new insurance kicks in to see if they can get him up there.

i am trying to keep my spirits up. I have gone through a lot with

especially since i didn't have him home the first 2 weeks after he was born.

it is helping a lot to at least have people to talk to about all this and i

am truly grateful too all of the people on this board

Amber

Mother to

12/6/05 BCF

[Guest guest]

Amber- I know it's hard. It seems like you're going nowhere, and

that all the treatment that has already been done has been for

nothing- a complete waste of time. I went through this just a couple

of months ago. Just try to keep your chin up. It will get better! I

know it's hard to just leave the cast off, because it seems like

you're stopping his treatment, but the truth is he wasn't being

treated properly to begin with. The only thing I can say is to enjoy

being with him without casts on for now. Let him play in the

tub!!

You will be amazed at how quickly his feet will be treated when

treated properly. Lucas' were corrected by Dr. Ponseti in only 3

weeks. When I look back at how long other doctors tried (12 mos!!)

it seems like nothing! He is now fully corrected and in his

/Ponseti brace.

If you ever need to talk or vent, you can email me. We've all been

there before and you've just got to get it out and then go on (at

least, that's how I am).

Good luck to you, and I hope your insurance will let you go see Dr.

Dobbs! You might want to call them yourself and see what they say,

while Dr. Dobb's office checks into it from their end.

Jenn

>

> Is there anyone in this group that lives in Mississippi that is

goin up

> to St. Louis to the Shrinir Hospital? From waht i have been

hearing

> with help of the Shriner's he would haev to go to the Shriner

Hospital

> down in Sheveport, LA.

>

> Heard back from Dr. Dobbs He said he would be glad to help/

has

> Mississippi Medicaid and i dont think that would be acceptedup

there..

> I have Emailed Dr. Dobbs about it now jsut waitin on a reply to

see

> waht will happen from there.

>

> And like you all said Dr Dobbs agreed with yall about leaving the

cast

> off for now. That it would do more harm that good.

>

> now i guess waiting to here about the Shrinir stuff

>

> I know im supposed to be optimisticabout it all but at times i

wonder

> how it will all work out for the better

>

> amber

>

[Guest guest]

Amber-

The beauty of Shriners is that all care up until the age of 18 is

free!! Free!! ie insurance/smurance. Now about the whole-LA or St

Louis one- I know the shreveport one would do your son more harm

than good--so make sure that you let them know you want to see the

best and if Dr Dobbs has to interfere-have him!!

Take care,

kathleen

>

> Is there anyone in this group that lives in Mississippi that is

goin up

> to St. Louis to the Shrinir Hospital? From waht i have been

hearing

> with help of the Shriner's he would haev to go to the Shriner

Hospital

> down in Sheveport, LA.

>

> Heard back from Dr. Dobbs He said he would be glad to help/

has

> Mississippi Medicaid and i dont think that would be acceptedup

there..

> I have Emailed Dr. Dobbs about it now jsut waitin on a reply to

see

> waht will happen from there.

>

> And like you all said Dr Dobbs agreed with yall about leaving the

cast

> off for now. That it would do more harm that good.

>

> now i guess waiting to here about the Shrinir stuff

>

> I know im supposed to be optimisticabout it all but at times i

wonder

> how it will all work out for the better

>

> amber

>

[Guest guest]

Amber,

Why do you need insurance? Dr. Dobbs is at Shriners there which will

care for him for free. I don't think you have anything to worry

about with this option other than the drive and lodging, which I

don't know if insurance would cover anyway. or maybe it does? At

any rate, maybe your church or some relatives would be willing to

chip in for gas and lodging to help you out? You would only have

to stay there one night, and drive back the next day, if that. Or

drive the night before and stay over for an am appointment and then

go home (more likely). Go back a week later and do again. It's

likely that you'd only need to do this 2 or 3 times if he only needs

a couple of casts. Then it's done, and you go back much less often

while he wears the brace.

