Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 That expanation helps a ton Thanks > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: CANDICE Just Joining >Date: Mon, 23 Jan 2006 11:04:09 -0600 > > >>>>>>I am slowly doin the research-if >>>>>>anyone can make the long >story >>>>>>short, that would be great > >>>>>>Thanks, > >, >Just so you know where I am coming from, I have a 7year old son who began >treatement with a doc who said he could fix club feet. He started at 4 days >old. > >We spent somewhere around 20 months with this guy... " Trusting " him because >as you said, he was the doctor, what did I know? > >Whether was born with Atypical cf or the atypical (complex) condition >was created through bad casting, I'll never know but he did end up with a >horrible case. If you look at teh photo files of Hayden's feet, well, that >is how 's looked before we found Dr. Ponseti. > > didn't have quite the vulgar treatment history your a did, but >it was equally as ineffective to him, and I was equally as trusting as you. > >There is really no way to make a long story short, so forgive me please. > >Dr. Ponseti later did all he could but ended up having the ATTT >surgery in Iowa. > >What I learned since then, through that experience and then again with my >2nd son who also had bilateral cf - was that a lot of these doctors just >cram the foot, physically cram it in to shape then cast it. > >Obviouly that is painful, but it's also non-productive, even >counter-productive as in and na's case. A baby's bones are so >soft and agreeable that they will take the shape they are casted in to, >right or wrong. > >What seperates the Ponseti Method " Serial Casting " procedure from typical >serial casting is the sequence of events. > >Dr. Ponseti discovered about five decades ago that if the baby's bones are >moved in a certain sequence, A-B-C, then the foot would literally return to >a normal, non-clubbed condition. Also, since the bones are replaced in to >what should be their natural position, they are allowed to continue growing >normally and naturally in to adult hood. > >Nothing artificial is done to them so there is nothing un-natural to come >back to haunt the child in later years. > >It seems unreasonable to beleive it is really that simple when we look at >how hard some doctors work to re-create the baby's foot. It seems >unreasonable it could so simple, just that purely simple...and yet it is >about 95% of the time. > > Your daughter and my son and lots of other kids have gone through hell >and back to have their feet taken apart and put back together when all they >really needed was to have their bones put back in the right place through a >gentle process of manipulation that takes a few weeks rather than months >(or years). > >Quite literally, the Ponseti Method did from my 2nd son Everett in five >weeks what this other doctor couldn't do for in nearly two years. > >We won't get in to the whole philosophy of it, unless you want to... I mean >those questions of " Why don't more doctors just figure out how simple it >is? " But as far as the philosophy of how well this method works, well, it >works because Ponseti's Method cooperates with the human anatomy rather >than trying to re-create the human anatomy. Um, what is that old >saying...you can't push a river, it flows on it's own. > >Likewise, you can't push a clubbed foot in to a normal positon, but if you >let it flow and direct it with gentle guidence, it will flow on it's own >back to it's natural state. > >I hope some of that helps explain the difference between Ponseti's serial >casting and the other guy's - and why his success rate is so high in >comparrison. > > >In the mean time, forgive yourself. You weren't wrong to trust a medical >professional; that so-called professional was wrong to not admit sooner >that he was beat on this one. And after that then start your own crusade >to help save other kids from this terrible treatment fate. > >Bless you all, >shawnee > Just Joining > > > > > > My daughter is 6 and a half months old. She > > has bilateral clubfoot. She has already had an Achilles Tendon > > lengthening on both feet. Her left foot is looking amazing but her > > right foot still needs a little work. However, it was a really long > > haul to get here. na's had treatment (casting Ponseti > > method) since she was 6 days old. nas doctor is researching > > the use of botox with these babies. So na had 3 injections > > while most babies only have one. In my opinion it did not work at > > all for na. na has also been placed under general > > anaesthetic 6 times-half of those times being mistakes the doctors > > made. After nas surgery(Achilles Tendon and they put pins to > > hold her in her casts)-Dec 1, 2005-they put her casts on too tight, > > so they had to put her back to sleep again to change her casts. > > After 3 weeks of the cast, they started to smell, so we had to go > > again-they put her to sleep and once again put her casts on too > > tight. So when we got home, I took her to another hospital, and > > they split her casts in the front to give a few millimetres leway. > > Anyways, they also did that once before her surgery as well. To add > > to this, they cut her feet both times they had to use the saw so she > > has 2 huge scars going all the way up her feet because of more > > mistakes. > > By the way, thanks everyone for letting me know about this site > > But now, na has custom made Ankle Foot Orthoses (AFO) and we > > are gonna start trying the Dennis Browne boots and bars at night. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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