Re: Hello Everyone, news from liver doc yesterday

[Guest guest]

I am praying for you . It just isn't fair that along with this monster sarc we also get hit by other things constantly. But this is life and we deal with what we get.

God bless you and keep you in his arms.

Jackie

Hello Everyone, news from liver doc yesterday

I want to start by saying Happy New Year and I hope this year brings everyone some peace and some pain free days.

"WE ALL COULD USE IT"

I was at the liver doc yesterday and i was amazed he spent over an hour with me.. not in and out. But along with this brought more bad news.

as you all know i crashed in nov 08 and have not been able to get back up .. well i had to have a cat-scan of my abdomen due to sever pain and when i stand you can see a buldge on right and left side and my abdomen is swellon... the liver doc looked at the films for over a half hour along with another doc and he said I have Portal hypertention. so i had 6 tubes of blood drawn and i am waiting for a call from the specialist nurse to schudle a procedure where he said they will make an insision in my neck at the jugular and go down to my liver ..he also said they can try to reduce the pressure with drugs.. and one which i am already on called propanolal but he said it will take a much higher dose.

I wish everyone a pain free day and love you all

in Pa

Many blessings and a pain free day Please support Neurosarcoidosis society

[Guest guest]

I know they say when it rains it pours...but this really sucks. Here's my prayer that the docs will figure this out and get you 'back on your feet' as they say. At least you got a good enough doc that really took his time and let's all hope and pray he's got you on a road to better days. hugs S.Life is short...live it to the fullest...to your last living breath.Subject: Hello Everyone, news from liver

doc yesterdayTo: Neurosarcoidosis Date: Wednesday, January 6, 2010, 5:52 PM

I want to start by saying Happy New Year and I hope this year brings everyone some peace and some pain free days.

"WE ALL COULD USE IT"

I was at the liver doc yesterday and i was amazed he spent over an hour with me.. not in and out. But along with this brought more bad news.

as you all know i crashed in nov 08 and have not been able to get back up .. well i had to have a cat-scan of my abdomen due to sever pain and when i stand you can see a buldge on right and left side and my abdomen is swellon... the liver doc looked at the films for over a half hour along with another doc and he said I have Portal hypertention. so i had 6 tubes of blood drawn and i am waiting for a call from the specialist nurse to schudle a procedure where he said they will make an insision in my neck at the jugular and go down to my liver ..he also said they can try to reduce the pressure with drugs.. and one which i am already on called propanolal but he said it will take a much higher dose.

I wish everyone a pain free day and love you all

in Pa

Many blessings and a pain free day Please support Neurosarcoidosis society

[Guest guest]

I will keep you in my prayers. I hope that they the doctors will be able to help you get through this. MattSubject:

Hello Everyone, news from liver

doc yesterdayTo: Neurosarcoidosis Date: Wednesday, January 6, 2010, 5:52 PM

I want to start by saying Happy New Year and I hope this year brings everyone some peace and some pain free days.

"WE ALL COULD USE IT"

I was at the liver doc yesterday and i was amazed he spent over an hour with me.. not in and out. But along with this brought more bad news.

as you all know i crashed in nov 08 and have not been able to get back up .. well i had to have a cat-scan of my abdomen due to sever pain and when i stand you can see a buldge on right and left side and my abdomen is swellon... the liver doc looked at the films for over a half hour along with another doc and he said I have Portal hypertention. so i had 6 tubes of blood drawn and i am waiting for a call from the specialist nurse to schudle a procedure where he said they will make an insision in my neck at the jugular and go down to my liver ..he also said they can try to reduce the pressure with drugs.. and one which i am already on called propanolal but he said it will take a much higher dose.

I wish everyone a pain free day and love you all

in Pa

Many blessings and a pain free day Please support Neurosarcoidosis society

[Guest guest]

,

Are you using the Milk Thistle Capsules? This will help get your liver detoxified, and that too will help with the portal hypertension. had just stated the other day that she too is dealing with PH. You might want to pick her brain on that issue.

Hugs,

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Wed, January 6, 2010 4:50:06 PMSubject: Re: Hello Everyone, news from liver doc yesterday

I will keep you in my prayers. I hope that they the doctors will be able to help you get through this. Matt

Subject: Hello Everyone, news from liver doc yesterdayTo: Neurosarcoidosis Date: Wednesday, January 6, 2010, 5:52 PM

I want to start by saying Happy New Year and I hope this year brings everyone some peace and some pain free days.

"WE ALL COULD USE IT"

I was at the liver doc yesterday and i was amazed he spent over an hour with me.. not in and out. But along with this brought more bad news.

as you all know i crashed in nov 08 and have not been able to get back up .. well i had to have a cat-scan of my abdomen due to sever pain and when i stand you can see a buldge on right and left side and my abdomen is swellon... the liver doc looked at the films for over a half hour along with another doc and he said I have Portal hypertention. so i had 6 tubes of blood drawn and i am waiting for a call from the specialist nurse to schudle a procedure where he said they will make an insision in my neck at the jugular and go down to my liver ..he also said they can try to reduce the pressure with drugs.. and one which i am already on called propanolal but he said it will take a much higher dose.

I wish everyone a pain free day and love you all

in Pa

Many blessings and a pain free day Please support Neurosarcoidosis society

[Guest guest]

, I am so sorry to hear of this dx, and I pray that the treatment will be a huge success and you will be feeling better soon, I know like everything else we end up with, it's not a over night fix, so know that

you will continue to be in my prayers, I do pray for all of us, as we all deal with so much, so many drugs, tests, etc. but hang in there, I just know there are brighter days ahead.  blessings, Marla

I want to start by saying Happy New Year and I hope this year brings everyone some peace and some pain free days.

" WE ALL COULD USE IT "

I was at the liver doc yesterday and i was amazed he spent over an hour with me.. not in and out. But along with this brought more bad news.

as you all know i crashed in nov 08 and have not been able to get back up .. well i had to have a cat-scan of my abdomen due to sever pain and when i stand you can see a buldge on right and left side and my abdomen is swellon... the liver doc looked at the films for over a half hour along with another doc and he said I have Portal hypertention. so i had 6 tubes of blood drawn and i am waiting for a call from the specialist nurse to schudle a procedure where he said they will make an insision in my neck at the jugular and go down to my liver ..he also said they can try to reduce the pressure with drugs.. and one which i am already on called propanolal but he said it will take a much higher dose.

I wish everyone a pain free day and love you all

in Pa

 

Many blessings and a pain free day

Please support Neurosarcoidosis society