Is there anything as far as lodging or transportation that you need

help with finding? What kind of walls are you running into with

this? How can we help?

hang in there, glad to hear you got those horrible casts off. Just

enjoy him and rest assured that Dr. Dobbs will fix him up in no time. Promise!

Kori

At 02:24 PM 2/25/2006, you wrote:

>i am goin to try my best to get him up to St Louis even if i have to wait

>until his daddies new insurance kicks in to see if they can get

>him up there.

>i am trying to keep my spirits up. I have gone through a lot with

>especially since i didn't have him home the first 2 weeks after he was born.

>

>it is helping a lot to at least have people to talk to about all this and i

>am truly grateful too all of the people on this board

>

>Amber

>Mother to

>12/6/05 BCF

>

>

>

[Guest guest]

Insurance won't matter at Shriners! You don't have to wait for your

insurance or approval from your Insurance co., Shrine will cover the costs of

treatment.

s.

Re: Re: if its not only thing its another

i am goin to try my best to get him up to St Louis even if i have to wait

until his daddies new insurance kicks in to see if they can get him up there.

i am trying to keep my spirits up. I have gone through a lot with

especially since i didn't have him home the first 2 weeks after he was born.

it is helping a lot to at least have people to talk to about all this and i

am truly grateful too all of the people on this board

Amber

Mother to

12/6/05 BCF

[Guest guest]

I just want to chime in here that if the drive every week is impossible (for

whatever reasons) Amber could stay in St. Louis for the length of the treatment

at the Mc Houses dirt cheap.

s.

You would only have

to stay there one night, and drive back the next day, if that. Or

drive the night before and stay over for an am appointment and then

go home (more likely). Go back a week later and do again. It's

likely that you'd only need to do this 2 or 3 times if he only needs

a couple of casts. Then it's done, and you go back much less often

while he wears the brace.

[Guest guest]

Sorry I forgot to mention this previously regarding transportation to St. Louis

- the lady in SL I spoke with said Wings of Hope would fly us back and forth

from Oklahoma. The St. Louis people understand the Shreveport people can't do

Ponseti treatments and really push to get parents to St. Louis when necessary,

pulling strings and getting you there!

s.

Re: if its not only thing its another

Amber- I know it's hard. It seems like you're going nowhere, and

that all the treatment that has already been done has been for

nothing- a complete waste of time. I went through this just a couple

of months ago. Just try to keep your chin up. It will get better! I

know it's hard to just leave the cast off, because it seems like

you're stopping his treatment, but the truth is he wasn't being

treated properly to begin with. The only thing I can say is to enjoy

being with him without casts on for now. Let him play in the

tub!!

You will be amazed at how quickly his feet will be treated when

treated properly. Lucas' were corrected by Dr. Ponseti in only 3

weeks. When I look back at how long other doctors tried (12 mos!!)

it seems like nothing! He is now fully corrected and in his

/Ponseti brace.

If you ever need to talk or vent, you can email me. We've all been

there before and you've just got to get it out and then go on (at

least, that's how I am).

Good luck to you, and I hope your insurance will let you go see Dr.

Dobbs! You might want to call them yourself and see what they say,

while Dr. Dobb's office checks into it from their end.

Jenn

>

> Is there anyone in this group that lives in Mississippi that is

goin up

> to St. Louis to the Shrinir Hospital? From waht i have been

hearing

> with help of the Shriner's he would haev to go to the Shriner

Hospital

> down in Sheveport, LA.

>

> Heard back from Dr. Dobbs He said he would be glad to help/

has

> Mississippi Medicaid and i dont think that would be acceptedup

there..

> I have Emailed Dr. Dobbs about it now jsut waitin on a reply to

see

> waht will happen from there.

>

> And like you all said Dr Dobbs agreed with yall about leaving the

cast

> off for now. That it would do more harm that good.

>

> now i guess waiting to here about the Shrinir stuff

>

> I know im supposed to be optimisticabout it all but at times i

wonder

> how it will all work out for the better

>

> amber

>

[Guest guest]

Amber,

First of all... Hugs to you and to . You are doing an amazing job of

trying to get him the best possible care for his sweet little feet. Things are

going to work out just fine. Before you know it, you'll be chasing him around

the grocery store as he runs away from you on his perfect feet!

