Re: My first of many questions...

[Guest guest]

Marla,

Why did they put you on IV steroids before and after the surgery?

Kat

[Guest guest]

Hi Rach,

To answer your question -- Although I have not made any big moves, I

do

live in a little country town that has nothing in the way of medical help.

The

nearest hospital is 17miles and the one I use is 33 miles. I am fortunate

in that

they have a great Cardiologist/Pulmonary Specialist and that is who I see.

However,

when I got so very ill in 2006, I had to go to Indianapolis ( 100 miles

away) and

was there for 3 months. They have a lot of specialists there. My advice to

you is

to definetly shop around for new Doctors. We pay THEM, so we do have a

choice as to who we see and it does pay to shop around. Check online and

see who

all is available in your area and try to find out all you can about them --

what they do

specialize in; check to see if any of your family or neighbors have dealt

with them;

anything you can because name alone does not always get you the facts. You

need to

deal with one who is knowledgeable with Sarcoidosis and Neurosarcoidosis and

at

the same time, one who is really interested in trying to help you. Some of

the Doctors

think this is just a simple disease that a regiman of prednisone will cure!

And for the

VERY few, that is the case............but for the rest of us, it is only the

first step and has

to be dealt with by trying other drugs. Everyone is not the same and the

drugs that

help some people will not always help others. Remicade, for instance, is a

great drug

and many on the list use it and it is helping a lot. However, for me, I had

a bad

experience with it and cannot use it. So, shop around and do not give up.

We are

here to help. Check out our Files and Archives. There is so much good

info there

and the Files can be printed out and taken to your Doctor, if necessary.

Good luck

and stay in touch. WE DO CARE!

Hugs,

Darlene

NS Co-Owner/Moderator

My first of many questions...

> So a week has passed since my diagnosis... and I'm starting to get my head

> around it, I suppose that be because I've lived with it for 9 years! and

> its actually a relief to have a confirmed diagnosis, my ms one was always

> a little shady.

>

> My first question is about doctors. At the end of the year my family is

> moving " up the country " a 3 hour drive from the capital city (currently

> I'm 45 minutes from it). I don't know if I mentioned - I'm from Australia.

>

> I will need to return to see my opthalmologist (as there are very few

> uveitis specialists) and I will probably need to return to see my

> neurologist - as there are none in the country hospital!

>

> I know the timing couldn't be worse, but when would a good time be?!? and

> I think the change/ less stress/ less pollution will actually be good for

> my health.

>

> So my question (i'm getting there!) is has anyone else made a big move.

> How did you go finding a new GP (I think you call them PCP's) over there,

> and all the little things that go with it. Is it okay to " Shop around " and

> interview every doctor in a clinic.I'd appreciate any tips or advice.

>

> Rach

>

>

>

> ------------------------------------

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