Re: Tendon Transfer at Age 3

[Guest guest]

I hope to hear some info also! Dr. Ponseti said Lucas would need

this at 2-3 years.

>

> Hi there everyone,

>

> We haven't posted for a long time.

> We have Harvey who is now 20 months is running around and is a

happy

> little man.

> Harvey had two clubfeet and we have been seeing Dr Minoo Patel

here

> in Melbourne. Dr Patel has been wonderful as has his delivery of

the

> Ponsetti Method for Harvey.

> We last saw Dr Patel a few months ago when Harvey was 18 months

old.

> He mentioned that Harvey may need a tendon transfer at age 3.

>

> I was wondering whether any of you had the same procedure with any

of

> your children ?

>

>

> Also, I found a new article on this procedure titled " Anterior

Tibial

> Tendon Transfer in Relapsing Congenital Clubfoot: Long-Term Follow-

Up

> Study of Two Series Treated With a Different Protocol " .

>

> It's on the Journal of Pediatric Orthopedics web-site. Go to

> www.pedorthopaedics.com and hit " Current Issue " tab. The article

is

> listed as number 83.

>

> Hope to hear from you.

>

> - and e

>

[Guest guest]

Hi, I am new to the site! My daughter Macie was born with bi-lateral

clubfoot and quite severe. Her left foot it more severe, however

both feet have deep creases. Long and short is that she is now 20

months old and her left foot is starting to relapse. We saw Dr.

Ponseti on Wednesday and he said that most likely Macie will need to

have a tendon transfer around 2 1/2 years of age. We weren't

prepared for this news as we are very strict with the brace and do

all we can to prevent relapse. We are now having her wear her brace

during naps as well in effort to stop or correct the new problem.

With your experience I am curious to know anything and everything

about the tendon transfer procedure and recovery. I have looked

online and not had much luck finding non-technical information or for

that matter any information on the tendon transfer. I read that you

have posted several times about this and I am still trying to learn

how to navigate this site so I apologize:-) Any information or links

that you can provide will much appreciated.

Thanks in advance,

nna Cullen

>

> Hi!

>

> My son, Jake, was born with a left clubfoot. He relapsed around

the age of 2 yrs and has had tendon transfer surgery done twice, at

age 3 and age 4 1/2. I've posted about this many times on both the

nosurgery4clubfoot and clubfoot boards so if you look back thru my

posts you should be able to find a lot of information. Let me know

if you have trouble looking up old posts and I can forward you some

information, or just email me with any specific questions you might

have.

>

> Kassia

> 3/22/01 (Lt clubfoot, ATTT surgery #2 October 2005)

> and 11/22/02

>

[Guest guest]

Welcome nna & Macie!

I am utterly shocked that the doctors in Des Moines wanted to do

surgery on your child. You would think that with the proximity of

Des Moines to Iowa City, that all the doctors there would be

following the Ponseti method! What a disappointment! I'm glad you

researched your options and were able to get your daughter to Iowa

City!

I'm sorry that you're dealing with a relapse. There are quite a few

families here with ATTT experience and hopefully they'll be a great

support and source of information for you.

Have you seen the Global HELP booklet? It has graphic photographs

of the procedure (it's a medical booklet intended for

professionals), so I'm not sure if this interests you or not.

As far as navigating the site, to search through the archives, you

have to type in a key word, then the Yahoo site will search through

a batch of the most recent messages for your word...if you hit next,

it will search through the group of next oldest messages.

Unfortunately, there's no way to search all the posts at once, so

you have to keep hitting " next " to sift through them. Not user-

friendly at all.

We look forward to having you and Macie on our group!

Best wishes,

& (3-16-00, left clubfoot)

http://ponseticlubfoot.freeservers.com/

[Guest guest]

,

I was talking about Macie's initial treatment, not the ATTT. Sorry

for the confusion. You have to read both of nna's posts to get

the whole story!

>

> Hi ,

>

>

>

> I have a Ponseti Certified doctor and I consulted with Dr. P

himself who

> agreed that 2 ½ is not too young for the tendon transfer if it is

necessary.

> Unfortunately, I was hoping for him to disagree with Dr.

Herzenberg but I

> guess in some cases it has to be done. I just thought it seemed

really

> young….

>

>

>

>

>

>

>

> _____

>

> From: nosurgery4clubfoot

> [mailto:nosurgery4clubfoot ] On Behalf Of

jennyandkelly

> Sent: Monday, January 16, 2006 11:24 AM

> To: nosurgery4clubfoot

> Subject: Re: Tendon Transfer at Age 3

>

>

>

> Welcome nna & Macie!

> I am utterly shocked that the doctors in Des Moines wanted to do

> surgery on your child. You would think that with the proximity of

> Des Moines to Iowa City, that all the doctors there would be

> following the Ponseti method! What a disappointment! I'm glad

you

> researched your options and were able to get your daughter to Iowa

> City!

> I'm sorry that you're dealing with a relapse. There are quite a

few

> families here with ATTT experience and hopefully they'll be a

great

> support and source of information for you.

> Have you seen the Global HELP booklet? It has graphic photographs

> of the procedure (it's a medical booklet intended for

> professionals), so I'm not sure if this interests you or not.

> As far as navigating the site, to search through the archives, you

> have to type in a key word, then the Yahoo site will search

through

> a batch of the most recent messages for your word...if you hit

next,

> it will search through the group of next oldest messages.

> Unfortunately, there's no way to search all the posts at once, so

> you have to keep hitting " next " to sift through them. Not user-

> friendly at all.

> We look forward to having you and Macie on our group!

> Best wishes,

> & (3-16-00, left clubfoot)

> http://ponseticlubfoot.freeservers.com/

>

>

>

>

>

>

>

>