Advice!

[Guest guest]

Hello, my son has just started in his Starband at exactly 1 year

old. We are not sure yet wether Mediacid will cover it or not. I am

in florida and and his head is 2 1/2 outside the variance of normal

and he has bracheocephaly. I am unsure of the mm or how that works.

If anyone knows wether Florida Medicaid covers it or not that would

be very helpful! I have been trying to get him banded for 6 months

and the doctors never measured his head they just would touch it and

assure me that his hair would cover it.They do not like the

banding. He is behind a little developementaly, he is just trying

to pull himself up now and has no interest in crawling. He is very

active and bright, he just is a very content baby. He has had Mri's

of his head and full spine and they have been fine. He has enlarged

ventricles but hydracephalus has been ruled out. I finally got the

helmet because the OT and Pt supported me and the ped finally helped

out with it all. The orthotist thinks that he will wear it only 3

months and I am not clear on why as a older child is supposed to

wear it longer I had thought. has anyone had any experience in

banding a 1 year old child and what were the outcomes? How long did

they need to wear their helmet? I had heard of craniosynostosis and

assume that at his age that would not be a problem now.he is still a

total back sleeper and has had specialist and his ped look at hime

few times. So it has been ruled positional. I have looked

everywhere at the info and am sure that the headshapes are much

more obvious and he has no facial assymetry. i just would not want

to hurt him in any way. I am always very nervous about the

anesthisia and do not want to do test for little reason.What testing

is done and do they have to be sedated? I do not have any reason to

believe he has this I am just a little nervous about all of this

still and am trying to get used to him in his helmet. He looks so

cute :-)Thanks for any feedback and have a great day everyone!!