Hi Guys

[Guest guest]

Hi,

My name is Steph and I have a 12 years old adolescent son (diagnosed bipolar,

ADD/ADHD, OCD, leaky gut became clear pretty quick, so he takes the colostrom

and supplements, we control all of his conditions with diet, supplements, and a

couple herbs). After systematic elimination over the last year, we have arrived

at a corn free, gluten-free diet with practically no additives (particularly

msg, aspartame, dyes, most preservatives) Just read the Excitotoxins book by

Blaylock so the elimination of msg and aspartame (aspartate) products as well as

carsonogenic (sp) preservatives only happened this last month.

Anyway, having one heck of a time finding the basics at affordable prices. This

week will drive 150 miles to get the legumes, milk products, etc. I need in

quantity at a pretty hefty price but not nearly as bad as the local prices. We

have an organically grown grocery store within one hour's drive but the prices

are horrific. By driving the 3 hours to a co-op I am planning to stock us for

almost month at a time, but that is still one heck of a drive. So the question

is does anyone have advice on how to do this more affordably? For instance, is

there a difference between rice/bean flour that you buy and rice and beans that

you grind in a coffee grinder? May be a silly question but we really need to

find a more affordable way to do this. I have a juicer so the juices are not an

issue plus we keep a few of the organic bottled ones on hand for emergencies.

Bought a bread machine last year, so that I could control what went into the

breads he eats, and have a couple really tasty gluten-free cookbooks (the one I

like the most so far is The Gluten-Free Gourmet, Cooks Fast and Healthy, by

Bette Hagman) if anyone has some other favorite authors or titles please share

if you can as the wider the variety the easier it is to get my son to eat and be

satisfied with what he eats. Needless to say he certainly isn't too happy with

me these days, but his over all health and mental function improves daily, as

does his stability, so he will just have to get over it. Also do most of you

also conform to whatever rotation/elimination diet you are trying with the kids?

I have been following whatever diet he is on as it seems to make him more diet

compliant to know he isn't the only one having to do without. It is a bummer

though. Just wondering how this works in terms of the household needs for most

of you. I live in the United States, I am also wondering if other countries put

as much 'stuff' (particularly MSG, aspartame, etc.) into every food as the US

does.

Steph

[Guest guest]

,

I will be praying for you and sending you a virtual hug.

Terri G.

>

> I really don't like to send emails about me, but you guys might be

surprised at what has been going on for the last couple of months. You

guys have encouraged me to leave Vanderbilt Hospital and search for

someone that could at least listen to what's going on. First I was sent

to a PCP, that's young and doesn't mind a challenge, and Lord knows I'm

a challenge. lol I've been seeing her for about a year, and every

complaint that I've listed to her has panned out asd something being

wrong.. Not that I'm happy that anythings wrong I'm just happy that she

isn't biased regarding my care and is willing to be open minded, to see

if what I'm telling her can be explained or not.

>

> She first started trying to see if there is/was something with my

ability to swallow.. and absolutely by a throat speciallist that I did

have paralysis on the R side of my throat, and that my mouth dosen't

create its on saliva, plus I had suffered from trigeminl neuroliga (sp)

I have to take 2 tablets 3times aday of Pilocarpine to replace the

saliva so I can even speak.. my mouth is so dry I can't clearly speak.

>

> This last week has really confirmed to me that I really need to get

out of Vanderbilt as they was not working toward assisting me, they

would say, Oh ms parker, you're alright.. just don't worry about it..

>

> The begining of this last week they performed a bone marrow biopsy

because my blood counts just continued to plumet to the bottom, I had

had one a couple of years ago and it showed that I was iron deficient,

so I took iron tablets three times a day. for a couple of years.. this

time.. my iron was fine but there was something a little screwy in my

bone marrow that was a tad bit strange. He told me but it was way over

my head and he said the every famous words, " we'll just watch it " fine.

>

> I was then sent for a ct scan of my abdomen and pelvis, trying to find

a source of bleeding, cancer, or any damage that the old sarc monster

might have caused.. My pelvis was fine, but my liver is huge, he called

off Hepatits C, and Cirrhosis but secondary to chronic illness

(Sarcoidosis) both irreverosible.. but the biggy is that my spleen is

twice the size of a normal spleen, but on the inside of the spleen is a

lymph node that has formed into a Lymphosis (cancerous) cell.. I have 3

options #1 to go in a rupture the spleen and get the nodulle out. #2. Do

nothing, just watch it and make sure that it doesn't rupture . The

lymphoma itself is self contained inside the spleen.. and therefore can

not spread. And it has always seemed to me that when someone is opened

up and discovered they have cancer, that when the cancer feels the air,

it spreads like crazy. So every 2 months I am to come back and have the

test redone. and should I get into any kind of accident that my cause my

spleen to rupture to find my way to the hospital.. He says that the

spleens job in an adult is to filter our blood from infections.. and

that I'd risk infections going directly to my organs should I not have a

spleen, for the rest of my life.. I'm sorry this is long, but I'm so

excited, not that anything is wrong but that someone took the time to

figure all this crap out for me..

>

> Sorry, I'm not around that much, but like all of you we are battling

this crazy disease ourselves. So all of you that have told me to leave

Vanderbilt well " I DID IT " ..

>

> Hugs,

>

> NS Moderator

>