The wonderful, amazing thing about all of the Shriner's hospitals is that they

provide all treatment absolutely free of charge. X-rays, shoes, braces, casting

materials, you don't pay for a single thing. You will never see a bill from

them; they don't even have a billing department. If they ask you whether you

have insurance, it's because they like to keep track of these kinds of things

for statistics. My son is treated at a Shriner's hospital in California. Until

recently, our insurance didn't even know he had clubfoot--and he's 2 and a half

years old.

As you already know, though, all clubfoot treatment is not equal and you need to

make sure that you are seeing a doctor who really and truly is following the

Ponseti method. The doctors at the Shriner's in Shreveport, unfortunately, are

not getting good results. However, Dr Dobbs at the Shriner's in St Louis is.

If you insist that you want to see him and only him, it will happen. If you run

into resistance from anyone, let us know. We can direct you to folks who can

pull strings. From transportation to lodging, they've got people there who can

help you out.

Take a deep breath and relax and enjoy 's feet with no casts on. We hope

for all the best for him and we're here to help you get just that.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

12/7)

---------------------------------

Yahoo! Mail

Use Photomail to share photos without annoying attachments.

[Guest guest]

Amber,

It's Sandy at Shriners who can help you with transportation and

lodging. She can be reached at x. 206

Also just for your reference here is the info for the Mc

Houses here:

Mc House

West Pine House

and West Pine Apartments

4381 West Pine

St. Louis, MO 63108

phone:

email: info @ rmhcstl.com (without the spaces)

Park Avenue House

3450 Park Avenue

St. Louis, Missouri 63104.

phone:

email: info @ rmhcstl.com

Hope this helps,

> >

> > Is there anyone in this group that lives in Mississippi that is

> goin up

> > to St. Louis to the Shrinir Hospital? From waht i have been

> hearing

> > with help of the Shriner's he would haev to go to the Shriner

> Hospital

> > down in Sheveport, LA.

> >

> > Heard back from Dr. Dobbs He said he would be glad to help/

> has

> > Mississippi Medicaid and i dont think that would be acceptedup

> there..

> > I have Emailed Dr. Dobbs about it now jsut waitin on a reply to

> see

> > waht will happen from there.

> >

> > And like you all said Dr Dobbs agreed with yall about leaving

the

> cast

> > off for now. That it would do more harm that good.

> >

> > now i guess waiting to here about the Shrinir stuff

> >

> > I know im supposed to be optimisticabout it all but at times i

> wonder

> > how it will all work out for the better

> >

> > amber

> >

>

>

>

>

>

>

>

[Guest guest]

Amber

The Shriner in St. Louis is free for your child. I was thinking the same

thing how I'm going to get to St. Louis so I was thinking the same thing going

to Shreveport but they told me it could be several months before we would get in

down there. So I started calling St. Louis talk to I think her name was Gail in

Family Services she helped me get a flight free of charge flying with Wings Of

Hope, then a Shriner will pick me up take me to the Haven House which she told

me the Temple is going to pay my stay while I'm there, so come find out I don't

have to pay for nothing. I leave out on March 12th come home on March 14th.

Have any more questions let me know.

Larissa and 7-15-05

Amber wrote:

Is there anyone in this group that lives in Mississippi that is goin up

to St. Louis to the Shrinir Hospital? From waht i have been hearing

with help of the Shriner's he would haev to go to the Shriner Hospital

down in Sheveport, LA.

Heard back from Dr. Dobbs He said he would be glad to help/ has

Mississippi Medicaid and i dont think that would be acceptedup there..

I have Emailed Dr. Dobbs about it now jsut waitin on a reply to see

waht will happen from there.

And like you all said Dr Dobbs agreed with yall about leaving the cast

off for now. That it would do more harm that good.

now i guess waiting to here about the Shrinir stuff

I know im supposed to be optimisticabout it all but at times i wonder

how it will all work out for the better

amber